雷特综合症患者及其照顾者的睡眠问题。

IF 5.2 2区心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL

Autism Pub Date : 2024-12-01 Epub Date: 2024-06-09 DOI:10.1177/13623613241254620

Cheng-Hsien Huang, Lee-Chin Wong, Yen-Ju Chu, Chia-Jui Hsu, Hsin-Pei Wang, Wen-Che Tsai, Wang-Tso Lee

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引用次数: 0

摘要

Lay 摘要：睡眠问题在雷特综合征（RTT）患者及其照护者中很常见，也很有影响。我们使用各种评估工具研究了 29 名雷特综合征患者及其主要照顾者的睡眠模式。研究发现，大多数患者都有睡眠障碍，年轻患者的睡眠障碍更为严重。护理人员也表示睡眠质量不佳。研究结果表明，有必要在 RTT 管理中解决睡眠问题，因为改善睡眠质量会对 RTT 患者及其护理人员的福祉产生积极影响。

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The sleep problems in individuals with Rett syndrome and their caregivers.

Lay abstract: Sleep problems are common and impactful among individuals with Rett syndrome (RTT) and their caregivers. We examined the sleep patterns of 29 RTT patients and their primary caregivers using various assessment tools. The study found that a majority of the patients experienced sleep disturbances, with younger patients showing more sleep difficulties. Caregivers also reported poor sleep quality. The findings emphasize the need to address sleep problems in RTT management, as improving sleep quality can positively impact the well-being of individuals with RTT and their caregivers.

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来源期刊

Autism PSYCHOLOGY, DEVELOPMENTAL-

CiteScore

9.80

自引率

11.50%

发文量

160

期刊介绍： Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.