Stephanie L Corey, Aya Ari, Maya Sonpatki, Julia H Drizin, Jessica R Gorman
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引用次数: 0
摘要
本研究旨在评估青少年和年轻成人(AYA)癌症群体如何利用推特来讨论非同性生育护理所面临的财务挑战并倡导变革。在为期 12 周的 "青少年和青年癌症意识周"(AYA Cancer Awareness Week)期间,我们收集了与辅助生育和财务相关的推文(n = 166),并对其进行了主题分析。对话强调了高昂的医疗费用如何加剧了本已很高的情绪和社会压力。建议采取的行动包括更公平地提供及时信息、改善获得经济支持的途径,以及继续倡导政策变革,以改善获得非同步生育护理的途径。未来的研究可以探索政策变化和临床护理的潜在影响。
"Infertility Isn't a Choice!": Conversations on Twitter about the Financial Burden of Oncofertility Care.
This study aimed to evaluate how the adolescent and young adult (AYA) cancer community utilized Twitter to discuss the financial challenges of oncofertility care and to advocate for change. Tweets related to oncofertility and finances (n = 166), collected over a 12-week time period encompassing AYA Cancer Awareness Week, were thematically analyzed. Conversations highlighted how the high cost of care contributed to already high emotional and social distress. Proposed actions included providing timely information more equitably, improving access to financial support, and continued advocacy of policy changes to improve access to oncofertility care. Future research can explore the potential impact on policy change and clinical care.
期刊介绍:
Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance.
Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.