Eleftheria Kampouri, José Damas, Katharina Kusejko, Bruno Ledergerber, Dominique Braun, Olivier Nawej Tshikung, Anna Hachfeld, Maja Weisser, Kerstin Wissel, Enos Bernasconi, Isabel Cobos Manuel, David Jackson-Perry, Lars E Eriksson, Maria Reinius, Matthias Cavassini, Katharine E A Darling
{"title":"瑞士艾滋病病毒感染者中与艾滋病相关的耻辱感的普遍程度:解决房间里的大象问题。","authors":"Eleftheria Kampouri, José Damas, Katharina Kusejko, Bruno Ledergerber, Dominique Braun, Olivier Nawej Tshikung, Anna Hachfeld, Maja Weisser, Kerstin Wissel, Enos Bernasconi, Isabel Cobos Manuel, David Jackson-Perry, Lars E Eriksson, Maria Reinius, Matthias Cavassini, Katharine E A Darling","doi":"10.1097/QAD.0000000000003983","DOIUrl":null,"url":null,"abstract":"<p><strong>Objectives: </strong>We aimed to determine the prevalence of HIV-related stigma among people with HIV (PWH) in Switzerland.</p><p><strong>Design: </strong>A cross-sectional multicentre study nested within the Swiss HIV Cohort Study (SHCS).</p><p><strong>Methods: </strong>We included adult PWH enrolled in the SHCS, attending follow-up between March 1st, 2020, and January 31st, 2021. Inability to speak English, French, German, or Italian was the only exclusion criterion. Participants were invited to complete a validated 12-item HIV-stigma questionnaire comprising four stigma subscales (negative self-image, personalised stigma, disclosure concerns, and concerns regarding public attitudes), plus two healthcare-related stigma items. Questionnaire responses were graded using a four-point Likert-type scale, higher scores indicating higher stigma. \"Non-applicable\", inferring HIV-status non-disclosure, was possible for personalised stigma; stigma scores from participants answering \"non-applicable\" to ≥1 items were analysed separately. Factors associated with HIV-stigma were identified through multivariable linear models.</p><p><strong>Results: </strong>Of 9643 PWH with a SHCS visit, 5563 participated in the study: 26% were female, 13% Black and 37% heterosexual; median age was 53 years (interquartile range 44-59); 2067 participants (37%) gave ≥1 \"non-applicable\" responses. Disclosure concerns had the highest stigma scores and were reported by 4656/5563 (84%). HIV-stigma was reported across all demographic groups. However, being female, Black, and heterosexual were independently associated with higher scores. Higher education and longer follow-up duration were associated with lower scores. Healthcare-related stigma was reported in 37% of participants.</p><p><strong>Conclusions: </strong>HIV-stigma was prevalent across all demographic groups. The association with being female and Black suggests that HIV-stigma accentuates pre-existing gender and race inequalities.</p>","PeriodicalId":7502,"journal":{"name":"AIDS","volume":null,"pages":null},"PeriodicalIF":3.4000,"publicationDate":"2024-07-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Prevalence of HIV-related stigma among people with HIV in Switzerland: addressing the elephant in the room.\",\"authors\":\"Eleftheria Kampouri, José Damas, Katharina Kusejko, Bruno Ledergerber, Dominique Braun, Olivier Nawej Tshikung, Anna Hachfeld, Maja Weisser, Kerstin Wissel, Enos Bernasconi, Isabel Cobos Manuel, David Jackson-Perry, Lars E Eriksson, Maria Reinius, Matthias Cavassini, Katharine E A Darling\",\"doi\":\"10.1097/QAD.0000000000003983\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objectives: </strong>We aimed to determine the prevalence of HIV-related stigma among people with HIV (PWH) in Switzerland.</p><p><strong>Design: </strong>A cross-sectional multicentre study nested within the Swiss HIV Cohort Study (SHCS).</p><p><strong>Methods: </strong>We included adult PWH enrolled in the SHCS, attending follow-up between March 1st, 2020, and January 31st, 2021. Inability to speak English, French, German, or Italian was the only exclusion criterion. Participants were invited to complete a validated 12-item HIV-stigma questionnaire comprising four stigma subscales (negative self-image, personalised stigma, disclosure concerns, and concerns regarding public attitudes), plus two healthcare-related stigma items. Questionnaire responses were graded using a four-point Likert-type scale, higher scores indicating higher stigma. \\\"Non-applicable\\\", inferring HIV-status non-disclosure, was possible for personalised stigma; stigma scores from participants answering \\\"non-applicable\\\" to ≥1 items were analysed separately. Factors associated with HIV-stigma were identified through multivariable linear models.