从吉尔吉斯斯坦的角度看研究知情同意的伦理问题:定性研究。

Pub Date : 2024-05-14 DOI:10.1111/dewb.12451
Tamara Kudaibergenova
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引用次数: 0

摘要

为了确保知情同意适合亚洲少数民族社区,有必要建立一个与特定人群相关的伦理基础。我们假设,吉尔吉斯传统文化中某些独特的社群因素可能会影响个人参与研究的决定。在 Seedhouse(2005 年)的理性场理论指导下,我们对吉尔吉斯斯坦的文化专家进行了深入的定性访谈,以确定吉尔吉斯文化中知情同意决策的伦理基础。结果表明,吉尔吉斯人受其游牧文化和历史的影响,具有独特的决策风格,重视并优先考虑家庭完整性和声誉。这些结果表明,有必要采用基于社会文化敏感性的多维方法来评估同意程序的适当性。我们相信,我们的研究结果可能会对吉尔吉斯斯坦和其他中亚国家修订当地和地区研究伦理委员会的指导方针产生影响。
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The ethics of research informed consent from the Kyrgyz perspective: A qualitative study.

To ensure informed consent is tailored to ethnic Asian communities, it is necessary to establish an ethical foundation that is relevant to the specific populations. We hypothesized that certain communitarian factors unique to traditional Kyrgyz culture may influence an individual's decision to participate in research. Guided by Seedhouse's (2005) Rational Field Theory, we conducted qualitative, in-depth interviews with cultural experts in Kyrgyzstan to identify the ethical foundations of decision-making for informed consent in Kyrgyz culture. The results indicate that Kyrgyz people have a distinctive decision-making style influenced by their nomadic culture and history, which values and prioritizes family integrity and reputation. These findings indicate that a multidimensional approach based on socio-cultural sensitivities is necessary to assess the appropriateness of consent procedures. We believe our results may have implications for revising the guidelines of local and regional research ethics committees in Kyrgyzstan and other Central Asian countries.

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