用他们自己的话说：帕金森病患者在在线症状数据库中表达的恐惧。

IF 4 3区医学 Q2 NEUROSCIENCES

Journal of Parkinson's disease Pub Date : 2024-01-01 DOI:10.3233/JPD-230305

Sneha Mantri, Jennifer L Purks, Daniel Kinel, Lakshmi Arbatti, Abhishek Hosamath, Allison Allen, Amy Amara, Karen Anderson, Lana M Chahine, Shirley Eberly, Soania Mathur, David Standaert, David Oakes, Daniel Weintraub, Ira Shoulson, Connie Marras

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引用次数: 0

摘要

帕金森病（Parkinson's disease，PD）给患者带来了巨大的心理负担。我们利用帕金森病患者报告最多五个 "最令人烦恼的问题 "的回复数据库，确定了 225 个基于恐惧的口头陈述，并采用框架法将其分为 26 个类别。常见的恐惧包括病情发展的不确定性（60 人，占 26.7%）、对未来认知障碍的恐惧（24 人，占 10.7%）以及对成为他人负担的恐惧（23 人，占 10.2%）。帕金森病患者的恐惧心理非常广泛，可能是该病最令人烦恼的方面。这些数据可用于设计干预措施，以减轻帕金森病的社会心理负担。

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In Their Own Words: Fears Expressed by People with Parkinson's Disease in an Online Symptom Database.

Parkinson's disease (PD) carries substantial psychosocial burden. Using a database of responses by people with PD reporting up to five "most bothersome problems," we identified 225 fear-based verbatims, which were organized using the framework method into 26 categories. Commonly-reported fears included uncertainty of progression (n = 60, 26.7%), fear of future cognitive impairment (n = 24, 10.7%) and fear of becoming a burden on others (n = 23, 10.2%). Fears in PD are wide-ranging and can constitute the most bothersome aspect of the condition. These data can be used to design interventions to lessen the psychosocial burden of PD.

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来源期刊

Journal of Parkinson's disease NEUROSCIENCES-

CiteScore

8.40

自引率

5.80%

发文量

338

审稿时长

>12 weeks

期刊介绍： The Journal of Parkinson''s Disease (JPD) publishes original research in basic science, translational research and clinical medicine in Parkinson’s disease in cooperation with the Journal of Alzheimer''s Disease. It features a first class Editorial Board and provides rigorous peer review and rapid online publication.