Alexandra Malia Jackson, Clemma Jacobsen Muller, Scott K Okamoto, Raven H Weaver, Steffi M Kim, Magdalena Haakenstad, Cortney Pfeaster, Zowey Cachola, Ashley Oshiro, Kacyn Ideue, Nancy Schoenberg, Ka'imi Sinclair
{"title":"夏威夷原住民和太平洋岛民老年痴呆症及相关痴呆症患者的家庭（'Ohana）照顾者的健康和福祉。","authors":"Alexandra Malia Jackson, Clemma Jacobsen Muller, Scott K Okamoto, Raven H Weaver, Steffi M Kim, Magdalena Haakenstad, Cortney Pfeaster, Zowey Cachola, Ashley Oshiro, Kacyn Ideue, Nancy Schoenberg, Ka'imi Sinclair","doi":"10.1177/10436596241286232","DOIUrl":null,"url":null,"abstract":"<p><strong>Introduction: </strong>We aimed to describe the health and well-being of family caregivers of Native Hawaiian and Pacific Islander (NHPI) adults living with Alzheimer's disease and related dementias (ADRD), explore cultural values related to caregiving, and characterize barriers and facilitators to their health and well-being.</p><p><strong>Methodology: </strong>Caregivers of NHPIs living with ADRD were recruited from across the United States to complete a multimethod study including a survey followed by an interview about their health and well-being.</p><p><strong>Results: </strong>Eleven participants completed surveys, six of whom completed an interview. Themes included caring as a community, <i>lōkahi</i> (balance), and the importance of sleep, food, and physical activity. Cultural values included connection to cultural practices, <i>kūpuna</i> (elders) as cultural knowledge holders, and the <i>kuleana</i> (responsibility) of caregiving.</p><p><strong>Discussion: </strong>Caregiving for an NHPI adult living with ADRD occurs beyond the dyad, and is a matter of family and community. Culturally-based interventions offered through community and healthcare organizations may be critical to promoting caregiver health.</p>","PeriodicalId":1,"journal":{"name":"Accounts of Chemical Research","volume":null,"pages":null},"PeriodicalIF":16.4000,"publicationDate":"2024-09-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Health and Well-being of Family ('Ohana) Caregivers of Native Hawaiian and Pacific Islander Adults Living with Alzheimer's Disease and Related Dementias.\",\"authors\":\"Alexandra Malia Jackson, Clemma Jacobsen Muller, Scott K Okamoto, Raven H Weaver, Steffi M Kim, Magdalena Haakenstad, Cortney Pfeaster, Zowey Cachola, Ashley Oshiro, Kacyn Ideue, Nancy Schoenberg, Ka'imi Sinclair\",\"doi\":\"10.1177/10436596241286232\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Introduction: </strong>We aimed to describe the health and well-being of family caregivers of Native Hawaiian and Pacific Islander (NHPI) adults living with Alzheimer's disease and related dementias (ADRD), explore cultural values related to caregiving, and characterize barriers and facilitators to their health and well-being.</p><p><strong>Methodology: </strong>Caregivers of NHPIs living with ADRD were recruited from across the United States to complete a multimethod study including a survey followed by an interview about their health and well-being.</p><p><strong>Results: </strong>Eleven participants completed surveys, six of whom completed an interview. Themes included caring as a community, <i>lōkahi</i> (balance), and the importance of sleep, food, and physical activity. Cultural values included connection to cultural practices, <i>kūpuna</i> (elders) as cultural knowledge holders, and the <i>kuleana</i> (responsibility) of caregiving.</p><p><strong>Discussion: </strong>Caregiving for an NHPI adult living with ADRD occurs beyond the dyad, and is a matter of family and community. Culturally-based interventions offered through community and healthcare organizations may be critical to promoting caregiver health.</p>\",\"PeriodicalId\":1,\"journal\":{\"name\":\"Accounts of Chemical Research\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":16.4000,\"publicationDate\":\"2024-09-30\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Accounts of Chemical Research\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1177/10436596241286232\",\"RegionNum\":1,\"RegionCategory\":\"化学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"CHEMISTRY, MULTIDISCIPLINARY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Accounts of Chemical Research","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1177/10436596241286232","RegionNum":1,"RegionCategory":"化学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"CHEMISTRY, MULTIDISCIPLINARY","Score":null,"Total":0}
Health and Well-being of Family ('Ohana) Caregivers of Native Hawaiian and Pacific Islander Adults Living with Alzheimer's Disease and Related Dementias.
Introduction: We aimed to describe the health and well-being of family caregivers of Native Hawaiian and Pacific Islander (NHPI) adults living with Alzheimer's disease and related dementias (ADRD), explore cultural values related to caregiving, and characterize barriers and facilitators to their health and well-being.
Methodology: Caregivers of NHPIs living with ADRD were recruited from across the United States to complete a multimethod study including a survey followed by an interview about their health and well-being.
Results: Eleven participants completed surveys, six of whom completed an interview. Themes included caring as a community, lōkahi (balance), and the importance of sleep, food, and physical activity. Cultural values included connection to cultural practices, kūpuna (elders) as cultural knowledge holders, and the kuleana (responsibility) of caregiving.
Discussion: Caregiving for an NHPI adult living with ADRD occurs beyond the dyad, and is a matter of family and community. Culturally-based interventions offered through community and healthcare organizations may be critical to promoting caregiver health.
期刊介绍：
Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance.
Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.
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