1 型糖尿病患者从儿童糖尿病护理向成人糖尿病护理的过渡:法国在线调查。

IF 3.8 3区 医学 Q2 Medicine
Diabetes Therapy Pub Date : 2024-10-01 Epub Date: 2024-08-10 DOI:10.1007/s13300-024-01630-6
Juliette Eroukhmanoff, Claire Ballot Schmit, Sabine Baron, Amar Bahloul, Jacques Beltrand, Zeina Salame, Sophie Borot, Fabienne Dalla Vale, Helen Mosnier Pudar, Marc Nicolino, Alfred Penfornis, Eric Renard
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引用次数: 0

摘要

导言:1 型糖尿病(T1D)儿童/青少年患者从儿童糖尿病护理过渡到成人糖尿病护理(TPA)是一项独特的挑战,也是 T1D 护理过程中的一个关键阶段。本研究旨在从参与者的角度描述和了解居住在法国的年轻成人 T1D 患者在过渡过程中的体验,并衡量他们的满意度:在全球在线参与者社区平台上向法国的 T1D 患者发放了一份在线问卷。该问卷由一个包括儿科和成人糖尿病专家在内的科学委员会制定,并由一组参与者改进。对回答进行了主题定性分析:共有 104 名受访者参与了调查(平均年龄为 24.4 岁 [95% CI 23.8-25.0];61.5% 为女性)。转院时的平均年龄为 18.4 岁(95% CI 17.8-18.9),56% 的受访者在同一机构进行了首次成人糖尿病随访。在 TPA 期间,76 名经历过个人问题的参与者中,74% 在过渡后的几个月内至少经历过一次糖尿病管理问题。在随后的几个月中,61%的人在过渡后的糖尿病监测中遇到了新的或意想不到的问题,44%的人报告了不寻常的血糖失衡,包括需要住院治疗的低血糖(8%)和高血糖(9%)。TPA 期间出现的个人问题与糖尿病管理问题或血糖失衡有很大关系。成功过渡的三个因素是:(i) 尽早与 "成人 "糖尿病护理团队会面;(ii) 让参与者选择离开儿科诊所的合适年龄;(iii) 在TPA过程开始时糖尿病控制良好:结论:大多数患有 T1D 的年轻成人都表示在 TPA 过程中遇到了一些问题,这些问题对他们的疾病管理产生了重大影响。因此,有必要找出这些问题,以便为他们提供更好的支持,并改善这一阶段的糖尿病管理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Transition from Paediatric to Adult Diabetes Care in People with Type 1 Diabetes: An Online Survey from France.

Transition from Paediatric to Adult Diabetes Care in People with Type 1 Diabetes: An Online Survey from France.

Introduction: The transition from paediatric to adult diabetes care (TPA) of children/adolescents with type 1 diabetes (T1D) represents a unique challenge and remains a critical phase in the T1D care pathway. This study aims to describe and understand the experience of the transition process from a participant's perspective in young adults who are living in France with T1D and to measure their satisfaction.

Methods: An online questionnaire was presented to people with T1D in France on a global online participant community platform. The questionnaire was developed by a scientific committee including paediatric and adult diabetologists and refined by a group of participants. Thematic qualitative analysis was performed on the responses.

Results: A total of 104 respondents were included in the survey (mean age 24.4 years [95% CI 23.8-25.0]; 61.5% female). The mean age at the time of transition was 18.4 years (95% CI 17.8-18.9), and 56% of respondents had their first adult diabetology follow-up in the same institution. During TPA, of the 76 participants who experienced personal issues, 74% experienced at least one issue with their diabetes management in the months following the transition. In the following months, 61% experienced new or unexpected problems in monitoring their diabetes after transition and 44% reported unusual glycaemic imbalances, including hypoglycaemia (8%) and hyperglycaemia (9%) requiring hospitalisation. Presence of personal issues during TPA was significantly associated with occurrence of problems with diabetes management or glycaemic imbalance. Three factors identified for a successful transition were (i) early meeting with the 'adult' diabetes care team, (ii) letting the participants choose the right age to leave paediatric clinic and (iii) having good diabetes control at the beginning of the TPA process.

Conclusion: Most young adults with T1D report experiencing issues around TPA with significant consequences on their disease management. Hence, it is necessary to identify these issues to better support them and improve diabetes management during this phase.

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来源期刊
Diabetes Therapy
Diabetes Therapy Medicine-Endocrinology, Diabetes and Metabolism
CiteScore
6.90
自引率
7.90%
发文量
130
审稿时长
6 weeks
期刊介绍: Diabetes Therapy is an international, peer reviewed, rapid-publication (peer review in 2 weeks, published 3–4 weeks from acceptance) journal dedicated to the publication of high-quality clinical (all phases), observational, real-world, and health outcomes research around the discovery, development, and use of therapeutics and interventions (including devices) across all areas of diabetes. Studies relating to diagnostics and diagnosis, pharmacoeconomics, public health, epidemiology, quality of life, and patient care, management, and education are also encouraged. The journal is of interest to a broad audience of healthcare professionals and publishes original research, reviews, communications and letters. The journal is read by a global audience and receives submissions from all over the world. Diabetes Therapy will consider all scientifically sound research be it positive, confirmatory or negative data. Submissions are welcomed whether they relate to an international and/or a country-specific audience, something that is crucially important when researchers are trying to target more specific patient populations. This inclusive approach allows the journal to assist in the dissemination of all scientifically and ethically sound research.
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