对于患者和专业人员来说,日常生活中与癌症相关的疼痛都是难以沟通和处理的。

IF 1.5 Q4 CLINICAL NEUROLOGY
Scandinavian Journal of Pain Pub Date : 2024-05-22 eCollection Date: 2024-01-01 DOI:10.1515/sjpain-2023-0107
Tine Ikander, Mette Raunkiær, Cecilie Voetmann, Caroline V Pedersen, Lene Jarlbaek
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引用次数: 0

摘要

研究目的本研究旨在深入了解癌症患者对癌症相关疼痛(CP)的经历、解释和管理策略:采用半结构式访谈法对 17 名 CP 患者进行了访谈。方法:采用半结构式访谈法对 17 名 CP 患者进行了访谈,并使用 Braun 和 Clarke 的主题分析法对访谈记录进行了分析。这些患者都参加了由丹麦康复与姑息治疗知识中心研究诊所安排的癌症康复课程:结果:确定了三个主题:(1) 解释 CP:患者发现很难解释他们是如何经历疼痛的。他们词不达意,经常使用 "疼痛感觉就像心脏病发作"(2)等伤人的比喻。处理 CP 的策略和障碍:医护人员(HCPs)提供的倡议被认为是不够的,病人错过了药物和非药物疼痛处理方法的指导。一些患者认为药物对他们的身体来说是不自然的,他们关注的是药物的副作用和药物对他们生活质量的影响。(3) 管理 CP 的责任:几位患者都经历过缺乏来自 HCP 的响应和承担疼痛管理责任的问题。患者表示不知道该联系谁来帮助管理他们的 CP:结论:患者在解释、理解和沟通他们的疼痛和疼痛管理方面存在困难,导致疼痛管理不足。他们也不确定谁有责任帮助他们缓解疼痛。这些结果与对慢性非癌症疼痛患者的研究结果一致。这项定性研究强调,有必要更加注重患者和医疗保健人员之间的共同语言和共同理解。它还强调了医疗保健人员承担起帮助患者控制疼痛的责任的重要性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Cancer-related pain experienced in daily life is difficult to communicate and to manage - for patients and for professionals.

Objectives: The aim of this study was to gain qualitative insight into cancer patients' experiences, explanations, and management strategies regarding their cancer-related pain (CP).

Methods: Seventeen patients with CP were interviewed using a semi-structured interview approach. Braun and Clarke's thematic analysis method was used to analyze the transcribed interviews. The patients all participated in cancer rehabilitation courses arranged by the research clinic at The Danish Knowledge Centre for Rehabilitation and Palliative Care.

Results: Three themes were identified: (1) Explaining CP: Patients found it difficult to explain how they experienced their pain. They lacked words, and they frequently used invasive metaphors such as "Pain feels like a heart attack" (2). Strategies and barriers to the management of CP: Initiatives provided by healthcare professionals (HCPs) were perceived as insufficient, and the patients missed guidance in both pharmacological and non-pharmacological approaches to pain management. Several saw medicine as unnatural for their body, and they focused on side effects and the medicine affecting their quality of life. (3) Responsibility for managing CP: A lack of responsiveness from the HCPs and taking on responsibility for pain management were experienced by several of the patients. The patients expressed uncertainty about whom to contact for help with the management of their CP.

Conclusion: The patients' difficulties in explaining, understanding, and communicating their pain and pain management contributed to insufficient pain management. They were also uncertain about who had the responsibility to help them to achieve pain relief. These results share the evidence drawn from studies on patients with chronic non-cancer pain. This qualitative study highlights the need for having more focus on a common language and shared understanding between patients and HCPs. It also underpins the importance of HCPs to assume their responsibility to help patients manage their pain conditions.

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来源期刊
Scandinavian Journal of Pain
Scandinavian Journal of Pain CLINICAL NEUROLOGY-
CiteScore
3.30
自引率
6.20%
发文量
73
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