"他们没有认真对待":香港临终关怀互动中的家庭动态建构。

IF 2.1 4区 医学 Q2 PSYCHOLOGY, MULTIDISCIPLINARY
David Matthew Edmonds, Olga Zayts-Spence, Irene Nga Yu Au, Jacqueline Kwan Yuk Yuen
{"title":"\"他们没有认真对待\":香港临终关怀互动中的家庭动态建构。","authors":"David Matthew Edmonds, Olga Zayts-Spence, Irene Nga Yu Au, Jacqueline Kwan Yuk Yuen","doi":"10.1080/07481187.2024.2385383","DOIUrl":null,"url":null,"abstract":"<p><p>In Chinese culture, the family is central to the decision-making around care provided to terminally-ill patients. Previous research examined the preferences that patients and relatives have in regard to the family's role in end-of-life care. Our article takes a discourse analytic perspective and focuses on how familial dynamics are interactionally constructed by patients in audio-recorded end-of-life care consultations in Hong Kong hospitals. We document three ways that patients construct family dynamics. First, patients expressed a reluctance to talk to their family members about their condition. Second, patients talked about their families as being reluctant in accepting and \"believing\" the reality of their condition. Third, patients reported an epistemic divide between themselves and their family regarding knowledge and understanding of their illness. Our findings provide insights into how to conceptualize family dynamics in interactional terms. We also reflect on how our findings can complement existing research on end-of-life care in Chinese contexts.</p>","PeriodicalId":11041,"journal":{"name":"Death Studies","volume":" ","pages":"1-13"},"PeriodicalIF":2.1000,"publicationDate":"2024-08-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"\\\"They are not taking it seriously\\\": Constructing family dynamics in end-of-life care interactions in Hong Kong.\",\"authors\":\"David Matthew Edmonds, Olga Zayts-Spence, Irene Nga Yu Au, Jacqueline Kwan Yuk Yuen\",\"doi\":\"10.1080/07481187.2024.2385383\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>In Chinese culture, the family is central to the decision-making around care provided to terminally-ill patients. Previous research examined the preferences that patients and relatives have in regard to the family's role in end-of-life care. Our article takes a discourse analytic perspective and focuses on how familial dynamics are interactionally constructed by patients in audio-recorded end-of-life care consultations in Hong Kong hospitals. We document three ways that patients construct family dynamics. First, patients expressed a reluctance to talk to their family members about their condition. Second, patients talked about their families as being reluctant in accepting and \\\"believing\\\" the reality of their condition. Third, patients reported an epistemic divide between themselves and their family regarding knowledge and understanding of their illness. Our findings provide insights into how to conceptualize family dynamics in interactional terms. We also reflect on how our findings can complement existing research on end-of-life care in Chinese contexts.</p>\",\"PeriodicalId\":11041,\"journal\":{\"name\":\"Death Studies\",\"volume\":\" \",\"pages\":\"1-13\"},\"PeriodicalIF\":2.1000,\"publicationDate\":\"2024-08-03\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Death Studies\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1080/07481187.2024.2385383\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"PSYCHOLOGY, MULTIDISCIPLINARY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Death Studies","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/07481187.2024.2385383","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"PSYCHOLOGY, MULTIDISCIPLINARY","Score":null,"Total":0}
引用次数: 0

摘要

在中国文化中,家庭是临终病人护理决策的核心。以往的研究探讨了病人和亲属对家庭在临终关怀中的角色的偏好。我们的文章从话语分析的角度出发,重点研究了在香港医院进行的临终关怀咨询录音中,患者是如何通过互动构建家庭动态的。我们记录了病人构建家庭动态的三种方式。首先,患者表示不愿与家人谈论自己的病情。其次,患者认为家人不愿接受和 "相信 "其病情的真实性。第三,患者表示自己和家人在对病情的了解和理解上存在认识上的分歧。我们的研究结果为如何从互动角度理解家庭动态提供了启示。我们还反思了我们的研究结果如何补充现有的中国临终关怀研究。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"They are not taking it seriously": Constructing family dynamics in end-of-life care interactions in Hong Kong.

In Chinese culture, the family is central to the decision-making around care provided to terminally-ill patients. Previous research examined the preferences that patients and relatives have in regard to the family's role in end-of-life care. Our article takes a discourse analytic perspective and focuses on how familial dynamics are interactionally constructed by patients in audio-recorded end-of-life care consultations in Hong Kong hospitals. We document three ways that patients construct family dynamics. First, patients expressed a reluctance to talk to their family members about their condition. Second, patients talked about their families as being reluctant in accepting and "believing" the reality of their condition. Third, patients reported an epistemic divide between themselves and their family regarding knowledge and understanding of their illness. Our findings provide insights into how to conceptualize family dynamics in interactional terms. We also reflect on how our findings can complement existing research on end-of-life care in Chinese contexts.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
Death Studies
Death Studies Multiple-
CiteScore
8.30
自引率
7.90%
发文量
94
期刊介绍: Now published ten times each year, this acclaimed journal provides refereed papers on significant research, scholarship, and practical approaches in the fast growing areas of bereavement and loss, grief therapy, death attitudes, suicide, and death education. It provides an international interdisciplinary forum in which a variety of professionals share results of research and practice, with the aim of better understanding the human encounter with death and assisting those who work with the dying and their families.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信