爱尔兰父母抚养自闭症儿童的经验:定性专题分析。

IF 5.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL
Autism Pub Date : 2024-09-12 DOI:10.1177/13623613241277040
Sally Whelan, Niall Caulfield, Sinéad O'Doherty, Arlene Mannion, Geraldine Leader
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引用次数: 0

摘要

内容提要:养育自闭症儿童是一种极具挑战性的经历。自闭症儿童的父母往往需要社会和专业支持,以应对他们遇到的各种压力,并确保他们的孩子发挥出最佳潜能。最近,爱尔兰组织专业支持的方式发生了变化。近期很少有研究调查爱尔兰父母抚养自闭症儿童的经验。本研究采访了六位家长,询问他们所面临的挑战、压力水平、应对策略以及对专业支持服务的看法。这些访谈的数据被整理成主题。一个主要发现是,家长们认为医疗保健系统未能为他们的孩子提供帮助,而且爱尔兰的支持服务比处理孩子的困难更能给家长带来困扰。造成家长压力的其他原因包括他们认为孩子的行为具有挑战性、耻辱感、缺乏对自闭症的认识以及孤独感。这项研究表明,由于医疗保健系统存在缺陷,自闭症儿童及其父母出现心理健康问题的风险都在增加,亟待改善。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Parental experiences of raising an autistic child in Ireland: A qualitative thematic analysis.

Lay abstract: Parenting an autistic child can be a challenging experience. Parents of autistic children often require social and professional support to cope with the various stresses they encounter and to ensure their children achieve their optimal potential. Recently, the way professional supports are organised in Ireland has changed. Very little previous recent research has investigated parents' experiences of raising an autistic child in Ireland. This study interviewed six parents asking them about their challenges, stress levels, coping strategies and their perceptions regarding professional support services. The data from these interviews were organised into themes. A major finding was that parents felt the healthcare system was failing to provide help for their children, and that support services in Ireland can cause more parental distress than dealing with their child's difficulties. Other causes of parental stress included the child's behaviours that they found challenging, stigma, a lack of awareness about autism and isolation. This study shows that both autistic children and their parents are at increased risk of developing mental health problems due to a flawed healthcare system that requires improvement urgently.

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来源期刊
Autism
Autism PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
9.80
自引率
11.50%
发文量
160
期刊介绍: Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.
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