法国父母在诊断子女患有边缘型人格障碍方面的生活经验。

IF 4 2区 医学 Q1 PSYCHIATRY
Léa Villet, Abtine Madjlessi, Anne Revah-Levy, Mario Speranza, Nadia Younes, Jordan Sibéoni
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引用次数: 0

摘要

背景:精神科医生在诊断边缘型人格障碍(BPD)时常常犹豫不决。虽然 BPD 患者在接受诊断时既有积极的经历,也有消极的经历,但还没有研究专门探讨过父母的这一问题。被诊断为 BPD 患儿的父母可以从最近开发的家庭支持干预措施(如 "家庭联系 "计划)中获益。我们的研究旨在探讨父母在得知其子女被诊断为 BPD 后的经历,并调查 "家庭联系 "项目对他们经历的影响:这项定性研究在法国进行,采用五阶段 IPSE 方法,通过凡尔赛 "家庭联系 "协会招募了患有 BPD 儿童的家长。我们进行了半结构化访谈,并采用目的性抽样进行数据收集,直至数据达到饱和。我们使用 NVivo 12 软件对数据进行了描述性和结构化分析,以阐明生活经验的结构:研究包括 21 位家长。生活经历的结构以三个中心轴为特征:(1)漫长而艰难的诊断之路;(2)向父母传达 BPD 诊断:一个必要的步骤;(3)接受诊断的陷阱。家庭联系计划在这些方面提供了重要的支持,特别是在理解诊断、加强与孩子的沟通以及减少社会隔离方面:这些研究结果突显了家长在接受 BPD 诊断时所面临的挑战,并强调了对诊断进行早期、清晰和详细解释的必要性。父母在接受诊断时的具体经历反映了他们所经历的更广泛的护理经历,并强调了他们在孩子的整个治疗过程中获得信息、支持和指导的需要和权利。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The lived experience of French parents concerning the diagnosis of their children with borderline personality disorder.

Background: Psychiatrists often hesitate to diagnose borderline personality disorder (BPD). While individuals with BPD have reported both positive and negative experiences upon receiving their diagnosis, no study has specifically explored this issue among parents. Parents of children diagnosed with BPD can benefit from recently developed family-support interventions such as the Family Connections program. Our study aimed to explore the experiences of parents learning about their child's BPD diagnosis and to investigate the impact of the Family Connections program on their experiences.

Methods: This qualitative study, conducted in France following the five-stage IPSE method, involved parents of children with BPD recruited through the Family Connections association in Versailles. We conducted semi-structured interviews and used purposive sampling for data collection until data saturation was reached. Data analysis was performed using a descriptive and structuring approach with NVivo 12 software to elucidate the structure of lived experiences.

Results: The study included 21 parents. The structure of the lived experiences was characterized by three central axes: (1) the long and difficult road to diagnosis; (2) communicating the BPD diagnosis to parents: a necessary step; (3) the pitfalls of receiving the diagnosis. The Family Connections program provided significant support in these areas, particularly in understanding the diagnosis, enhancing communication with their child, and reducing social isolation.

Conclusion: These findings highlight the challenges parents face when receiving a BPD diagnosis for their child and underscore the need for an early, clear, and detailed explanation of the diagnosis. The specific experiences of receiving the diagnosis are indicative of the broader care experience parents undergo and highlight their need and right to be informed, supported, and guided throughout their child's treatment.

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来源期刊
CiteScore
6.00
自引率
9.80%
发文量
30
审稿时长
28 weeks
期刊介绍: Borderline Personality Disorder and Emotion Dysregulation provides a platform for researchers and clinicians interested in borderline personality disorder (BPD) as a currently highly challenging psychiatric disorder. Emotion dysregulation is at the core of BPD but also stands on its own as a major pathological component of the underlying neurobiology of various other psychiatric disorders. The journal focuses on the psychological, social and neurobiological aspects of emotion dysregulation as well as epidemiology, phenomenology, pathophysiology, treatment, neurobiology, genetics, and animal models of BPD.
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