让先进疗法的时间倒流：是时候放聪明点了。

IF 4 3区医学 Q2 NEUROSCIENCES

Journal of Parkinson's disease Pub Date : 2024-09-06 DOI:10.3233/jpd-240193

Matthew J Georgiades,Anton A van der Plas,Bastiaan R Bloem,Simon J G Lewis

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引用次数: 0

摘要

我们的语言会影响患者对疗法的看法。对于帕金森病患者来说，突发的反应波动和运动障碍通常会引发有关开始 "高级疗法 "的对话，而 "高级疗法 "包含了 "晚期疾病 "的概念。患者坚定地与疾病抗争，却被误导了。他们在寻求疾病尚未严重恶化的保证，因此可能会抵制可能改变生命的疗法。相反，我们应该提供 "智能疗法"。这一术语更准确、更积极地描述了所提供的疗法，这些疗法能够稳定反应波动并改善生活质量，而不关注疾病进展到晚期的负面含义。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Winding Back the Clock on Advanced Therapies: It's Time to Get Smart.

Our language affects patients' perceptions of therapies. In Parkinson's disease, emergent response fluctuations and dyskinesias typically trigger conversations around commencing an "Advanced Therapy" which carries notions of Advanced Disease. The patient, resolute in their commitment to fighting the disease, is misled. Chasing reassurance that their disease has not yet progressed considerably; they may therefore resist a potentially life-changing therapy. Instead, we should offer a "Smart Therapy". This term more accurately and positively describes therapies on offer that stabilize response fluctuations and improve quality of life, without a focus on the negative connotations of progression to more advanced disease.

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来源期刊

Journal of Parkinson's disease NEUROSCIENCES-

CiteScore

8.40

自引率

5.80%

发文量

338

审稿时长

>12 weeks

期刊介绍： The Journal of Parkinson''s Disease (JPD) publishes original research in basic science, translational research and clinical medicine in Parkinson’s disease in cooperation with the Journal of Alzheimer''s Disease. It features a first class Editorial Board and provides rigorous peer review and rapid online publication.