</p><p><strong>Results: </strong>Of 9643 PWH with a SHCS visit, 5563 participated in the study: 26% were female, 13% Black and 37% heterosexual; median age was 53 years (interquartile range 44-59); 2067 participants (37%) gave ≥1 \\\"non-applicable\\\" responses. Disclosure concerns had the highest stigma scores and were reported by 4656/5563 (84%). HIV-stigma was reported across all demographic groups. However, being female, Black, and heterosexual were independently associated with higher scores. Higher education and longer follow-up duration were associated with lower scores. Healthcare-related stigma was reported in 37% of participants.</p><p><strong>Conclusions: </strong>HIV-stigma was prevalent across all demographic groups. The association with being female and Black suggests that HIV-stigma accentuates pre-existing gender and race inequalities.</p>\",\"PeriodicalId\":7502,\"journal\":{\"name\":\"AIDS\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":3.4000,\"publicationDate\":\"2024-07-25\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"AIDS\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1097/QAD.0000000000003983\",\"RegionNum\":2,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"IMMUNOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"AIDS","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1097/QAD.0000000000003983","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"IMMUNOLOGY","Score":null,"Total":0}
Prevalence of HIV-related stigma among people with HIV in Switzerland: addressing the elephant in the room.
Objectives: We aimed to determine the prevalence of HIV-related stigma among people with HIV (PWH) in Switzerland.
Design: A cross-sectional multicentre study nested within the Swiss HIV Cohort Study (SHCS).
Methods: We included adult PWH enrolled in the SHCS, attending follow-up between March 1st, 2020, and January 31st, 2021. Inability to speak English, French, German, or Italian was the only exclusion criterion. Participants were invited to complete a validated 12-item HIV-stigma questionnaire comprising four stigma subscales (negative self-image, personalised stigma, disclosure concerns, and concerns regarding public attitudes), plus two healthcare-related stigma items. Questionnaire responses were graded using a four-point Likert-type scale, higher scores indicating higher stigma. "Non-applicable", inferring HIV-status non-disclosure, was possible for personalised stigma; stigma scores from participants answering "non-applicable" to ≥1 items were analysed separately. Factors associated with HIV-stigma were identified through multivariable linear models.
Results: Of 9643 PWH with a SHCS visit, 5563 participated in the study: 26% were female, 13% Black and 37% heterosexual; median age was 53 years (interquartile range 44-59); 2067 participants (37%) gave ≥1 "non-applicable" responses. Disclosure concerns had the highest stigma scores and were reported by 4656/5563 (84%). HIV-stigma was reported across all demographic groups. However, being female, Black, and heterosexual were independently associated with higher scores. Higher education and longer follow-up duration were associated with lower scores. Healthcare-related stigma was reported in 37% of participants.
Conclusions: HIV-stigma was prevalent across all demographic groups. The association with being female and Black suggests that HIV-stigma accentuates pre-existing gender and race inequalities.
期刊介绍:
Publishing the very latest ground breaking research on HIV and AIDS. Read by all the top clinicians and researchers, AIDS has the highest impact of all AIDS-related journals. With 18 issues per year, AIDS guarantees the authoritative presentation of significant advances. The Editors, themselves noted international experts who know the demands of your work, are committed to making AIDS the most distinguished and innovative journal in the field. Submitted articles undergo a preliminary review by the editor. Some articles may be returned to authors without further consideration. Those being considered for publication will undergo further assessment and peer-review by the editors and those invited to do so from a reviewer pool.