开发基于网络的教育模块,提高癌症护理人员的参与度:针对临床医生、患者和护理人员的电子三联肿瘤学(eTRIO)模块的设计和用户体验评估。

IF 3.2 Q1 EDUCATION, SCIENTIFIC DISCIPLINES
Rebekah Laidsaar-Powell, Sarah Giunta, Phyllis Butow, Rachael Keast, Bogda Koczwara, Judy Kay, Michael Jefford, Sandra Turner, Christobel Saunders, Penelope Schofield, Frances Boyle, Patsy Yates, Kate White, Annie Miller, Zoe Butt, Melanie Bonnaudet, Ilona Juraskova
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引用次数: 0

摘要

背景:照护者通常在癌症护理中扮演着重要角色。然而,许多照护者表示,他们在为患者提供支持时感到力不从心、能力不足。我们小组发布了循证指南(三联肿瘤学[TRIO]指南),以改善肿瘤临床医生与照护者的接触以及对涉及照护者的挑战性情况的管理:为促进 TRIO 指南在临床实践中的实施,我们旨在为肿瘤临床医生(e-Triadic Oncology [eTRIO])、癌症患者和照护者(eTRIO for Patients and Carers [eTRIO-pc])开发、反复改进和测试一套基于证据的互动式网络教育模块。这些模块旨在改善癌症管理环境中护理人员的参与、沟通和共同决策:eTRIO 教育模块基于广泛的研究,包括系统综述、定性访谈和咨询分析。在以人为本的方法指导下,由学术和临床专家(人数=13)和消费者(人数=5)组成的专家顾问团对模块内容和设计进行了审查;内容和设计不断得到反复改进。其他临床医生(5 人)、患者(3 人)和护理人员(3 人)对模块进行了用户体验测试(包括 "思考-朗读 "访谈和系统可用性量表 [SUS]):最终的临床医生模块包括 14 个部分,大约需要 1.5 到 2 个小时完成,涵盖的主题包括:照顾者包容性沟通和实践;支持照顾者的需求;管理照顾者的主导地位、愤怒和患者与照顾者之间的意愿冲突。5 名临床医生对该模块的可用性进行了评分,平均 SUS 得分为 75 分(标准差为 5.3),可解释为 "良好"。临床医生通常希望信息的格式简洁明了,分成 "可点心 "的小部分,以便在中断时可以很容易地重新开始。照护者模块共有 11 个部分,大约需要 1.5 个小时完成,包括照护者的重要性、照护者在会诊中的角色以及为患者辩护等主题。患者模块是对照护者模块相关部分的改编,包括 7 个部分,需要 1 小时完成。6 名患者和照护者对 SUS 的平均评分为 78 分(标准差为 16.2),这被解释为 "良好"。互动活动、临床小故事视频和反思性学习练习被纳入所有模块。患者和护理者消费顾问主张在整个模块中采用感同身受的内容和语气,模块界面易于阅读和浏览:eTRIO 模块套件采用以人为本的设计方法进行严格开发,以满足临床医生、患者和护理人员独特的信息需求和学习要求,目的是提高护理人员参与癌症咨询和癌症护理的效率和支持性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Development of Web-Based Education Modules to Improve Carer Engagement in Cancer Care: Design and User Experience Evaluation of the e-Triadic Oncology (eTRIO) Modules for Clinicians, Patients, and Carers.

Background: Carers often assume key roles in cancer care. However, many carers report feeling disempowered and ill-equipped to support patients. Our group published evidence-based guidelines (the Triadic Oncology [TRIO] Guidelines) to improve oncology clinician engagement with carers and the management of challenging situations involving carers.

Objective: To facilitate implementation of the TRIO Guidelines in clinical practice, we aimed to develop, iteratively refine, and conduct user testing of a suite of evidence-based and interactive web-based education modules for oncology clinicians (e-Triadic Oncology [eTRIO]), patients with cancer, and carers (eTRIO for Patients and Carers [eTRIO-pc]). These were designed to improve carer involvement, communication, and shared decision-making in the cancer management setting.

Methods: The eTRIO education modules were based on extensive research, including systematic reviews, qualitative interviews, and consultation analyses. Guided by the person-based approach, module content and design were reviewed by an expert advisory group comprising academic and clinical experts (n=13) and consumers (n=5); content and design were continuously and iteratively refined. User experience testing (including "think-aloud" interviews and administration of the System Usability Scale [SUS]) of the modules was completed by additional clinicians (n=5), patients (n=3), and carers (n=3).

Results: The final clinician module comprises 14 sections, requires approximately 1.5 to 2 hours to complete, and covers topics such as carer-inclusive communication and practices; supporting carer needs; and managing carer dominance, anger, and conflicting patient-carer wishes. The usability of the module was rated by 5 clinicians, with a mean SUS score of 75 (SD 5.3), which is interpreted as good. Clinicians often desired information in a concise format, divided into small "snackable" sections that could be easily recommenced if they were interrupted. The carer module features 11 sections; requires approximately 1.5 hours to complete; and includes topics such as the importance of carers, carer roles during consultations, and advocating for the patient. The patient module is an adaptation of the relevant carer module sections, comprising 7 sections and requiring 1 hour to complete. The average SUS score as rated by 6 patients and carers was 78 (SD 16.2), which is interpreted as good. Interactive activities, clinical vignette videos, and reflective learning exercises are incorporated into all modules. Patient and carer consumer advisers advocated for empathetic content and tone throughout their modules, with an easy-to-read and navigable module interface.

Conclusions: The eTRIO suite of modules were rigorously developed using a person-based design methodology to meet the unique information needs and learning requirements of clinicians, patients, and carers, with the goal of improving effective and supportive carer involvement in cancer consultations and cancer care.

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来源期刊
JMIR Medical Education
JMIR Medical Education Social Sciences-Education
CiteScore
6.90
自引率
5.60%
发文量
54
审稿时长
8 weeks
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