成年对于患有唐氏综合症的新成人的意义：家长对相关技能的看法。

IF 2.1 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL

Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-07-29 DOI:10.1111/jar.13286

Katherine L. Long, Atefeh Karimi, Antonella Mini, Dionne P. Stephens, Eliza L. Nelson

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引用次数: 0

摘要

背景：父母对患有唐氏综合症的新成人的成年概念可能会影响过渡规划过程，因为家庭要为毕业后的生活做准备。目的：本研究旨在探讨父母对患有唐氏综合症的新成人的成年意义的看法：在这项定性研究中，我们使用现象学方法采访了 11 位患有唐氏综合症的新成人的家长，并使用主题分析法对这些数据进行了分析：出现了三个主题：(1) 家长对成年意义的建构；(2) 家长对成年过渡的看法；(3) 家长对当前成人生活技能的看法。这些主题共产生了 10 个主题：父母对唐氏综合症新成人的成年意义表示矛盾，他们认为在某些方面他们已经成年，而在另一些方面他们还没有成年。成年的意义与获得的技能密切相关，尤其是与个人安全相关的技能。

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The meaning of adulthood for emerging adults with Down syndrome: Parent perspectives on relevant skills

Background

Parents' conceptualizations of adulthood for their emerging adults with Down syndrome have the potential to impact the transition planning process as families prepare for life after graduation.

Aims

This study aimed to explore parent perceptions of the meaning of adulthood for their emerging adults with Down syndrome.

Methods

In this qualitative study, we interviewed 11 parents of emerging adults with Down syndrome using phenomenological methodology and analysed these data using thematic analysis.

Results

Three topics emerged: (1) Parents' constructions of the meaning of adulthood; (2) Parents' perceptions about the transition to adulthood; and (3) Parents' perceptions of current adult life skills. Ten themes arose out of these topics.

Conclusions

Parents expressed ambivalence about the meaning of adulthood for their emerging adults with Down syndrome, sharing that in some ways they were adults and in others they were not. The meaning of adulthood was closely tied to obtained skills, particularly those related to personal safety.

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.