{"title":"在儿科和成人肾脏病医疗服务之间的医疗过渡中,为年轻成人和家庭提供支持的干预措施:系统性范围审查。","authors":"","doi":"10.1016/j.pedn.2024.07.026","DOIUrl":null,"url":null,"abstract":"<div><h3>Background</h3><p>Healthcare transition can be challenging for young people and families living with chronic kidney conditions, including those with rare renal disorders who often have multi-systemic conditions, those who have undergone kidney transplantation, and those who face intense treatments like dialysis. Comprehensive, holistic healthcare transition interventions are required, encompassing physical, psychosocial, sexual, educational and vocational support.</p></div><div><h3>Aim</h3><p>This manuscript presents a systematic scoping review synthesising the healthcare transition interventions to support youth and families within nephrology services.</p></div><div><h3>Methods</h3><p>This review followed Arksey and O’Malley's five-stage framework, updated by Levac, Colquhoun and O'Brien and the Joanna Briggs Institute. Six databases were systematically searched: CINAHL Plus with Full Text, Embase, PsycINFO, Web of Science, PubMed, and the Applied Social Sciences Index and Abstracts (ASSIA), locating 12,662 records. Following a systematic screening process, 28 articles met the inclusion criteria. Results were analysed systematically and presented using the PAGER framework developed by <span><span>Bradbury-Jones et al. (2022)</span></span>.</p></div><div><h3>Results</h3><p>Various interventions were sourced. Three broad patterns emerged: 1. Contextual Factors, <em>e.g.</em> cultural differences between paediatric and adult services; 2. Major Intervention Components, <em>e.g.</em> parental/familial/peer-to-peer support, and 3. Personal factors, <em>e.g.</em>, self-management ability.</p></div><div><h3>Conclusion</h3><p>Few interventions are available to support youth with rare renal disorders, specifically. Future research must be directed at this cohort. Healthcare transition timing remains hotly contested, with additional guidance required to support decision-making. Finally, limited interventions have been evaluated for practice.</p></div><div><h3>Implications</h3><p>This review has provided various considerations/recommendations that should be taken into account when designing, implementing or evaluating future healthcare transition supports.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1000,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0882596324002884/pdfft?md5=dcac4d990bae93e4a3b48dc4ca843f08&pid=1-s2.0-S0882596324002884-main.pdf","citationCount":"0","resultStr":"{\"title\":\"Interventions to support young adults and families with the healthcare transition between paediatric and adult nephrology health services: A systematic scoping review\",\"authors\":\"\",\"doi\":\"10.1016/j.pedn.2024.07.026\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><h3>Background</h3><p>Healthcare transition can be challenging for young people and families living with chronic kidney conditions, including those with rare renal disorders who often have multi-systemic conditions, those who have undergone kidney transplantation, and those who face intense treatments like dialysis. Comprehensive, holistic healthcare transition interventions are required, encompassing physical, psychosocial, sexual, educational and vocational support.</p></div><div><h3>Aim</h3><p>This manuscript presents a systematic scoping review synthesising the healthcare transition interventions to support youth and families within nephrology services.</p></div><div><h3>Methods</h3><p>This review followed Arksey and O’Malley's five-stage framework, updated by Levac, Colquhoun and O'Brien and the Joanna Briggs Institute. Six databases were systematically searched: CINAHL Plus with Full Text, Embase, PsycINFO, Web of Science, PubMed, and the Applied Social Sciences Index and Abstracts (ASSIA), locating 12,662 records. Following a systematic screening process, 28 articles met the inclusion criteria. Results were analysed systematically and presented using the PAGER framework developed by <span><span>Bradbury-Jones et al. (2022)</span></span>.</p></div><div><h3>Results</h3><p>Various interventions were sourced. Three broad patterns emerged: 1. Contextual Factors, <em>e.g.</em> cultural differences between paediatric and adult services; 2. Major Intervention Components, <em>e.g.</em> parental/familial/peer-to-peer support, and 3. Personal factors, <em>e.g.</em>, self-management ability.</p></div><div><h3>Conclusion</h3><p>Few interventions are available to support youth with rare renal disorders, specifically. Future research must be directed at this cohort. Healthcare transition timing remains hotly contested, with additional guidance required to support decision-making. Finally, limited interventions have been evaluated for practice.