法国免疫性血小板减少症和自身免疫性溶血性贫血成年患者 CARMEN-France 登记。

IF 0.7 4区医学 Q3 MEDICINE, GENERAL & INTERNAL

Revue De Medecine Interne Pub Date : 2024-09-01 DOI:10.1016/j.revmed.2024.06.006

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引用次数: 0

摘要

法国 CARMEN 登记处是法国的一个前瞻性多中心登记处，收录了新诊断为免疫性血小板减少症或自身免疫性溶血性贫血的成年患者（截至 2023 年 12 月 31 日，共收录 2402 名患者）。通过记录临床、生物和治疗数据，可以进行详细的流行病学和药物流行病学真实世界研究。本综述概述了 CARMEN-France 登记协议，举例说明了在该登记处开展的研究，并指出了未来的发展方向，如纳入患者报告的结果、与法国国家健康保险数据库的链接以及与欧洲其他登记处的链接。

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The CARMEN-France registry of adult patients with immune thrombocytopenia and autoimmune hemolytic anemia in France

The CARMEN-France registry is a prospective, multicenter registry in France including adult patients with a new diagnosis of immune thrombocytopenia or of autoimmune immune hemolytic anemia (2402 patients included in December 31, 2023). The recording of clinical, biological and treatment data allows detailed epidemiological and pharmacoepidemiological real-world studies. This review summarizes the CARMEN-France registry protocol, gives examples of studies conducted in the registry, and indicates future directions such as inclusion of patient reported outcomes, linkage with the French national health insurance database and linkage with other registries in Europe.

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来源期刊

Revue De Medecine Interne 医学-医学：内科

CiteScore

0.70

自引率

11.10%

发文量

526

审稿时长

37 days

期刊介绍： Official journal of the SNFMI, La revue de medecine interne is indexed in the most prestigious databases. It is the most efficient French language journal available for internal medicine specialists who want to expand their knowledge and skills beyond their own discipline. It is also the main French language international medium for French research works. The journal publishes each month editorials, original articles, review articles, short communications, etc. These articles address the fundamental and innumerable facets of internal medicine, spanning all medical specialties. Manuscripts may be submitted in French or in English. La revue de medecine interne also includes additional issues publishing the proceedings of the two annual French meetings of internal medicine (June and December), as well as thematic issues.