增强早期帕金森病的管理能力:技术的作用。

IF 3.1 3区 医学 Q2 CLINICAL NEUROLOGY
Roongroj Bhidayasiri , Ornanong Udomsirithamrong , Adrian de Leon , Walter Maetzler , Andrea Pilotto
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引用次数: 0

摘要

早发性帕金森病(EOPD)是指发病年龄在 21 岁之后、50 岁之前的帕金森病。早发性帕金森病在病理、表型、表现和病程方面与晚发性帕金森病有许多重要区别,所有这些都会对明确诊断、疗法选择和管理方法产生影响。研究表明,这一年轻群体热衷于将数字技术作为帕金森病护理的一部分,他们熟悉在日常生活中使用数字工具。虽然大多数有关在帕金森病中使用技术的文献都适用于广泛人群,但本综述重点关注使用数字技术来支持 EOPD 临床管理的证据和潜在益处,以及数字技术在增强患者实现自我管理和提高生活质量方面的价值。数字技术在提供远程保健(包括针对运动性和非运动性帕金森病症状的康复策略)方面也发挥着越来越重要的作用。众所周知,运动性肢体障碍与较高的运动波动风险有关,因此可穿戴传感器等技术在监测症状、提供及时反馈和为治疗决策提供信息方面具有重要作用。此外,数字技术还可以方便、公平地提供教育和交流机会,让患者更好地了解自己的病情。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Empowering the management of early-onset Parkinson’s disease: The role of technology
Early-onset Parkinson's disease (EOPD) is defined as PD with an age of onset after 21 years of age but before 50 years. It displays many important differences to late-onset PD in terms of its pathology, phenotype, presentation and disease course, all of which have consequences for achieving a definitive diagnosis, the choice of therapy and approach to management. Studies show that this younger population is keen to embrace digital technologies as part of PD care, being familiar with using digital tools in their daily lives. Although most of the literature relating to the use of technology in PD applies to the broad population, this review focuses on evidence and potential benefits of the use of digital technologies to support clinical management in EOPD as well as its value in empowering patients to achieve self-management and in improving their quality of life. Digital technologies also have important and increasing roles in providing telehealth, including rehabilitation strategies for motor and non-motor PD symptoms. EOPD is known to be associated with a higher risk of motor fluctuations, so technologies such as wearable sensors have a valuable role for monitoring symptoms, providing timely feedback, and informing treatment decisions. In addition, digital technologies allow easy provision and equitable access to education and networking opportunities that will enable patients to have a better understanding of their condition.
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来源期刊
Parkinsonism & related disorders
Parkinsonism & related disorders 医学-临床神经学
CiteScore
6.20
自引率
4.90%
发文量
292
审稿时长
39 days
期刊介绍: Parkinsonism & Related Disorders publishes the results of basic and clinical research contributing to the understanding, diagnosis and treatment of all neurodegenerative syndromes in which Parkinsonism, Essential Tremor or related movement disorders may be a feature. Regular features will include: Review Articles, Point of View articles, Full-length Articles, Short Communications, Case Reports and Letter to the Editor.
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