Emerald Jenkins, Sarah Szanton, Erika Hornstein, Jenni Seale Reiff, Quinn Seau, Grace Huynh, Ja'Lynn Gray, Rhonda Smith Wright, Qiwei Li, Valerie Cotter, Samantha Curriero, Janiece Taylor
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We used a cross-sectional, exploratory research design to understand participants' (<i>n</i> = 12) experiences in their home environment. Photos and participant thoughts on the photos were categorized based on the Blackfoot Breath of Life Theory and the Hierarchy Model of Needs in Dementia, an adaptation of Maslow's Model. Notable findings included: awareness of physical/cognitive difficulties by older adults, solutions for ADL difficulty in persons with MCI/early dementia, care partners' difficulty recognizing pain without the presence of severe emotional or physical responses, reducing mood severity, and self-esteem needs met with structured, memory-issue adapted, meaningful activities. Older adults with co-occurring physical disability and MCI/early dementia identified both physiological and psychological needs despite challenges impacting their cognition. Photovoice evoked daily situations of these individuals and revealed the importance of developing individualized intervention elements for older adults with dementia and physical disability.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012241272754"},"PeriodicalIF":0.0000,"publicationDate":"2024-08-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"The use of photovoice to explore the physical disability experience in older adults with mild cognitive impairment/early dementia.\",\"authors\":\"Emerald Jenkins, Sarah Szanton, Erika Hornstein, Jenni Seale Reiff, Quinn Seau, Grace Huynh, Ja'Lynn Gray, Rhonda Smith Wright, Qiwei Li, Valerie Cotter, Samantha Curriero, Janiece Taylor\",\"doi\":\"10.1177/14713012241272754\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Although co-occurring cognitive impairment and physical disability in older adults is common, there is little understanding of how this group perceives their ability to do their daily activities. 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引用次数: 0
摘要
虽然老年人同时患有认知障碍和肢体残疾的情况很常见,但人们对这一群体如何看待自己的日常活动能力却知之甚少。本研究采用摄影 "选择"(photovoice)的方法来探讨患有 MCI/早期痴呆症和肢体残疾的老年人在没有或有护理伙伴的情况下(双人)是如何看待其日常活动所面临的挑战的。摄影荐言是一种视觉研究方法,用于捕捉参与者对其日常生活各个方面的见解。目前还没有研究采用这种方法来探讨患有 MCI/早期痴呆症并同时伴有肢体残疾的老年人的经历。我们采用横断面探索性研究设计来了解参与者(n = 12)在家庭环境中的经历。根据 "布莱克福生命气息理论"(Blackfoot Breath of Life Theory)和根据马斯洛模型改编的 "痴呆症需求层次模型"(Hierarchy Model of Needs in Dementia),对照片和参与者对照片的想法进行了分类。值得注意的发现包括:老年人对身体/认知困难的认识、MCI/早期痴呆症患者ADL困难的解决方案、护理伙伴在没有出现严重情绪或身体反应的情况下难以识别疼痛、降低情绪严重程度,以及通过结构化、记忆问题调整、有意义的活动满足自尊需求。同时患有肢体残疾和 MCI/早期痴呆症的老年人发现了生理和心理需求,尽管这些挑战影响了他们的认知。摄影选择唤起了这些人的日常情景,并揭示了为患有痴呆症和肢体残疾的老年人制定个性化干预措施的重要性。
The use of photovoice to explore the physical disability experience in older adults with mild cognitive impairment/early dementia.
Although co-occurring cognitive impairment and physical disability in older adults is common, there is little understanding of how this group perceives their ability to do their daily activities. This study used photovoice to explore how older adults with MCI/early dementia and physical disability without and with care partners (dyads) perceive challenges with their daily activities. Photovoice is a visual research methodology to capture participants' insight on aspects of their daily lives. No known studies have taken this approach to explore the experiences of older adults with MCI/early dementia and co-occurring physical disability. We used a cross-sectional, exploratory research design to understand participants' (n = 12) experiences in their home environment. Photos and participant thoughts on the photos were categorized based on the Blackfoot Breath of Life Theory and the Hierarchy Model of Needs in Dementia, an adaptation of Maslow's Model. Notable findings included: awareness of physical/cognitive difficulties by older adults, solutions for ADL difficulty in persons with MCI/early dementia, care partners' difficulty recognizing pain without the presence of severe emotional or physical responses, reducing mood severity, and self-esteem needs met with structured, memory-issue adapted, meaningful activities. Older adults with co-occurring physical disability and MCI/early dementia identified both physiological and psychological needs despite challenges impacting their cognition. Photovoice evoked daily situations of these individuals and revealed the importance of developing individualized intervention elements for older adults with dementia and physical disability.