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引用次数: 0
摘要
目的本综述旨在总结患有危及生命的食物过敏症的青少年家长的经验：在全球范围内，危及生命的食物过敏现象日益增多，对家庭，尤其是父母造成了重大影响。青少年时期是年轻人自主性不断增强的时期；然而，对于与患有危及生命的食物过敏症的青少年共同生活并照顾他们的父母来说，这种责任可能会产生相当大的影响：本综述将包括有关患有危及生命的食物过敏症的青少年父母的经历的定性研究，包括但不限于照顾、养育和社会心理经历；与养育患有危及生命的食物过敏症的青少年有关的任何日常活动、事件、想法或感受；以及将过敏责任移交给青少年。审查将包括在社区和医疗保健环境中对参与者进行的研究，如住院、门诊、学校和体育活动、家庭聚餐、餐馆和旅行。研究方法：审查将遵循 JBI 定性证据系统审查方法。对已发表研究的检索包括：CINAHL、MEDLINE 和 PsycINFO（EBSCOhost）；Embase（Ovid）；LILACS、IBSS 和 Sociological Abstracts（ProQuest）。未发表研究的检索将包括 ProQuest Dissertations and Theses、Open Access Theses and Dissertations (OATD)、Bielefeld Academic Search Engine (BASE)、Google 和 Google Scholar。数据库的检索时间从开始到现在。将使用 JBI 工具和指南进行批判性评估、数据提取、数据综合以及对研究结果可信度的评估：PROCERGO：CRD42024503698。
Experiences of parents of teenagers with life-threatening food allergies: a qualitative systematic review protocol.
Objective: The objective of this review is to synthesize the experiences of parents of teenagers with life-threatening food allergies.
Introduction: Life-threatening food allergies are increasing globally, with a significant effect on families, particularly parents. The teenage years are a time of increasing autonomy for young people; however, for parents living with and caring for a teenager with a life-threatening food allergy, this responsibility can have a considerable impact.
Inclusion criteria: This review will include qualitative studies on the experiences of parents of teenagers with life-threatening food allergies, including, but not limited to, caregiving, parenting, and psychosocial experiences; any day-to-day activities, happenings, thoughts, or feelings related to parenting a teenager with life-threatening food allergies; and the handing over of responsibility for the allergy to the teenager. The review will include studies on participants in the community and in health care settings such as inpatient hospitalizations, outpatient visits, school and sports events, family dinners, restaurants, and travel. Participants from all cultural backgrounds, socio-economic backgrounds, and countries will be included.
Methods: The review will follow the JBI methodology for systematic reviews of qualitative evidence. The search for published studies will include CINAHL, MEDLINE, and PsycINFO (EBSCOhost); Embase (Ovid); LILACS, IBSS, and Sociological Abstracts (ProQuest). The search for unpublished studies will include ProQuest Dissertations and Theses, Open Access Theses and Dissertations (OATD), Bielefeld Academic Search Engine (BASE), Google, and Google Scholar. Databases will be searched from inception until the present. JBI tools and guidelines will be used to conduct critical appraisal, data extraction, data synthesis, and assessment of confidence in the findings.
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