Melanie Cusso, Ian Cooper, Kelly Beer, Chiara Naseri, Simon Garbellini, Althea Doverty, Geoff Corcoran, Merrilee Needham
{"title":"以消费者为导向，对澳大利亚肌炎患者的辅助技术使用情况和感知价值进行评估","authors":"Melanie Cusso, Ian Cooper, Kelly Beer, Chiara Naseri, Simon Garbellini, Althea Doverty, Geoff Corcoran, Merrilee Needham","doi":"10.1111/1440-1630.12954","DOIUrl":null,"url":null,"abstract":"<div>\n \n \n <section>\n \n <h3> Introduction</h3>\n \n <p>Idiopathic inflammatory myopathies (known as ‘myositis’) are a group of rare sporadic inflammatory muscle disorders that significantly impact function and quality of life. There are no standardised approaches in the use of assistive technologies in myositis. This study was initiated to investigate current use and perceived value of assistive technology (AT) by people with myositis.</p>\n </section>\n \n <section>\n \n <h3> Methods</h3>\n \n <p>A cross-sectional online questionnaire (Qualtrics) was designed to capture information regarding AT use and perceived value and demographic information from people with myositis across Australia. The questionnaire was distributed via the Myositis Association of Australia and specialist myositis clinics. Participants were asked to identify which AT items they owned and how frequently the item was used and to rate the ‘usefulness’ of those items. Information was also collected on participants' engagement with health professionals regarding assistive technologies.</p>\n </section>\n \n <section>\n \n <h3> Consumer and community involvement</h3>\n \n <p>Consumer involvement via the Myositis Research Consumer Panel identified a knowledge gap regarding AT. The questionnaire was designed with consumer input and review.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>One hundred two people (102) with myositis completed the questionnaire. One hundred (100) participants owned at least one AT device, with a median of 12.5 items and a maximum of 65 items. The most used devices were associated with toileting, personal care and mobility. Participants rated AT devices relating to environmental support, sleeping, seating and body support as most useful. There was a positive correlation between disease duration and number of devices used (<i>r</i><sub><i>2</i></sub> = 0.248, <i>p</i> = 0.012). Majority of participants (75.5%) were interested in talking to health professionals about AT; however, only 50% had done so.</p>\n </section>\n \n <section>\n \n <h3> Conclusion</h3>\n \n <p>AT device usage is high among people with myositis, with most items deemed to be useful. Greater occupational therapy input into recommendations and potential funding options may improve knowledge and access to AT.</p>\n </section>\n </div>","PeriodicalId":55418,"journal":{"name":"Australian Occupational Therapy Journal","volume":null,"pages":null},"PeriodicalIF":1.6000,"publicationDate":"2024-04-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/1440-1630.12954","citationCount":"0","resultStr":"{\"title\":\"Consumer-driven evaluation of assistive technology usage and perceived value in people with myositis in Australia\",\"authors\":\"Melanie Cusso, Ian Cooper, Kelly Beer, Chiara Naseri, Simon Garbellini, Althea Doverty, Geoff Corcoran, Merrilee Needham\",\"doi\":\"10.1111/1440-1630.12954\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div>\\n \\n \\n <section>\\n \\n <h3> Introduction</h3>\\n \\n <p>Idiopathic inflammatory myopathies (known as ‘myositis’) are a group of rare sporadic inflammatory muscle disorders that significantly impact function and quality of life. There are no standardised approaches in the use of assistive technologies in myositis. This study was initiated to investigate current use and perceived value of assistive technology (AT) by people with myositis.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Methods</h3>\\n \\n <p>A cross-sectional online questionnaire (Qualtrics) was designed to capture information regarding AT use and perceived value and demographic information from people with myositis across Australia. The questionnaire was distributed via the Myositis Association of Australia and specialist myositis clinics. Participants were asked to identify which AT items they owned and how frequently the item was used and to rate the ‘usefulness’ of those items. Information was also collected on participants' engagement with health professionals regarding assistive technologies.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Consumer and community involvement</h3>\\n \\n <p>Consumer involvement via the Myositis Research Consumer Panel identified a knowledge gap regarding AT. The questionnaire was designed with consumer input and review.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Results</h3>\\n \\n <p>One hundred two people (102) with myositis completed the questionnaire. One hundred (100) participants owned at least one AT device, with a median of 12.5 items and a maximum of 65 items. The most used devices were associated with toileting, personal care and mobility. Participants rated AT devices relating to environmental support, sleeping, seating and body support as most useful. There was a positive correlation between disease duration and number of devices used (<i>r</i><sub><i>2</i></sub> = 0.248, <i>p</i> = 0.012). 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Consumer-driven evaluation of assistive technology usage and perceived value in people with myositis in Australia
Introduction
Idiopathic inflammatory myopathies (known as ‘myositis’) are a group of rare sporadic inflammatory muscle disorders that significantly impact function and quality of life. There are no standardised approaches in the use of assistive technologies in myositis. This study was initiated to investigate current use and perceived value of assistive technology (AT) by people with myositis.
Methods
A cross-sectional online questionnaire (Qualtrics) was designed to capture information regarding AT use and perceived value and demographic information from people with myositis across Australia. The questionnaire was distributed via the Myositis Association of Australia and specialist myositis clinics. Participants were asked to identify which AT items they owned and how frequently the item was used and to rate the ‘usefulness’ of those items. Information was also collected on participants' engagement with health professionals regarding assistive technologies.
Consumer and community involvement
Consumer involvement via the Myositis Research Consumer Panel identified a knowledge gap regarding AT. The questionnaire was designed with consumer input and review.
Results
One hundred two people (102) with myositis completed the questionnaire. One hundred (100) participants owned at least one AT device, with a median of 12.5 items and a maximum of 65 items. The most used devices were associated with toileting, personal care and mobility. Participants rated AT devices relating to environmental support, sleeping, seating and body support as most useful. There was a positive correlation between disease duration and number of devices used (r2 = 0.248, p = 0.012). Majority of participants (75.5%) were interested in talking to health professionals about AT; however, only 50% had done so.
Conclusion
AT device usage is high among people with myositis, with most items deemed to be useful. Greater occupational therapy input into recommendations and potential funding options may improve knowledge and access to AT.
期刊介绍：
The Australian Occupational Therapy Journal is a leading international peer reviewed publication presenting influential, high quality innovative scholarship and research relevant to occupational therapy. The aim of the journal is to be a leader in the dissemination of scholarship and evidence to substantiate, influence and shape policy and occupational therapy practice locally and globally. The journal publishes empirical studies, theoretical papers, and reviews. Preference will be given to manuscripts that have a sound theoretical basis, methodological rigour with sufficient scope and scale to make important new contributions to the occupational therapy body of knowledge. AOTJ does not publish protocols for any study design
The journal will consider multidisciplinary or interprofessional studies that include occupational therapy, occupational therapists or occupational therapy students, so long as ‘key points’ highlight the specific implications for occupational therapy, occupational therapists and/or occupational therapy students and/or consumers.
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