成人自闭症患者对诊断评估的看法和体验,包括整个生命周期的游戏。

IF 5.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL
Autism Pub Date : 2025-01-01 Epub Date: 2024-06-12 DOI:10.1177/13623613241257601
Emma Pritchard-Rowe, Carmen de Lemos, Katie Howard, Jenny Gibson
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引用次数: 0

摘要

内容提要:自闭症诊断评估中经常包括游戏。这些评估往往侧重于负面因素,以及非自闭症患者如何解释可观察到的行为。重要的是要采取神经多样性肯定评估方法。这包括关注自闭症患者所说的话,以及他们的优势和需求。我们想了解自闭症成年人如何体验包括游戏在内的诊断评估。我们请自闭症患者和非自闭症患者帮助我们设计研究和访谈问题。然后,我们采访了 22 名成年自闭症患者,了解他们对在评估中使用游戏的看法。我们使用了一种名为解释性现象学分析的定性方法来分析数据。成年自闭症患者告诉我们游戏被纳入诊断评估的不同方式。例如,有些人完成了一个叫做自闭症诊断观察表的诊断工具。成年自闭症患者还谈到了考虑自闭症患者之间差异的重要性。例如,我们发现游戏对于评估女性或女孩的面具可能没有用。这表明专业人员应该采用个性化的诊断评估方法,使用游戏来满足每个人的需要。我们的研究结果还表明,专业人员应该评估优势和差异以及需要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Autistic adults' perspectives and experiences of diagnostic assessments that include play across the lifespan.

Lay abstract: Play is often included in autism diagnostic assessments. These assessments tend to focus on negatives and how people who are not autistic interpret observable behaviours. It is important to take a neurodiversity-affirmative assessment approach. This involves focusing on what autistic people say and looking at strengths and needs. We wanted to find out how autistic adults experience diagnostic assessments that include play. We asked autistic and non-autistic people to help us design our study and interview questions. We then interviewed 22 autistic adults to find out what they think about the use of play in assessments. We used a qualitative method called interpretative phenomenological analysis to analyse the data. Autistic adults told us about the different ways play was included in their diagnostic assessments. For example, some completed a diagnostic tool called the Autism Diagnostic Observation Schedule. Autistic adults also talked about the importance of considering how autistic people are different to each other. For example, we found that play may not be useful for assessing women or girls who mask. This suggests that professionals should adopt a personalised approach to diagnostic assessments that use play catering to each person's needs. Our findings also suggested that professionals should assess strengths and differences as well as needs.

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来源期刊
Autism
Autism PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
9.80
自引率
11.50%
发文量
160
期刊介绍: Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.
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