医疗补助长期服务和支持，以及智力和发育障碍人士护理人员的护理需求。

IF 2.1 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL

Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-08-05 DOI:10.1111/jar.13289

Ariana M. Mastrogiannis, Caren Steinway, Telmo C. Santos, Jack Chen, John Berens, Thomas Davis, Michelle Cornacchia, Jason Woodward, Ilka Riddle, Brittany Spicer, Charmaine Wright, Lee A. Lindquist, Sophia Jan

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引用次数: 0

摘要

背景：在美国，长期护理服务的资金主要来自医疗补助计划（Medicaid）的长期服务和支持，其资格仅基于智力和发育障碍患者的护理需求。医疗补助计划减免服务对照顾者自述需求的影响尚不十分清楚：方法：四个州（纽约州、俄亥俄州、德克萨斯州和宾夕法尼亚州）的智力和发育障碍人士的照顾者（n = 405）完成了一项在线调查：结果：照护者报告了中等程度的负担和由压力引起的健康崩溃的易感性。尽管对接受护理者的日常生活活动进行了控制，但接受医疗补助豁免服务的个人的护理者表示在管理药物（p = .013）和寻找有偿帮助（p = .013）方面遇到了更大的困难。

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Medicaid long-term services and supports and caregiving needs of caregivers of individuals with intellectual and developmental disabilities

Background

Long-term care services are funded primarily by Medicaid long-term services and support in the United States, where eligibility is based on care needs of the individual with intellectual and developmental disability alone. Impact of Medicaid waiver services on self-reported caregiver needs is not well understood.

Method

Caregivers (n = 405) of individuals with intellectual and developmental disabilities across four states (NY, OH, TX, and PA) completed an online survey.

Results

Caregivers reported a moderate degree of burden and susceptibility of stress-induced health breakdown. Despite controlling for the activities of daily living of the care recipient, caregivers of individuals with Medicaid Waiver services reported greater difficulty managing medications (p = .013) and finding paid help (p < .001) than caregivers of individuals without services.

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.