"不孕不育不是选择！"：推特上关于肿瘤不孕不育治疗经济负担的对话。

IF 1.2 4区医学 Q4 ONCOLOGY

Journal of adolescent and young adult oncology Pub Date : 2024-12-01 Epub Date: 2024-05-13 DOI:10.1089/jayao.2024.0035

Stephanie L Corey, Aya Ari, Maya Sonpatki, Julia H Drizin, Jessica R Gorman

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引用次数: 0

摘要

本研究旨在评估青少年和年轻成人（AYA）癌症群体如何利用推特来讨论非同性生育护理所面临的财务挑战并倡导变革。在为期 12 周的 "青少年和青年癌症意识周"（AYA Cancer Awareness Week）期间，我们收集了与辅助生育和财务相关的推文（n = 166），并对其进行了主题分析。对话强调了高昂的医疗费用如何加剧了本已很高的情绪和社会压力。建议采取的行动包括更公平地提供及时信息、改善获得经济支持的途径，以及继续倡导政策变革，以改善获得非同步生育护理的途径。未来的研究可以探索政策变化和临床护理的潜在影响。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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"Infertility Isn't a Choice!": Conversations on Twitter about the Financial Burden of Oncofertility Care.

This study aimed to evaluate how the adolescent and young adult (AYA) cancer community utilized Twitter to discuss the financial challenges of oncofertility care and to advocate for change. Tweets related to oncofertility and finances (n = 166), collected over a 12-week time period encompassing AYA Cancer Awareness Week, were thematically analyzed. Conversations highlighted how the high cost of care contributed to already high emotional and social distress. Proposed actions included providing timely information more equitably, improving access to financial support, and continued advocacy of policy changes to improve access to oncofertility care. Future research can explore the potential impact on policy change and clinical care.

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来源期刊

Journal of adolescent and young adult oncology ONCOLOGY-

CiteScore

3.70

自引率

15.00%

发文量

114

期刊介绍： Journal of Adolescent and Young Adult Oncology (JAYAO) breaks new ground as the first cancer journal dedicated to all aspects of adolescent and young adult (AYA)-aged cancer patients and survivors. JAYAO is the only central forum for peer-reviewed articles, reviews, and research in the field, bringing together all AYA oncology stakeholders and professionals across disciplines, including clinicians, researchers, psychosocial and supportive care providers, and pediatric and adult cancer institutions.