唐氏综合症患者的个人和环境因素与家庭援助:横断面研究。

IF 1.1 4区 综合性期刊 Q3 MULTIDISCIPLINARY SCIENCES
Anais da Academia Brasileira de Ciencias Pub Date : 2024-09-09 eCollection Date: 2024-01-01 DOI:10.1590/0001-3765202420230558
Beatriz Helena Brugnaro, Camila R G Lima, Isabelle G R DA Costa, Gesica Fernandes, Ana Carolina DE Campos, Peter Rosenbaum, Silvia Letícia Pavão, Nelci Adriana C F Rocha
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引用次数: 0

摘要

根据生物-心理-社会框架,个人因素和环境因素可能分别是发挥功能的媒介或促进因素/障碍。然而,这些因素如何影响唐氏综合症(DS)儿童/青少年在家务劳动中的独立性,目前尚不清楚。本研究探讨了个人/环境因素是否以及如何与巴西患有唐氏综合症的儿童/青少年在家务劳动中的独立性水平相关联。研究人员使用 CHORES 和标准化问卷对 28 名患有唐氏综合症的儿童/青少年的照顾者进行了访谈,内容涉及个人因素(儿童的年龄和性别)和环境因素(社会经济水平和母亲的受教育程度)。多元线性回归分析确定了这些因素是否/如何与独立性水平相关。对于 CHORES 自我照顾和 CHORES 总计,性别是一个重要变量,分别解释了 21.8% 和 15.8% 的结果变化。对于 CHORES 家庭护理结果而言,没有一个变量具有显著性。女性性别与较低的援助需求相关。我们的结论是,在 DS 儿童中,只有与女性性别相关的个人因素与家务独立程度有关。这一发现强调了医疗保健提供者和家庭鼓励儿童独立做家务的重要性,无论其性别如何,并为男孩和女孩提供更多机会。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Personal and environmental factors and household assistance in Down syndrome: cross-sectional study.

According to a biopsychosocial framework, personal and environmental factors might be mediators or facilitators/barriers, respectively, to functioning. However, it is not known how these factors can impact independence in household chores in children/adolescents with Down syndrome (DS). This study explored whether and how personal/environmental factors are associated with the independence level in household chores of children/adolescents with DS in Brazil. Caregivers of twenty-eight children/adolescents with DS were interviewed using the CHORES and a standardized questionnaire about personal (child's age and sex) and environmental (socioeconomic level and maternal schooling) factors. Multiple linear regression analysis identified if/how these factors are associated with level of independence. For CHORES self-care and CHORES total, sex was a significant variable explaining 21.8% and 15.8%, respectively, of the variation in the outcomes. For the outcome CHORES family care none of the variables was significant. Female sex was associated with a lower need for assistance. We conclude that only the personal factor assessed related to female sex in children with DS was associated with the independence level in household chores. This finding highlights the importance of health care providers and families to encourage the independence in chores regardless of sex and promote opportunities for both boys and girls.

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来源期刊
Anais da Academia Brasileira de Ciencias
Anais da Academia Brasileira de Ciencias 综合性期刊-综合性期刊
CiteScore
2.20
自引率
0.00%
发文量
347
审稿时长
1 months
期刊介绍: The Brazilian Academy of Sciences (BAS) publishes its journal, Annals of the Brazilian Academy of Sciences (AABC, in its Brazilianportuguese acronym ), every 3 months, being the oldest journal in Brazil with conkinuous distribukion, daking back to 1929. This scienkihic journal aims to publish the advances in scienkihic research from both Brazilian and foreigner scienkists, who work in the main research centers in the whole world, always looking for excellence. Essenkially a mulkidisciplinary journal, the AABC cover, with both reviews and original researches, the diverse areas represented in the Academy, such as Biology, Physics, Biomedical Sciences, Chemistry, Agrarian Sciences, Engineering, Mathemakics, Social, Health and Earth Sciences.
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