"需要是发明之母":英国大流行病期间利用信息通信技术获取和提供痴呆症相关支持服务的经验。

Thaïs Caprioli, Stephen Mason, Hilary Tetlow, Stan Limbert, Siobhan Reilly, Clarissa Giebel
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引用次数: 0

摘要

前言在冠状病毒大流行期间,通过信息通信技术(指包括电话和视频会议软件在内的任何硬件或软件)远程提供痴呆症相关支持服务的情况有所增加。为了指导未来信息通信技术的使用,本研究探讨了英国在冠状病毒大流行期间提供和获取社会关怀与支持服务的经验:方法:2022 年 5 月至 12 月期间,对社会护理和支持服务提供者、痴呆症患者和家庭照顾者进行了远程半结构式访谈。我们与两位公共顾问(一位是前家庭照护者,一位是痴呆症患者)共同制定了主题指南,并收集了有关在大流行期间提供和获取服务的信息。对录音进行了逐字转录。采用归纳和演绎相结合的分析方法,进行了主题分析:共进行了 21 次访谈(n=14 位社会护理和支持服务提供者;n=6 位家庭照护者;n=2 位痴呆症患者)。共产生了三个主题:适应不断变化的环境;利用信息通信技术满足未满足的需求;信息通信技术应该是一种工具,而不是默认工具。社会护理和支持服务提供者的创造力和积极性促进了信息通信技术的应用,然而,可用的资源和指导却各不相同。虽然一些痴呆症患者和家庭照护者可以通过信息通信技术获得服务来满足某些需求,但这种形式并不适合每一个人:结论:除了冠状病毒大流行之外,在提供服务过程中使用信息通信技术也需要慎重考虑,以避免剥夺一些痴呆症患者和家庭照护者的权利,同时让他们有能力选择如何获得服务。建议在提供服务过程中使用信息通信技术的数字培训和指导方针,可能有助于在当前形势下和未来的大流行中更好地使用信息通信技术。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"Necessity is the mother of invention": Experiences of accessing and delivering dementia-related support services by information communication technology during the pandemic in the UK.

Introduction: The remote delivery of dementia-related support services by information communication technology, defined as any hardware or software, including the telephone and videoconferencing software, increased during the coronavirus pandemic. To guide the future use of information communication technology, this study explored the experiences of delivering and accessing social care and support services during the pandemic in the UK.

Method: Remote semi-structured interviews with social care and support providers, people with dementia and family carers were conducted between May-December 2022. Topic guides were co-developed with two public advisors (one former family carer, one person with dementia) and garnered information on delivering and accessing services during the pandemic. Audio recordings were transcribed verbatim. Employing a mixture of inductive and deductive analytic approaches, a thematic analysis was conducted.

Results: Twenty-one interviews (n = 14 social care and support providers; n = 6 family carers; n = 2 people with dementia) were conducted. Three themes were generated: adapting to changing circumstances; responding to unmet needs by information communication technology and information communication technology should be a tool, not the default. Social care and support providers' creativity and motivation facilitated the adoption of information communication technology, however, available resources and guidance varied. While some people with dementia and family carers benefitted from accessing services by information communication technology to address some needs, the format was not suitable for everyone.

Conclusions: Beyond the coronavirus pandemic, the use of information communication technology within service delivery needs to be carefully considered, to avoid disenfranchising some people with dementia and family carers, while empowering people with the option of how to access services. Digital training and guidelines advising the use of information communication technology within service delivery may facilitate its improved use during the current landscape, and amidst future pandemics.

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