Laura Gonzalo-Ciria, Ana Gascón-Catalán, Ana A Laborda-Soriano, Alba Cambra-Aliaga, María C Ruiz-Garrós, Marta Perez-de-Heredia-Torres
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Women and younger family caregivers showed greater impairment in self-care. Occupational performance, satisfaction, and QoL worsened as the number of affected activities increased.</p><p><strong>Conclusions and relevance: </strong>Caring for a family member with a disability or chronic illness has a negative impact on the SCAs of caregivers, especially among female caregivers and those of younger age. Caregiving is also associated with lower occupational performance, satisfaction, and QoL. Plain-Language Summary: Caring for a family member with a disability or chronic illness can become a health risk for caregivers, who frequently ignore their own self-care. The study results found that women and younger family caregivers showed a greater decline in self-care. This study provides information to help occupational therapists to work with family caregivers to prevent a decline in their self-care and improve their quality of life.</p>","PeriodicalId":48317,"journal":{"name":"American Journal of Occupational Therapy","volume":null,"pages":null},"PeriodicalIF":2.1000,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Difficulties Fulfilling Self-Care Needs Among Family Caregivers: An Observational Study.\",\"authors\":\"Laura Gonzalo-Ciria, Ana Gascón-Catalán, Ana A Laborda-Soriano, Alba Cambra-Aliaga, María C Ruiz-Garrós, Marta Perez-de-Heredia-Torres\",\"doi\":\"10.5014/ajot.2024.050528\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Importance: </strong>Assuming the care of a family member with a disability or chronic illness constitutes a health risk factor for caregivers, who frequently overlook their own self-care.</p><p><strong>Objective: </strong>To analyze the self-care activities (SCAs) among caregivers of a family member with a disability or chronic illness and assess the impact on their satisfaction and quality of life (QoL).</p><p><strong>Design: </strong>Descriptive, cross-sectional, analytic study.</p><p><strong>Setting: </strong>Community.</p><p><strong>Participants: </strong>Five hundred caregivers of family members with a disability or chronic illness in the city of Zaragoza, Spain.</p><p><strong>Outcomes and measures: </strong>The family caregivers' occupational performance and satisfaction were assessed with the Canadian Occupational Performance Measure, and their QoL was assessed with the World Health Organization-Quality of Life.</p><p><strong>Results: </strong>In total, 32.8% of family caregivers had difficulty in all activities related to self-care, 46.6% had difficulty sleeping and resting, 31.6% had difficulty receiving health-related treatments, and 31.2% had difficulty with physical exercise. Women and younger family caregivers showed greater impairment in self-care. Occupational performance, satisfaction, and QoL worsened as the number of affected activities increased.</p><p><strong>Conclusions and relevance: </strong>Caring for a family member with a disability or chronic illness has a negative impact on the SCAs of caregivers, especially among female caregivers and those of younger age. Caregiving is also associated with lower occupational performance, satisfaction, and QoL. Plain-Language Summary: Caring for a family member with a disability or chronic illness can become a health risk for caregivers, who frequently ignore their own self-care. The study results found that women and younger family caregivers showed a greater decline in self-care. 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引用次数: 0
摘要
重要性：照顾患有残疾或慢性疾病的家庭成员是照顾者的一个健康风险因素，因为他们经常忽视自己的自我保健：分析残疾或慢性病家庭成员照顾者的自我护理活动（SCA），并评估其对照顾者满意度和生活质量（QoL）的影响：环境：社区：环境：社区：结果与测量：结果和测量方法：用加拿大职业表现测量法评估家庭照顾者的职业表现和满意度，用世界卫生组织生活质量测量法评估他们的生活质量：共有 32.8% 的家庭照顾者在所有与自我照顾相关的活动中遇到困难，46.6% 的家庭照顾者在睡眠和休息方面遇到困难，31.6% 的家庭照顾者在接受与健康相关的治疗方面遇到困难，31.2% 的家庭照顾者在体育锻炼方面遇到困难。女性和年轻的家庭照顾者在自我照顾方面表现出更大的障碍。随着受影响活动数量的增加，职业表现、满意度和 QoL 也随之恶化：照顾患有残疾或慢性疾病的家庭成员会对照顾者的 SCA 产生负面影响，尤其是女性照顾者和年轻照顾者。护理还与较低的职业表现、满意度和 QoL 有关。通俗易懂的摘要：照顾患有残疾或慢性疾病的家庭成员可能会给照顾者带来健康风险，因为他们经常会忽视自我保健。研究结果发现，女性和年轻的家庭照顾者在自我照顾方面的能力下降幅度更大。本研究提供的信息有助于职业治疗师与家庭照顾者合作，防止他们的自理能力下降，提高他们的生活质量。
Difficulties Fulfilling Self-Care Needs Among Family Caregivers: An Observational Study.
Importance: Assuming the care of a family member with a disability or chronic illness constitutes a health risk factor for caregivers, who frequently overlook their own self-care.
Objective: To analyze the self-care activities (SCAs) among caregivers of a family member with a disability or chronic illness and assess the impact on their satisfaction and quality of life (QoL).
Participants: Five hundred caregivers of family members with a disability or chronic illness in the city of Zaragoza, Spain.
Outcomes and measures: The family caregivers' occupational performance and satisfaction were assessed with the Canadian Occupational Performance Measure, and their QoL was assessed with the World Health Organization-Quality of Life.
Results: In total, 32.8% of family caregivers had difficulty in all activities related to self-care, 46.6% had difficulty sleeping and resting, 31.6% had difficulty receiving health-related treatments, and 31.2% had difficulty with physical exercise. Women and younger family caregivers showed greater impairment in self-care. Occupational performance, satisfaction, and QoL worsened as the number of affected activities increased.
Conclusions and relevance: Caring for a family member with a disability or chronic illness has a negative impact on the SCAs of caregivers, especially among female caregivers and those of younger age. Caregiving is also associated with lower occupational performance, satisfaction, and QoL. Plain-Language Summary: Caring for a family member with a disability or chronic illness can become a health risk for caregivers, who frequently ignore their own self-care. The study results found that women and younger family caregivers showed a greater decline in self-care. This study provides information to help occupational therapists to work with family caregivers to prevent a decline in their self-care and improve their quality of life.
期刊介绍：
The American Journal of Occupational Therapy (AJOT) is an official publication of the American Occupational Therapy Association, Inc. and is published 6 times per year. This peer reviewed journal focuses on research, practice, and health care issues in the field of occupational therapy. AOTA members receive 6 issues of AJOT per year and have online access to archived abstracts and full-text articles. Nonmembers may view abstracts online but must purchase full-text articles.
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