儿童在接受癌症护理和治疗时对其价值观和道德困境的看法--定性访谈研究。

IF 3 1区 哲学 Q1 ETHICS
Charlotte Weiner, Pernilla Pergert, Anders Castor, Bert Molewijk, Cecilia Bartholdson
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引用次数: 0

摘要

背景:在瑞典,每年约有 350 名儿童罹患儿童癌症,这是一种危及生命的疾病。在治疗期间,可能会出现对儿童来说具有道德挑战性的情况。如果了解儿童的价值观和儿童癌症护理中的道德挑战情况,就可以在护理中开发和使用有针对性的道德支持。目的:探讨儿童在接受癌症治疗时的价值观和道德困境:这是一项基于经验数据的定性研究。数据收集通过三次焦点小组访谈和六次个人访谈进行,访谈对象为 10 至 18 岁的儿童(n = 16)。研究采用内容分析法生成主题。瑞典三家儿童癌症中心邀请了正在/曾经接受癌症治疗的儿童参与。该研究获得了瑞典伦理审查机构的批准。儿童的参与以自愿和同意/同意为基础:在分析过程中,出现了五个价值观主题:人际关系、身体自在和身份认同、控制感和参与感、积极的分心和所需的正确护理。他们的道德困境主题化为:我是否应该考虑他人?我是否应该考虑他人?我是否应该休息? 我是否应该拒绝治疗?接受癌症治疗的儿童希望与医护人员建立个人关系。他们的道德困境是质疑自己的身心健康与自己的期望、他人的价值观和所需治疗之间的矛盾。需要进一步开展研究,以了解如何处理接受癌症治疗的儿童的道德困境。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Children's voices on their values and moral dilemmas when being cared and treated for cancer- a qualitative interview study.

Background: Childhood cancers affect about 350 children every year in Sweden and are life-threatening diseases. During the treatment period, situations arise that can become morally challenging for the child. When knowing children's values and morally challenging situations in childhood cancer care, targeted ethics support could be developed and used in care.

Aim: To explore children's values and moral dilemmas ​​when undergoing cancer treatment.

Methods: This is a qualitative study based on empirical data. The data collection was conducted through three focus group interviews and six individual interviews with children between 10 and 18 years (n = 16). A content analysis methodology was used to generate themes. Children who were/have been treated for cancer at three childhood cancer centres in Sweden were invited to participate. The study was approved by the Swedish Ethical Review Authority. The children's participation was based on voluntariness and consent/assent.

Findings: During the analysis, five themes of values emerged: Personal relationships, Bodily ease and identity, Feeling in control and being involved, Positive distractions and Right care that is needed. Their moral dilemmas were thematized into: Should I consider others or not? Should I rest or not? and Should I refuse treatment or not?

Conclusion: Children undergoing cancer treatment want to have personal relationships with healthcare professionals. Their moral dilemmas were about questioning their own physical and psychological well-being against their expectations, the values of others and the treatment required. Further research is needed to understand how to deal with moral dilemmas in children undergoing cancer treatment.

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来源期刊
BMC Medical Ethics
BMC Medical Ethics MEDICAL ETHICS-
CiteScore
5.20
自引率
7.40%
发文量
108
审稿时长
>12 weeks
期刊介绍: BMC Medical Ethics is an open access journal publishing original peer-reviewed research articles in relation to the ethical aspects of biomedical research and clinical practice, including professional choices and conduct, medical technologies, healthcare systems and health policies.
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