</p></div><div><h3>Implications</h3><p>This review has provided various considerations/recommendations that should be taken into account when designing, implementing or evaluating future healthcare transition supports.</p></div>\",\"PeriodicalId\":48899,\"journal\":{\"name\":\"Journal of Pediatric Nursing-Nursing Care of Children & Families\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":2.1000,\"publicationDate\":\"2024-09-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.sciencedirect.com/science/article/pii/S0882596324002884/pdfft?md5=dcac4d990bae93e4a3b48dc4ca843f08&pid=1-s2.0-S0882596324002884-main.pdf\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Pediatric Nursing-Nursing Care of Children & Families\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S0882596324002884\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"NURSING\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Pediatric Nursing-Nursing Care of Children & Families","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S0882596324002884","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"NURSING","Score":null,"Total":0}
引用次数: 0
摘要
背景:对于患有慢性肾脏疾病的年轻人和家庭来说,医疗过渡可能是一项挑战,其中包括患有罕见肾脏疾病的年轻人和家庭(他们通常患有多系统疾病)、接受过肾移植的年轻人和面临透析等高强度治疗的年轻人。需要采取全面、整体的医疗过渡干预措施,包括身体、社会心理、性、教育和职业支持。目的:本手稿对肾内科服务中支持青少年和家庭的医疗过渡干预措施进行了系统的范围界定综述:本综述遵循 Arksey 和 O'Malley 的五阶段框架,并经 Levac、Colquhoun 和 O'Brien 以及 Joanna Briggs 研究所更新。系统地检索了六个数据库:CINAHL Plus with Full Text、Embase、PsycINFO、Web of Science、PubMed 和 Applied Social Sciences Index and Abstracts (ASSIA),共检索到 12,662 条记录。经过系统筛选,28 篇文章符合纳入标准。我们使用 Bradbury-Jones 等人(2022 年)开发的 PAGER 框架对结果进行了系统分析和展示:结果:收集了各种干预措施。出现了三大模式:1.背景因素,如儿科和成人服务之间的文化差异;2.主要干预内容,如父母/家庭/同伴之间的支持;3.个人因素,如儿科和成人服务之间的文化差异。个人因素,如自我管理能力:结论:针对罕见肾脏疾病青少年的干预措施很少。未来的研究必须针对这一群体。医疗保健过渡的时机仍存在激烈的争议,需要更多的指导来支持决策。最后,为实践而评估的干预措施有限:本综述提供了在设计、实施或评估未来医疗保健过渡支持时应考虑的各种因素/建议。
Interventions to support young adults and families with the healthcare transition between paediatric and adult nephrology health services: A systematic scoping review
Background
Healthcare transition can be challenging for young people and families living with chronic kidney conditions, including those with rare renal disorders who often have multi-systemic conditions, those who have undergone kidney transplantation, and those who face intense treatments like dialysis. Comprehensive, holistic healthcare transition interventions are required, encompassing physical, psychosocial, sexual, educational and vocational support.
Aim
This manuscript presents a systematic scoping review synthesising the healthcare transition interventions to support youth and families within nephrology services.
Methods
This review followed Arksey and O’Malley's five-stage framework, updated by Levac, Colquhoun and O'Brien and the Joanna Briggs Institute. Six databases were systematically searched: CINAHL Plus with Full Text, Embase, PsycINFO, Web of Science, PubMed, and the Applied Social Sciences Index and Abstracts (ASSIA), locating 12,662 records. Following a systematic screening process, 28 articles met the inclusion criteria. Results were analysed systematically and presented using the PAGER framework developed by Bradbury-Jones et al. (2022).
Results
Various interventions were sourced. Three broad patterns emerged: 1. Contextual Factors, e.g. cultural differences between paediatric and adult services; 2. Major Intervention Components, e.g. parental/familial/peer-to-peer support, and 3. Personal factors, e.g., self-management ability.
Conclusion
Few interventions are available to support youth with rare renal disorders, specifically. Future research must be directed at this cohort. Healthcare transition timing remains hotly contested, with additional guidance required to support decision-making. Finally, limited interventions have been evaluated for practice.
Implications
This review has provided various considerations/recommendations that should be taken into account when designing, implementing or evaluating future healthcare transition supports.
期刊介绍:
Official Journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society (PENS)
The Journal of Pediatric Nursing: Nursing Care of Children and Families (JPN) is interested in publishing evidence-based practice, quality improvement, theory, and research papers on a variety of topics from US and international authors. JPN is the official journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society. Cecily L. Betz, PhD, RN, FAAN is the Founder and Editor in Chief.
Journal content covers the life span from birth to adolescence. Submissions should be pertinent to the nursing care needs of healthy and ill infants, children, and adolescents, addressing their biopsychosocial needs. JPN also features the following regular columns for which authors may submit brief papers: Hot Topics and Technology.