射向星空:实施循证计划,满足儿童癌症幸存者及其家庭治疗结束后的需求。

IF 1 4区 医学 Q3 NURSING
Mary Conway Keller,Lauren Ayr-Volta,Elizabeth Marconi,Andrew Needham,Kelly Foy,Leigh Hart,Elizabeth Holden,Amirul Anuar,Karina Engelke,Katherine Hinderer
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引用次数: 0

摘要

背景:治疗结束(EOT)是儿童癌症治疗-生存连续过程中的一个重要时间点,被认为是儿童癌症幸存者(CCS)及其家庭经历重大脆弱性和压力的时期。家庭和医疗保健专业人员都呼吁提供标准化、全面的 EOT 服务,以便成功度过这一过渡时期,更好地应对治疗后的医疗、身体和社会情感问题。方法:一个由儿科肿瘤医护人员组成的多学科团队制定并实施了一项为期两节课的心理教育计划,以满足EOT的这些需求。为了评估 STARS(幸存者成功克服所有路障)EOT 过渡项目的拍摄效果,采用了前测-后测重复测量设计。在接受 EOT 服务之前、期间和之后,由 47 名家长/照顾者和 29 名社区服务人员组成的方便样本完成了调查。使用斯皮尔曼相关性和弗里德曼检验(一种非参数重复测量方差分析)对两者之间的关系和随时间发生的变化进行了分析。结果:所有受访者都对项目表示满意,94.7%的受访者对结束治疗感到有些或非常有心理准备。随着时间的推移,参与者的痛苦程度呈下降趋势。在家庭参与拍摄 STARS 计划期间,家长/照顾者报告的 CCS 焦虑、疲劳、疼痛干扰和身体活动能力水平有了显著改善。讨论:这项由护士主导的循证计划被认为是可行且可接受的。随着时间的推移,它可能有助于改善与健康相关的生活质量并减少痛苦。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Shooting for the STARS: Implementing an Evidence-Based Program to Meet the End of Treatment Needs of Childhood Cancer Survivors and Their Families.
Background: The end of treatment (EOT) is a significant time point along the childhood cancer treatment-survivorship continuum, and is recognized as a time when childhood cancer survivors (CCS) and their families experience significant vulnerability and stress. There is a call by families and healthcare professionals alike for standardized, comprehensive EOT services to successfully navigate through this transition period and better cope with posttreatment medical, physical, and social-emotional issues. Method: A multidisciplinary team of pediatric oncology health care professionals developed and implemented a two-session psychoeducational program to address these EOT needs. To evaluate the Shooting for the STARS (Survivors Tackling All Roadblocks Successfully) EOT Transition Program, a pretest-posttest repeated measures design was utilized. A convenience sample of 47 parents/caregivers and 29 CCS completed surveys before, during, and after the EOT services were received. Analysis of relationships and changes over time was conducted using Spearman-ranked correlations and Friedman tests, a nonparametric repeated measures analysis of variance. Results: All respondents reported program satisfaction, with 94.7% feeling somewhat or very prepared for ending treatment. Participants' distress levels tended to decrease over time. Parent/caregiver-reported levels of CCS' anxiety, fatigue, pain interference, and physical mobility significantly improved over the time period during which families participated in the Shooting for the STARS Program. Discussion: This nurse-led, evidence-based program was determined to be feasible and acceptable. It may contribute to improved health-related quality of life and decrease distress over time.
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CiteScore
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