与自闭症儿童一起经历地震：关于父母经验的定性研究

IF 4.2 1区地球科学 Q1 GEOSCIENCES, MULTIDISCIPLINARY

International journal of disaster risk reduction Pub Date : 2024-09-21 DOI:10.1016/j.ijdrr.2024.104850

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引用次数: 0

摘要

对于父母来说，带着患有自闭症谱系障碍（ASD）的儿童经历地震等灾难会遇到各种困难，并增加他们的脆弱性。然而，尽管地震对自闭症谱系障碍儿童及其父母都很重要，但文献却没有对地震中自闭症谱系障碍儿童父母的养育经验提供任何解释。本研究旨在探讨经历过 2023 年卡赫拉曼马拉什（Kahramanmaraş）地震（世界上伤亡人数第二多的地震）的父母对患有自闭症儿童的养育经验。本研究采用定性现象学设计，对居住在 11 个受地震影响城市的 18 位父母（16 位母亲，2 位父亲）进行了半结构化访谈，并通过定性内容分析进行了分析。研究结果揭示了以下主题：（a）地震对生活的影响；（b）难以应对的问题；（c）地震对养育自闭症儿童的影响；（d）对地震的要求。结果显示，由于孩子患有自闭症，父母在地震中遇到了更多困难。这些困难使父母疲惫不堪，最终对亲子关系产生负面影响。文中将对研究结果进行详细讨论。

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Exposure to the earthquake with a child with autism: A qualitative study on parenting experiences

For parents, experiencing disasters such as earthquakes with a child with autism spectrum disorder (ASD) involves various difficulties and increases vulnerability. But despite its importance for both children with ASD and their parents, the literature does not provide any explanation for the parenting experiences of parents with children with ASD in an earthquake. The aim of this study is to explore the parenting experiences of parents who experienced the 2023 Kahramanmaraş Earthquakes, the second most fatal earthquake in the world, with their children with ASD. In this study, which was conducted with a qualitative phenomenology design, semi-structured interviews were conducted with 18 parents (16 mothers, 2 fathers) living in eleven earthquake-affected cities and analyzed by qualitative content analysis. The findings of the study revealed the themes of (a) the effects of the earthquake on life, (b) the issues that are difficult to cope with, (c) the effects of the earthquake on parenting a child with ASD, and (d) the requirements on the earthquake. As a result, it is seen that parents experienced more difficulties in the earthquake due to the autism of their children. These difficulties wear out the parents, and ultimately, these difficulties reflect negatively on the parent-child relationship. The findings are discussed in detail in the text.

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来源期刊

International journal of disaster risk reduction GEOSCIENCES, MULTIDISCIPLINARYMETEOROLOGY-METEOROLOGY & ATMOSPHERIC SCIENCES

CiteScore

8.70

自引率

18.00%

发文量

688

审稿时长

79 days

期刊介绍： The International Journal of Disaster Risk Reduction (IJDRR) is the journal for researchers, policymakers and practitioners across diverse disciplines: earth sciences and their implications; environmental sciences; engineering; urban studies; geography; and the social sciences. IJDRR publishes fundamental and applied research, critical reviews, policy papers and case studies with a particular focus on multi-disciplinary research that aims to reduce the impact of natural, technological, social and intentional disasters. IJDRR stimulates exchange of ideas and knowledge transfer on disaster research, mitigation, adaptation, prevention and risk reduction at all geographical scales: local, national and international. Key topics:- -multifaceted disaster and cascading disasters -the development of disaster risk reduction strategies and techniques -discussion and development of effective warning and educational systems for risk management at all levels -disasters associated with climate change -vulnerability analysis and vulnerability trends -emerging risks -resilience against disasters. The journal particularly encourages papers that approach risk from a multi-disciplinary perspective.