P. B. Kúld, N. Frielink, C. Schuengel, P. J. C. M. Embregts
{"title":"根据亲属和医护人员的意见，支持重度或极重度智力和多重残疾人士的自决：概念绘图研究。","authors":"P. B. Kúld, N. Frielink, C. Schuengel, P. J. C. M. Embregts","doi":"10.1111/jar.13267","DOIUrl":null,"url":null,"abstract":"<div>\n \n \n <section>\n \n <h3> Background</h3>\n \n <p>This study aimed to identify perspectives of relatives and healthcare professionals regarding self-determination support for people with severe or profound intellectual and multiple disabilities, highlighting agreements and differences in their viewpoints.</p>\n </section>\n \n <section>\n \n <h3> Method</h3>\n \n <p>Following a concept mapping study, online focus group meetings yielded statements on self-determination support from relatives (residential facilities: <i>n</i> = 6, family homes: <i>n</i> = 7) and healthcare professionals (residential facilities: <i>n</i> = 9, family home: <i>n</i> = 5). Participants clustered and rated statements, resulting in four concept maps interpreted by experts (<i>N</i> = 6).</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>The 285 statements were categorised into 5–7 clusters per map, revealing key strategies for self-determination support: communication and choice making (facilitated by aids), sensitivity, familiarity, and collaboration among involved parties.</p>\n </section>\n \n <section>\n \n <h3> Conclusion</h3>\n \n <p>Each group placed different emphasis on these strategies, highlighting importance of continuous support in their implementation. Future research should prioritise practical implementations of these strategies to enhance self-determination.</p>\n </section>\n </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":2.1000,"publicationDate":"2024-06-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13267","citationCount":"0","resultStr":"{\"title\":\"Supporting self-determination of individuals with severe or profound intellectual and multiple disabilities according to relatives and healthcare professionals: A concept mapping study\",\"authors\":\"P. B. Kúld, N. Frielink, C. Schuengel, P. J. C. M. 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Supporting self-determination of individuals with severe or profound intellectual and multiple disabilities according to relatives and healthcare professionals: A concept mapping study
Background
This study aimed to identify perspectives of relatives and healthcare professionals regarding self-determination support for people with severe or profound intellectual and multiple disabilities, highlighting agreements and differences in their viewpoints.
Method
Following a concept mapping study, online focus group meetings yielded statements on self-determination support from relatives (residential facilities: n = 6, family homes: n = 7) and healthcare professionals (residential facilities: n = 9, family home: n = 5). Participants clustered and rated statements, resulting in four concept maps interpreted by experts (N = 6).
Results
The 285 statements were categorised into 5–7 clusters per map, revealing key strategies for self-determination support: communication and choice making (facilitated by aids), sensitivity, familiarity, and collaboration among involved parties.
Conclusion
Each group placed different emphasis on these strategies, highlighting importance of continuous support in their implementation. Future research should prioritise practical implementations of these strategies to enhance self-determination.
期刊介绍：
JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.
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