{"title":"\"只要有一线希望,我就愿意尝试\":中国城市家长追求自闭症治疗的道德体验》。","authors":"Mengzhu An","doi":"10.1080/01459740.2024.2376005","DOIUrl":null,"url":null,"abstract":"<p><p>In today's China, countless parents embark on a journey of moral peril in search of treatment for their children with autism, navigating a bustling yet chaotic market of therapies. Based on 13 months of fieldwork in the Pearl River Delta, this study examines how the boom of China's autism therapy industry has plunged parents, who are relentlessly striving for their children's futures, into deeper vulnerability. I view the \"ethics of trying\" as parental enactment of their moral agency in seeking therapy and reveal how it serves as a moral engine for the industry's growth in the early 21st century, as well as how it leads to moral tragedies for parents as new norms of therapeutic choice emerge with government and professional guidance compelling them to make optimal therapeutic choices within a critical developmental window. Although parental efforts to avoid \"agent-regret\" can paradoxically lead to significant remorse, the moral tragedy they encounter can also prompt reflection and reevaluation of their approach to their child's condition.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":"43 5","pages":"455-468"},"PeriodicalIF":1.5000,"publicationDate":"2024-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"\\\"As Long as There's a Glimmer of Hope, I'm Willing to Try\\\": The Moral Experiences of Parental Pursuit for Autism Therapy in Urban China.\",\"authors\":\"Mengzhu An\",\"doi\":\"10.1080/01459740.2024.2376005\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>In today's China, countless parents embark on a journey of moral peril in search of treatment for their children with autism, navigating a bustling yet chaotic market of therapies. Based on 13 months of fieldwork in the Pearl River Delta, this study examines how the boom of China's autism therapy industry has plunged parents, who are relentlessly striving for their children's futures, into deeper vulnerability. I view the \\\"ethics of trying\\\" as parental enactment of their moral agency in seeking therapy and reveal how it serves as a moral engine for the industry's growth in the early 21st century, as well as how it leads to moral tragedies for parents as new norms of therapeutic choice emerge with government and professional guidance compelling them to make optimal therapeutic choices within a critical developmental window. Although parental efforts to avoid \\\"agent-regret\\\" can paradoxically lead to significant remorse, the moral tragedy they encounter can also prompt reflection and reevaluation of their approach to their child's condition.</p>\",\"PeriodicalId\":47460,\"journal\":{\"name\":\"Medical Anthropology\",\"volume\":\"43 5\",\"pages\":\"455-468\"},\"PeriodicalIF\":1.5000,\"publicationDate\":\"2024-07-03\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Medical Anthropology\",\"FirstCategoryId\":\"90\",\"ListUrlMain\":\"https://doi.org/10.1080/01459740.2024.2376005\",\"RegionNum\":3,\"RegionCategory\":\"社会学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2024/7/24 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q2\",\"JCRName\":\"ANTHROPOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Medical Anthropology","FirstCategoryId":"90","ListUrlMain":"https://doi.org/10.1080/01459740.2024.2376005","RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/7/24 0:00:00","PubModel":"Epub","JCR":"Q2","JCRName":"ANTHROPOLOGY","Score":null,"Total":0}
"As Long as There's a Glimmer of Hope, I'm Willing to Try": The Moral Experiences of Parental Pursuit for Autism Therapy in Urban China.
In today's China, countless parents embark on a journey of moral peril in search of treatment for their children with autism, navigating a bustling yet chaotic market of therapies. Based on 13 months of fieldwork in the Pearl River Delta, this study examines how the boom of China's autism therapy industry has plunged parents, who are relentlessly striving for their children's futures, into deeper vulnerability. I view the "ethics of trying" as parental enactment of their moral agency in seeking therapy and reveal how it serves as a moral engine for the industry's growth in the early 21st century, as well as how it leads to moral tragedies for parents as new norms of therapeutic choice emerge with government and professional guidance compelling them to make optimal therapeutic choices within a critical developmental window. Although parental efforts to avoid "agent-regret" can paradoxically lead to significant remorse, the moral tragedy they encounter can also prompt reflection and reevaluation of their approach to their child's condition.
期刊介绍:
Medical Anthropology provides a global forum for scholarly articles on the social patterns of ill-health and disease transmission, and experiences of and knowledge about health, illness and wellbeing. These include the nature, organization and movement of peoples, technologies and treatments, and how inequalities pattern access to these. Articles published in the journal showcase the theoretical sophistication, methodological soundness and ethnographic richness of contemporary medical anthropology. Through the publication of empirical articles and editorials, we encourage our authors and readers to engage critically with the key debates of our time. Medical Anthropology invites manuscripts on a wide range of topics, reflecting the diversity and the expanding interests and concerns of researchers in the field.