Rachel H S Oliveira, Marisa C Mancini, Priscilla R P Figueiredo, Leonardo C Abrahão, Edna A Reis, Andrew M Gordon, Marina B Brandão
{"title":"在 COVID-19 大流行期间为脑瘫儿童提供个性化远程保健家庭计划。","authors":"Rachel H S Oliveira, Marisa C Mancini, Priscilla R P Figueiredo, Leonardo C Abrahão, Edna A Reis, Andrew M Gordon, Marina B Brandão","doi":"10.1111/dmcn.16072","DOIUrl":null,"url":null,"abstract":"<p><strong>Aim: </strong>To analyse the effects of an individualized telehealth home programme on the performance of functional goals of children and adolescents with cerebral palsy (CP) during the COVID-19 pandemic.</p><p><strong>Method: </strong>A prospective single-group intervention study with children/adolescents with CP (n = 144; median age = 92 months [Q<sub>1</sub> = 44.0, Q<sub>3</sub> = 148.8]; 74 males, 70 females), representing all Gross Motor Function Classification System (GMFCS) levels participated in a 4-month home programme in Brazil. An interdisciplinary team encouraged families to choose a functional goal to be trained. The Canadian Occupational Performance Measure (COPM) was used at pre-intervention (T<sub>1</sub>), post-intervention (T<sub>2</sub>), and 3-month follow-up (T<sub>3</sub>). The differences in COPM scores at T<sub>1</sub>, T<sub>2</sub>, and T<sub>3</sub> were evaluated using Friedman's test. The effect size was calculated using Cohen's d. Univariate analysis was included.</p><p><strong>Results: </strong>Significant improvements were observed after the intervention, with maintenance of scores after 3 months (p < 0.001, d<sub>performance</sub> = 1.33; d<sub>satisfaction</sub> = 1.31). None of the tested variables (child's abilities, age, caregiver's educational level, perception of family-centredness, and type of goal) were significantly related to the change scores.</p><p><strong>Interpretation: </strong>The individualized remote telehealth home programme can be a potential intervention, especially for children with CP classified in GMFCS levels IV and V. Also, this intervention provided a possible solution to help some children and their families in performing prioritized functional goals during the pandemic period.</p>","PeriodicalId":50587,"journal":{"name":"Developmental Medicine and Child Neurology","volume":" ","pages":""},"PeriodicalIF":3.8000,"publicationDate":"2024-09-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Individualized telehealth home programme for children with cerebral palsy during the COVID-19 pandemic.\",\"authors\":\"Rachel H S Oliveira, Marisa C Mancini, Priscilla R P Figueiredo, Leonardo C Abrahão, Edna A Reis, Andrew M Gordon, Marina B Brandão\",\"doi\":\"10.1111/dmcn.16072\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Aim: </strong>To analyse the effects of an individualized telehealth home programme on the performance of functional goals of children and adolescents with cerebral palsy (CP) during the COVID-19 pandemic.</p><p><strong>Method: </strong>A prospective single-group intervention study with children/adolescents with CP (n = 144; median age = 92 months [Q<sub>1</sub> = 44.0, Q<sub>3</sub> = 148.8]; 74 males, 70 females), representing all Gross Motor Function Classification System (GMFCS) levels participated in a 4-month home programme in Brazil. An interdisciplinary team encouraged families to choose a functional goal to be trained. The Canadian Occupational Performance Measure (COPM) was used at pre-intervention (T<sub>1</sub>), post-intervention (T<sub>2</sub>), and 3-month follow-up (T<sub>3</sub>). The differences in COPM scores at T<sub>1</sub>, T<sub>2</sub>, and T<sub>3</sub> were evaluated using Friedman's test. The effect size was calculated using Cohen's d. Univariate analysis was included.</p><p><strong>Results: </strong>Significant improvements were observed after the intervention, with maintenance of scores after 3 months (p < 0.001, d<sub>performance</sub> = 1.33; d<sub>satisfaction</sub> = 1.31). None of the tested variables (child's abilities, age, caregiver's educational level, perception of family-centredness, and type of goal) were significantly related to the change scores.</p><p><strong>Interpretation: </strong>The individualized remote telehealth home programme can be a potential intervention, especially for children with CP classified in GMFCS levels IV and V. Also, this intervention provided a possible solution to help some children and their families in performing prioritized functional goals during the pandemic period.</p>\",\"PeriodicalId\":50587,\"journal\":{\"name\":\"Developmental Medicine and Child Neurology\",\"volume\":\" \",\"pages\":\"\"},\"PeriodicalIF\":3.8000,\"publicationDate\":\"2024-09-06\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Developmental Medicine and Child Neurology\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1111/dmcn.16072\",\"RegionNum\":2,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"CLINICAL NEUROLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Developmental Medicine and Child Neurology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1111/dmcn.16072","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"CLINICAL NEUROLOGY","Score":null,"Total":0}
Individualized telehealth home programme for children with cerebral palsy during the COVID-19 pandemic.
Aim: To analyse the effects of an individualized telehealth home programme on the performance of functional goals of children and adolescents with cerebral palsy (CP) during the COVID-19 pandemic.
Method: A prospective single-group intervention study with children/adolescents with CP (n = 144; median age = 92 months [Q1 = 44.0, Q3 = 148.8]; 74 males, 70 females), representing all Gross Motor Function Classification System (GMFCS) levels participated in a 4-month home programme in Brazil. An interdisciplinary team encouraged families to choose a functional goal to be trained. The Canadian Occupational Performance Measure (COPM) was used at pre-intervention (T1), post-intervention (T2), and 3-month follow-up (T3). The differences in COPM scores at T1, T2, and T3 were evaluated using Friedman's test. The effect size was calculated using Cohen's d. Univariate analysis was included.
Results: Significant improvements were observed after the intervention, with maintenance of scores after 3 months (p < 0.001, dperformance = 1.33; dsatisfaction = 1.31). None of the tested variables (child's abilities, age, caregiver's educational level, perception of family-centredness, and type of goal) were significantly related to the change scores.
Interpretation: The individualized remote telehealth home programme can be a potential intervention, especially for children with CP classified in GMFCS levels IV and V. Also, this intervention provided a possible solution to help some children and their families in performing prioritized functional goals during the pandemic period.
期刊介绍：
Wiley-Blackwell is pleased to publish Developmental Medicine & Child Neurology (DMCN), a Mac Keith Press publication and official journal of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) and the British Paediatric Neurology Association (BPNA).
For over 50 years, DMCN has defined the field of paediatric neurology and neurodisability and is one of the world’s leading journals in the whole field of paediatrics. DMCN disseminates a range of information worldwide to improve the lives of disabled children and their families. The high quality of published articles is maintained by expert review, including independent statistical assessment, before acceptance.
求助内容：
应助结果提醒方式：
京公网安备 11010802042870号
