Babette Renneberg, Joost Hutsebaut, Ann Berens, Chiara De Panfilis, Katja Bertsch, Andres Kaera, Ueli Kramer, Christian Schmahl, Michaela Swales, Svenja Taubner, Mariana Mendoza Alvarez, Julia Sieg
{"title":"具有生活经验的专家和研究人员为人格障碍领域制定知情研究议程。","authors":"Babette Renneberg, Joost Hutsebaut, Ann Berens, Chiara De Panfilis, Katja Bertsch, Andres Kaera, Ueli Kramer, Christian Schmahl, Michaela Swales, Svenja Taubner, Mariana Mendoza Alvarez, Julia Sieg","doi":"10.1186/s40479-024-00257-0","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>We describe a collection of themes for a research agenda for personality disorders that was originally formulated for the ESSPD Borderline Congress in 2022.</p><p><strong>Methods: </strong>Experts with lived and living experience (EE), researchers and clinicians met virtually, exchanged ideas and discussed research topics for the field of personality disorders. The experts - patients, relatives, significant others - named the topics they thought most relevant for further research in the field. These topics were presented at the ESPPD conference in October 2022.</p><p><strong>Results: </strong>The five top themes were: 1. Prevention, early detection and intervention, 2. Recovery beyond symptom improvement, 3. Involvement of relatives in treatment, 4. Gender dysphoria, and 5. Stigma.</p><p><strong>Conclusions: </strong>In general, the topics reflect current issues and changes in societal values. Overarching aims of research on these topics are the improvement of social participation and integration in society, better dissemination of research, and better information of the general public and political stakeholders.</p>","PeriodicalId":48586,"journal":{"name":"Borderline Personality Disorder and Emotion Dysregulation","volume":"11 1","pages":"14"},"PeriodicalIF":4.0000,"publicationDate":"2024-07-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11229301/pdf/","citationCount":"0","resultStr":"{\"title\":\"Towards an informed research agenda for the field of personality disorders by experts with lived and living experience and researchers.\",\"authors\":\"Babette Renneberg, Joost Hutsebaut, Ann Berens, Chiara De Panfilis, Katja Bertsch, Andres Kaera, Ueli Kramer, Christian Schmahl, Michaela Swales, Svenja Taubner, Mariana Mendoza Alvarez, Julia Sieg\",\"doi\":\"10.1186/s40479-024-00257-0\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>We describe a collection of themes for a research agenda for personality disorders that was originally formulated for the ESSPD Borderline Congress in 2022.</p><p><strong>Methods: </strong>Experts with lived and living experience (EE), researchers and clinicians met virtually, exchanged ideas and discussed research topics for the field of personality disorders. The experts - patients, relatives, significant others - named the topics they thought most relevant for further research in the field. These topics were presented at the ESPPD conference in October 2022.</p><p><strong>Results: </strong>The five top themes were: 1. Prevention, early detection and intervention, 2. Recovery beyond symptom improvement, 3. Involvement of relatives in treatment, 4. Gender dysphoria, and 5. Stigma.</p><p><strong>Conclusions: </strong>In general, the topics reflect current issues and changes in societal values. Overarching aims of research on these topics are the improvement of social participation and integration in society, better dissemination of research, and better information of the general public and political stakeholders.</p>\",\"PeriodicalId\":48586,\"journal\":{\"name\":\"Borderline Personality Disorder and Emotion Dysregulation\",\"volume\":\"11 1\",\"pages\":\"14\"},\"PeriodicalIF\":4.0000,\"publicationDate\":\"2024-07-08\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11229301/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Borderline Personality Disorder and Emotion Dysregulation\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1186/s40479-024-00257-0\",\"RegionNum\":2,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"PSYCHIATRY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Borderline Personality Disorder and Emotion Dysregulation","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1186/s40479-024-00257-0","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"PSYCHIATRY","Score":null,"Total":0}
Towards an informed research agenda for the field of personality disorders by experts with lived and living experience and researchers.
Background: We describe a collection of themes for a research agenda for personality disorders that was originally formulated for the ESSPD Borderline Congress in 2022.
Methods: Experts with lived and living experience (EE), researchers and clinicians met virtually, exchanged ideas and discussed research topics for the field of personality disorders. The experts - patients, relatives, significant others - named the topics they thought most relevant for further research in the field. These topics were presented at the ESPPD conference in October 2022.
Results: The five top themes were: 1. Prevention, early detection and intervention, 2. Recovery beyond symptom improvement, 3. Involvement of relatives in treatment, 4. Gender dysphoria, and 5. Stigma.
Conclusions: In general, the topics reflect current issues and changes in societal values. Overarching aims of research on these topics are the improvement of social participation and integration in society, better dissemination of research, and better information of the general public and political stakeholders.
期刊介绍：
Borderline Personality Disorder and Emotion Dysregulation provides a platform for researchers and clinicians interested in borderline personality disorder (BPD) as a currently highly challenging psychiatric disorder. Emotion dysregulation is at the core of BPD but also stands on its own as a major pathological component of the underlying neurobiology of various other psychiatric disorders. The journal focuses on the psychological, social and neurobiological aspects of emotion dysregulation as well as epidemiology, phenomenology, pathophysiology, treatment, neurobiology, genetics, and animal models of BPD.
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