Empower-Autism 的开发、可行性和可接受性:针对新近被诊断为自闭症儿童的照顾者的新心理教育和心理治疗计划。

IF 5.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL
Autism Pub Date : 2024-09-18 DOI:10.1177/13623613241274566
Kathy Leadbitter, Louisa Harrison, Sophie Langhorne, Ceri Ellis, Richard Smallman, Amelia Pearson, Latha Hackett, Leo Kroll, Alison Dunkerley, Hilary Beach, June Gilbert, Amy van Gils, Tessa Hutton, Jonathan Green, Penny Bee
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引用次数: 0

摘要

内容提要:关于该主题的已知信息有哪些?他们通常会寻求信息、社会和情感支持。关于如何最好地提供这种支持的研究相对较少,这意味着没有证据来指导服务的提供。研究表明,一种名为 "接受与承诺疗法 "的方法可以帮助家长和照护者适应环境并保持良好的情绪。这篇文章补充了什么?这篇文章介绍了一项新的以小组为基础的计划,旨在满足照护者在孩子被诊断出患有自闭症后的不同需求。这项新计划是由照顾者、自闭症患者和专业人士共同制定的。该计划名为 "增强自闭症能力"(Empower-Autism),包含大量有关自闭症的信息和支持自闭症儿童的策略,以及基于 "接纳与承诺疗法"(Acceptance and Commitment Therapy)的治疗内容。该课程分三组向 29 名家长/照顾者提供。各小组的出席率令人满意。家长/照护者和主持人都喜欢并重视该计划,并认为该计划易于接受。他们提出了改进建议。活动结束后,家长和照护者都表示身心健康得到了改善。他们感到更加积极,与他人的联系更加紧密。对实践、研究或政策的影响这项新计划正在一项大型临床试验中进行测试。如果取得积极成果,该计划将被推荐实施,这将填补循证实践中的一个重要空白。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The development, feasibility and acceptability of Empower-Autism: A new psychoeducational and psychotherapeutic programme for caregivers of children recently diagnosed with autism.

Lay abstract: What is already known about the topic?Parents and carers face many challenges following their child's autism diagnosis. They often look for information, and social and emotional support. There has been relatively little research into how best to provide this support and this means that there is no evidence to guide the delivery of services. Studies have suggested that an approach called Acceptance and Commitment Therapy can help parents and carers with their adjustment and emotional wellbeing.What does this article add?This article describes the development of a new group-based programme to address the diverse needs of caregivers after their child's autism diagnosis. The new programme was developed with caregivers, autistic people and professionals. It was called Empower-Autism and contained lots of information about autism and strategies to support autistic children, alongside therapeutic aspects based on Acceptance and Commitment Therapy. The programme was delivered to 29 parents/carers in three groups. Attendance at the groups was satisfactory. Both parents/carers and facilitators liked and valued the programme and found it accessible. They made suggestions for improvements. After the programme, parents and carers described improved wellbeing. They felt more positive and more connected to other people. They also described parenting their child in a more informed and sensitive way.Implications for practice, research or policyThe new programme is being tested within a large clinical trial. If there are positive results, the programme could be recommended for delivery and this would address an important gap in evidence-based practice.

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来源期刊
Autism
Autism PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
9.80
自引率
11.50%
发文量
160
期刊介绍: Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.
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