研究系统性硬化症患者姑息治疗的案例。

IF 3.6 2区医学 Q2 RHEUMATOLOGY

Journal of Rheumatology Pub Date : 2024-10-01 DOI:10.3899/jrheum.2023-1251

Julie C McDonald, Laura Ross, Carolyn J Wicks, Jennifer A M Philip

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引用次数: 0

摘要

系统性硬化症是一种复杂的多器官疾病，会导致严重的进行性症状，损害生活质量。国际指南建议对心肺疾病（如心力衰竭和间质性肺病）晚期患者进行早期综合姑息治疗，因为这种治疗可以改善患者、护理人员和医疗保健效果。在本文中，我们将探讨姑息治疗在系统性硬化症中的潜在需求和作用。我们提出早期综合姑息治疗可改善症状控制和生活质量，并建议制定系统性硬化症姑息治疗的研究议程，以解决该领域缺乏证据的问题。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Examining the Case for Palliative Care in Patients With Systemic Sclerosis.

Systemic sclerosis (SSc) is a complex, multiorgan disease that causes substantial and progressive symptoms and impairs quality of life. International guidelines recommend early, integrated palliative care for patients with advanced cardiopulmonary disease, such as heart failure and interstitial lung disease, as this care can improve patient, caregiver, and healthcare outcomes. In this article, we examine the potential need and role for palliative care in SSc. We propose that early, integrated palliative care could improve symptom control and quality of life and recommend a research agenda for palliative care in SSc to address the lack of evidence in this area.

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来源期刊

Journal of Rheumatology 医学-风湿病学

CiteScore

6.50

自引率

5.10%

发文量

285

审稿时长

1 months

期刊介绍： The Journal of Rheumatology is a monthly international serial edited by Earl D. Silverman. The Journal features research articles on clinical subjects from scientists working in rheumatology and related fields, as well as proceedings of meetings as supplements to regular issues. Highlights of our 41 years serving Rheumatology include: groundbreaking and provocative editorials such as "Inverting the Pyramid," renowned Pediatric Rheumatology, proceedings of OMERACT and the Canadian Rheumatology Association, Cochrane Musculoskeletal Reviews, and supplements on emerging therapies.