"只要有一线希望,我就愿意尝试":中国城市家长追求自闭症治疗的道德体验》。

IF 1.5 3区 社会学 Q2 ANTHROPOLOGY
Medical Anthropology Pub Date : 2024-07-03 Epub Date: 2024-07-24 DOI:10.1080/01459740.2024.2376005
Mengzhu An
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引用次数: 0

摘要

在今天的中国,无数家长为了给自闭症儿童寻求治疗,在熙熙攘攘却又混乱不堪的治疗市场上踏上了道德风险之旅。基于在珠江三角洲 13 个月的实地调查,本研究探讨了中国自闭症治疗行业的蓬勃发展如何使为孩子的未来不懈努力的父母陷入更深的脆弱境地。我将 "尝试的伦理 "视为家长在寻求治疗过程中的道德代理,并揭示了它如何成为 21 世纪初自闭症治疗行业发展的道德引擎,以及它如何导致家长的道德悲剧,因为在政府和专业人士的指导下,治疗选择出现了新的规范,迫使他们在关键的发展窗口期做出最佳治疗选择。虽然父母为避免 "代理悔恨 "所做的努力可能会自相矛盾地导致巨大的悔恨,但他们所遭遇的道德悲剧也会促使他们反思和重新评估自己对待孩子病情的方法。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"As Long as There's a Glimmer of Hope, I'm Willing to Try": The Moral Experiences of Parental Pursuit for Autism Therapy in Urban China.

In today's China, countless parents embark on a journey of moral peril in search of treatment for their children with autism, navigating a bustling yet chaotic market of therapies. Based on 13 months of fieldwork in the Pearl River Delta, this study examines how the boom of China's autism therapy industry has plunged parents, who are relentlessly striving for their children's futures, into deeper vulnerability. I view the "ethics of trying" as parental enactment of their moral agency in seeking therapy and reveal how it serves as a moral engine for the industry's growth in the early 21st century, as well as how it leads to moral tragedies for parents as new norms of therapeutic choice emerge with government and professional guidance compelling them to make optimal therapeutic choices within a critical developmental window. Although parental efforts to avoid "agent-regret" can paradoxically lead to significant remorse, the moral tragedy they encounter can also prompt reflection and reevaluation of their approach to their child's condition.

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来源期刊
CiteScore
4.10
自引率
4.30%
发文量
57
期刊介绍: Medical Anthropology provides a global forum for scholarly articles on the social patterns of ill-health and disease transmission, and experiences of and knowledge about health, illness and wellbeing. These include the nature, organization and movement of peoples, technologies and treatments, and how inequalities pattern access to these. Articles published in the journal showcase the theoretical sophistication, methodological soundness and ethnographic richness of contemporary medical anthropology. Through the publication of empirical articles and editorials, we encourage our authors and readers to engage critically with the key debates of our time. Medical Anthropology invites manuscripts on a wide range of topics, reflecting the diversity and the expanding interests and concerns of researchers in the field.
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