"看你拿着记号笔在这里玩得多开心!":儿童生活专家对成人肿瘤学中婴幼儿化叙述的反驳。

IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE
Monica L Molinaro, Shipra Taneja, David L Lysecki, Heather McKean, Daryl Bainbridge, Jonathan Sussman, Meredith Vanstone
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引用次数: 0

摘要

儿童生活专家是受过临床培训和教育的医疗保健专业人员,他们在医疗保健环境和社区工作,以满足患病儿童及其家庭的需求。然而,儿童生活专家曾报告称,他们的角色、职责和业务范围可能会被临床同事误解。本文采用叙事方法,介绍了黛安的综合叙事,她的故事包含了在加拿大安大略省成人肿瘤环境中工作的四位儿童生活专家的故事。戴安的叙事是一个反故事,它反驳了关于儿童生命专家的常见假设、信念和态度。黛安花了大量时间讲述了她护理范围内的众多任务,她重申了自己作为跨专业成人肿瘤团队重要成员的身份,并反驳了将她视为保姆或儿童艺人的幼稚化假设。她的故事突显出,虽然在成人医疗保健环境中引入儿童生活专家是一件新鲜事,但他们所做的工作对家庭及其子女大有裨益。然而,临床同事对儿童生活专家的作用缺乏了解,这不仅阻碍了同事之间关系的发展,也阻碍了对这些家庭的护理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"Look at You Having Fun With Your Markers in Here!": Child Life Specialists' Countering of Infantilizating Narratives in Adult Oncology.

Child life specialists are clinically trained and educated healthcare professionals who work in both healthcare environments and the community to address the needs of ill children and their families. However, child life specialists have previously reported potential for their role, responsibilities, and scope of practice to be misunderstood by their clinical colleagues. Using a narrative methodology, this paper presents the composite narrative of Diane, whose story encompasses the stories of the four child life specialists working in adult oncology environments in Ontario, Canada. Diane's narrative is a counter-story, which counters common assumptions, beliefs, and attitudes about child life specialists. Through spending significant time narrating the multitude of tasks that are encompassed within her scope of care, Diane reaffirms her identity as a valuable member of an interprofessional adult oncology team and counters infantilizing assumptions that she is merely a babysitter or child entertainer. Her story highlights how, while the introduction of child life specialists to adult healthcare environments is new, the work they do is of great benefit to families and their children. The lack of understanding from clinical colleagues of the role of child life specialists, however, hinders not only the development of relationships between colleagues, but also the care for these families.

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来源期刊
CiteScore
6.80
自引率
6.20%
发文量
109
期刊介绍: QUALITATIVE HEALTH RESEARCH is an international, interdisciplinary, refereed journal for the enhancement of health care and to further the development and understanding of qualitative research methods in health care settings. We welcome manuscripts in the following areas: the description and analysis of the illness experience, health and health-seeking behaviors, the experiences of caregivers, the sociocultural organization of health care, health care policy, and related topics. We also seek critical reviews and commentaries addressing conceptual, theoretical, methodological, and ethical issues pertaining to qualitative enquiry.
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