身为女性对我的注意力缺陷多动障碍和自闭症经历具有 100% 的重要意义:探索成年后合并自闭症和注意力缺陷多动障碍诊断的性别影响。

IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE
Qualitative Health Research Pub Date : 2024-12-01 Epub Date: 2024-07-18 DOI:10.1177/10497323241253412
Emma Craddock
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引用次数: 0

摘要

本文就女性成年后被诊断患有注意力缺陷多动障碍(ADHD)和自闭症的经历提供了独到的见解。探索成年后被诊断患有这些疾病的经历的研究正在兴起。然而,目前还没有关于成年后合并注意力缺陷多动障碍和自闭症(AuDHD)诊断的性别体验的研究。本文通过对六名晚期诊断为 AuDHD 的女性的电子邮件访谈进行解释性现象学分析,揭示了晚期诊断、女性身份以及多动症和自闭症合并诊断之间复杂的相互作用,从而弥补了这一空白。它强调了性别规范和陈规定型观念是如何导致忽视和忽视女性的神经分裂的。解释性现象学分析揭示了女性特质与神经典型性的不可分割性、性别负担、不适感、掩饰的不良后果以及掩饰不足的不良后果。作为一名未被诊断出患有自闭症、听力障碍和多重障碍的女性,这是一种令人困惑和痛苦的经历,会产生深远而持久的影响。女性荷尔蒙的影响加剧了参与者的挣扎,(围)更年期往往是数十年创伤后寻求诊断的催化剂。不知道自己是神经变异者的认识论上的不公正加剧了这种创伤。诊断使参与者克服了认识上的不公正,并使她们站在女权主义者的立场上,挑战与神经多样性相关的性别不平等。这篇文章旨在增加对晚期诊断为 AuDHD 的女性生活经历的了解和表述。研究结果提倡在诊断前和诊断后提供以创伤为基础的支持,以解决女性被漏诊和被认为是神经变异者的性别维度问题。临床和公众需要更好地了解 AuDHD 在女性中的表现,以防止认识上的不公正。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Being a Woman Is 100% Significant to My Experiences of Attention Deficit Hyperactivity Disorder and Autism: Exploring the Gendered Implications of an Adulthood Combined Autism and Attention Deficit Hyperactivity Disorder Diagnosis.

This article provides original insight into women's experiences of adulthood diagnoses of attention deficit hyperactivity disorder (ADHD) and autism. Research exploring experiences of adulthood diagnoses of these conditions is emerging. Yet, there is no research about the gendered experiences of an adulthood combined ADHD and autism (AuDHD) diagnosis. This article addresses this gap through interpretative phenomenological analysis of email interviews with six late-diagnosed AuDHD women revealing the complex interplay between late diagnosis, being a woman, and combined diagnoses of ADHD and autism. It underscores how gender norms and stereotypes contribute to the oversight and dismissal of women's neurodivergence. Interpretative phenomenological analysis reveals the inextricability of femininity and neurotypicality, the gendered burden, discomfort, and adverse consequences of masking, along with the adverse outcomes of insufficient masking. Being an undiagnosed AuDHD woman is a confusing and traumatising experience with profound and enduring repercussions. The impact of female hormones exacerbated participants' struggles with (peri)menopause often being a catalyst for seeking diagnosis after decades of trauma. The epistemic injustice of not knowing they were neurodivergent compounded this trauma. Diagnosis enabled participants to overcome epistemic injustice and moved them into a feminist standpoint from which they challenge gendered inequalities relating to neurodiversity. This article aims to increase understanding and representation of late-diagnosed AuDHD women's lived experiences. The findings advocate for trauma-informed pre- and post-diagnosis support which addresses the gendered dimension of women's experiences of being missed and dismissed as neurodivergent. There needs to be better clinical and public understanding of how AuDHD presents in women to prevent epistemic injustice.

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来源期刊
CiteScore
6.80
自引率
6.20%
发文量
109
期刊介绍: QUALITATIVE HEALTH RESEARCH is an international, interdisciplinary, refereed journal for the enhancement of health care and to further the development and understanding of qualitative research methods in health care settings. We welcome manuscripts in the following areas: the description and analysis of the illness experience, health and health-seeking behaviors, the experiences of caregivers, the sociocultural organization of health care, health care policy, and related topics. We also seek critical reviews and commentaries addressing conceptual, theoretical, methodological, and ethical issues pertaining to qualitative enquiry.
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