NJ Nadeem , S. Afzal , IA Dogar , JG Smith , T. Shah , M. Noreen , A. Ali
{"title":"巴基斯坦自闭症儿童对父母心理健康和幸福的影响","authors":"NJ Nadeem , S. Afzal , IA Dogar , JG Smith , T. Shah , M. Noreen , A. Ali","doi":"10.1016/j.rasd.2024.102423","DOIUrl":null,"url":null,"abstract":"<div><h3>Background</h3><p>Caring for a child with Autism Spectrum Disorder (ASD) poses significant challenges and parents are at increased risk of psychological distress and reduced wellbeing.</p></div><div><h3>Methods</h3><p>We investigated the impact of having an autistic child on the wellbeing of 103 parents in Pakistan. Data were collected using the Self-Reported Questionnaire (SRQ-20), Autism Parenting Stress Index (APSI) and the WHO’s Quality of Life Brief Version.</p></div><div><h3>Results</h3><p>Parents reported reduced psychological health and worsened social relationships in comparison with population norms. The mean prevalence of APSI responses indicating frequent stress was 78 % overall; 91 % around core autism behaviours, 77 % around comorbid behaviours and 65 % around comorbid physical problems. SRQ-20 scores suggested that there were moderate mental distress levels in parents of children with ASD; 60 % of participants scored ≥ 8 indicating probable mental disorder. Parenting stress, including stress specific to comorbid behaviours, was modestly associated with (total) levels of (general) mental distress and with poorer physical and psychological health. Mothers reported significantly poorer psychological health and greater levels of mental distress than fathers, while quality of life markers concerning social relationships and environmental health were higher in parents of younger children with ASD.</p></div><div><h3>Conclusions</h3><p>Parents of children with ASD experience significant ASD-specific parental stress, psychological distress and decreased quality of life and wellbeing. These parents frequently present with reduced energy levels and depressive symptoms. This data provide a deeper understanding of the challenges faced by parents of children with ASD in Pakistan and provides a framework to guide further research and clinical practice.</p></div>","PeriodicalId":48255,"journal":{"name":"Research in Autism Spectrum Disorders","volume":"115 ","pages":"Article 102423"},"PeriodicalIF":2.2000,"publicationDate":"2024-05-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S1750946724000989/pdfft?md5=eb6f25ae9f66028f289a3fb7019aba3a&pid=1-s2.0-S1750946724000989-main.pdf","citationCount":"0","resultStr":"{\"title\":\"The impact of having an autisTic child on parental mental health and wellbeing in pakistan\",\"authors\":\"NJ Nadeem , S. Afzal , IA Dogar , JG Smith , T. Shah , M. Noreen , A. Ali\",\"doi\":\"10.1016/j.rasd.2024.102423\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><h3>Background</h3><p>Caring for a child with Autism Spectrum Disorder (ASD) poses significant challenges and parents are at increased risk of psychological distress and reduced wellbeing.</p></div><div><h3>Methods</h3><p>We investigated the impact of having an autistic child on the wellbeing of 103 parents in Pakistan. Data were collected using the Self-Reported Questionnaire (SRQ-20), Autism Parenting Stress Index (APSI) and the WHO’s Quality of Life Brief Version.</p></div><div><h3>Results</h3><p>Parents reported reduced psychological health and worsened social relationships in comparison with population norms. The mean prevalence of APSI responses indicating frequent stress was 78 % overall; 91 % around core autism behaviours, 77 % around comorbid behaviours and 65 % around comorbid physical problems. SRQ-20 scores suggested that there were moderate mental distress levels in parents of children with ASD; 60 % of participants scored ≥ 8 indicating probable mental disorder. Parenting stress, including stress specific to comorbid behaviours, was modestly associated with (total) levels of (general) mental distress and with poorer physical and psychological health. Mothers reported significantly poorer psychological health and greater levels of mental distress than fathers, while quality of life markers concerning social relationships and environmental health were higher in parents of younger children with ASD.</p></div><div><h3>Conclusions</h3><p>Parents of children with ASD experience significant ASD-specific parental stress, psychological distress and decreased quality of life and wellbeing. These parents frequently present with reduced energy levels and depressive symptoms. This data provide a deeper understanding of the challenges faced by parents of children with ASD in Pakistan and provides a framework to guide further research and clinical practice.</p></div>\",\"PeriodicalId\":48255,\"journal\":{\"name\":\"Research in Autism Spectrum Disorders\",\"volume\":\"115 \",\"pages\":\"Article 102423\"},\"PeriodicalIF\":2.2000,\"publicationDate\":\"2024-05-28\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.sciencedirect.com/science/article/pii/S1750946724000989/pdfft?md5=eb6f25ae9f66028f289a3fb7019aba3a&pid=1-s2.0-S1750946724000989-main.pdf\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Research in Autism Spectrum Disorders\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S1750946724000989\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"EDUCATION, SPECIAL\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Research in Autism Spectrum Disorders","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S1750946724000989","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"EDUCATION, SPECIAL","Score":null,"Total":0}
The impact of having an autisTic child on parental mental health and wellbeing in pakistan
Background
Caring for a child with Autism Spectrum Disorder (ASD) poses significant challenges and parents are at increased risk of psychological distress and reduced wellbeing.
Methods
We investigated the impact of having an autistic child on the wellbeing of 103 parents in Pakistan. Data were collected using the Self-Reported Questionnaire (SRQ-20), Autism Parenting Stress Index (APSI) and the WHO’s Quality of Life Brief Version.
Results
Parents reported reduced psychological health and worsened social relationships in comparison with population norms. The mean prevalence of APSI responses indicating frequent stress was 78 % overall; 91 % around core autism behaviours, 77 % around comorbid behaviours and 65 % around comorbid physical problems. SRQ-20 scores suggested that there were moderate mental distress levels in parents of children with ASD; 60 % of participants scored ≥ 8 indicating probable mental disorder. Parenting stress, including stress specific to comorbid behaviours, was modestly associated with (total) levels of (general) mental distress and with poorer physical and psychological health. Mothers reported significantly poorer psychological health and greater levels of mental distress than fathers, while quality of life markers concerning social relationships and environmental health were higher in parents of younger children with ASD.
Conclusions
Parents of children with ASD experience significant ASD-specific parental stress, psychological distress and decreased quality of life and wellbeing. These parents frequently present with reduced energy levels and depressive symptoms. This data provide a deeper understanding of the challenges faced by parents of children with ASD in Pakistan and provides a framework to guide further research and clinical practice.
期刊介绍：
Research in Autism Spectrum Disorders (RASD) publishes high quality empirical articles and reviews that contribute to a better understanding of Autism Spectrum Disorders (ASD) at all levels of description; genetic, neurobiological, cognitive, and behavioral. The primary focus of the journal is to bridge the gap between basic research at these levels, and the practical questions and difficulties that are faced by individuals with ASD and their families, as well as carers, educators and clinicians. In addition, the journal encourages submissions on topics that remain under-researched in the field. We know shamefully little about the causes and consequences of the significant language and general intellectual impairments that characterize half of all individuals with ASD. We know even less about the challenges that women with ASD face and less still about the needs of individuals with ASD as they grow older. Medical and psychological co-morbidities and the complications they bring with them for the diagnosis and treatment of ASD represents another area of relatively little research. At RASD we are committed to promoting high-quality and rigorous research on all of these issues, and we look forward to receiving many excellent submissions.
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