对全球范围内获得唇裂护理的障碍进行系统性审查。

IF 1.6 4区 医学 Q4 DEVELOPMENTAL BIOLOGY
Ana María Cerón-Zapata, Ruben Darío Manrique-Hernández, Luz Mery Mejía-Ortega
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引用次数: 0

摘要

目的:唇腭裂患者需要跨学科的治疗方法。据报道,在不同的低收入、中等收入和高收入国家,这些患者在接受治疗方面存在延误和难以获得医疗服务的情况。本研究旨在分析全球范围内有关唇腭裂医疗服务的出版物:方法:系统地选择数据库,并搜索至 2021 年 7 月。综述过程遵循系统综述的标准方法。研究质量采用《加强流行病学中观察性研究的报告》观察性研究指南进行评估:采用我们的搜索策略共发现了 289 篇出版物。在审阅标题、阅读摘要和全文后,16 项研究符合综述的纳入标准。在一项研究中,经济困难引起了护理唇腭裂患者的专业人员的注意。研究还发现了种族差异、交通问题以及用户与医疗中心之间距离遥远等问题。此外,唇腭裂患者的护理人员在治疗和随访方面也存在误导:在查阅有关唇腭裂患者获得医疗服务的文献时,发现在获取信息、前往医疗中心的交通、支付治疗费用的经济来源以及护理机会等方面存在障碍。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A systematic review of barriers to accessing cleft care worldwide

Purpose

Patients with cleft lip/palate need an interdisciplinary approach. Delays in the care of these patients and difficulties in accessing health services have been reported in different low-, middle-, and high-income countries. This study aimed to characterize worldwide publications on access to cleft lip and palate health treatment.

Methods

Databases were selected systematically and searched until July 2021. The review process followed standard methods for systematic reviews. The study quality was evaluated using the Strengthening the Reporting of Observational studies in Epidemiology guidelines for observational studies.

Results

A total of 289 publications were identified using our search strategy. After reviewing the titles and reading the abstracts and full text, 16 studies met the inclusion criteria in the review. In one study, financial difficulties obtained the attention of the professionals who attended to cleft lip/palate patients. Ethnic disparities, problems in transportation, and long distances between users and health centers were found. Additionally, there was misinformation about treatment and follow-up among the caregivers of patients with cleft lip/palate.

Conclusion

When reviewing the literature on access to health services for patients with cleft lip/palate, barriers were reported in access to information, physical access to care centers, financial resources to cover expenses for treatment, and opportunities in care.

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来源期刊
Birth Defects Research
Birth Defects Research Medicine-Embryology
CiteScore
3.60
自引率
9.50%
发文量
153
期刊介绍: The journal Birth Defects Research publishes original research and reviews in areas related to the etiology of adverse developmental and reproductive outcome. In particular the journal is devoted to the publication of original scientific research that contributes to the understanding of the biology of embryonic development and the prenatal causative factors and mechanisms leading to adverse pregnancy outcomes, namely structural and functional birth defects, pregnancy loss, postnatal functional defects in the human population, and to the identification of prenatal factors and biological mechanisms that reduce these risks. Adverse reproductive and developmental outcomes may have genetic, environmental, nutritional or epigenetic causes. Accordingly, the journal Birth Defects Research takes an integrated, multidisciplinary approach in its organization and publication strategy. The journal Birth Defects Research contains separate sections for clinical and molecular teratology, developmental and reproductive toxicology, and reviews in developmental biology to acknowledge and accommodate the integrative nature of research in this field. Each section has a dedicated editor who is a leader in his/her field and who has full editorial authority in his/her area.
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