过渡性护理之旅--家庭成员在生命受到威胁后的经历:定性研究。

IF 1.9 4区 医学 Q2 NURSING
Scandinavian Journal of Caring Sciences Pub Date : 2024-12-01 Epub Date: 2024-09-24 DOI:10.1111/scs.13304
Theresa Gyllander, Ulla Näppä, Marie Häggström
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引用次数: 0

摘要

背景介绍作为重病患者的家人,可以改变一个人对生活的看法。突如其来的重病可能会导致患者经历一段艰辛的旅程,包括急性入院、重症监护、后期护理以及最后回家。目的:描述在整个医疗旅程中,从家中发病到重症监护室、后期护理以及回家的整个过程中,家人陪伴在患者身边的经历:研究采用定性设计,通过半结构式访谈收集数据,并使用反思性主题分析法进行分析。研究采用目的取样法招募参与者(n = 14),他们在从发病到出院的整个医疗过程中都有与近亲在一起的经历:家庭成员的经历被归纳为 "经历情绪动荡的旅程 "这一总主题以及 "进入一个新世界"、"继续未知之旅 "和 "努力实现家中的新常态 "等主题。他们描述了一个非线性的过程,其特点是在几个方面发生了过渡或变化。这些转变包括家庭成员所扮演角色的转变、他们所处环境的转变以及病人病情或伤情的发展:研究表明,有近亲属经历生命危险的家庭成员会经历具有挑战性的转变。重症监护病房幸存者家属所承担的非正式护理角色对他们的生活产生了重大影响,医疗系统应优先考虑在整个医疗过程中为家属提供高质量的支持。提高护理在医疗保健系统中的重要性有助于提供整体护理和促进过渡。进一步的研究应侧重于了解家庭成员认为促进其过渡和提高其福祉所必需的支持。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A journey through transitional care-family members' experiences post a life-threatening situation: A qualitative study.

Background: Being a family member to someone who suffers from a serious illness can change one's perspectives about life. A sudden and severe illness can result in a demanding journey that involves acute admission to hospital, intensive care, post-care, and finally, returning home.

Aim: To describe the experience of staying beside a next of kin throughout the healthcare journey, from the onset of illness at home, to the intensive care unit, post-care, and returning home.

Methods: The study employed a qualitative design, with data collected via semi-structured interviews and analysed using reflexive thematic analysis. A purposive sampling was used to recruit participants (n = 14), who had experiences of staying beside a next of kin throughout the healthcare journey from the onset of illness to discharge from the hospital.

Findings: Family members' experiences were captured under the overarching theme Journey through an emotional turmoil and the themes Entering a new world, Continuing the journey towards something unknown, and Striving for the new normal at home. They described going through a non-linear process, characterised by transitions or changes in several aspects. The transitions included shifts in the roles that the family members played, in the various environments they found themselves in, and in the progression of the patient's illness or injury.

Conclusion: The study suggested that family members with a next of kin who experienced life-threatening situations undergo challenging transitions. The informal caregiver role placed on family members of intensive care unit-survivors significantly impacts their lives and the healthcare systems should prioritise providing high-quality support to family members throughout the entire healthcare journey. Elevating the importance of nursing care within the healthcare system can contribute to delivering holistic care and facilitating transitions. Further research should focus on understanding the support that family members perceive as necessary to facilitate their transition and enhance their well-being.

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来源期刊
CiteScore
4.60
自引率
5.30%
发文量
71
期刊介绍: Scandinavian Journal of Caring Sciences is an established quarterly, peer reviewed Journal with an outstanding international reputation. As the official publication of the Nordic College of Caring Science, the Journal shares their mission to contribute to the development and advancement of scientific knowledge on caring related to health, well-being, illness and the alleviation of human suffering. The emphasis is on research that has a patient, family and community focus and which promotes an interdisciplinary team approach. Of special interest are scholarly articles addressing and initiating dialogue on theoretical, empirical and methodological concerns related to critical issues. All articles are expected to demonstrate respect for human dignity and accountability to society. In addition to original research the Journal also publishes reviews, meta-syntheses and meta-analyses.
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