{"title":"儿科残余阻塞性睡眠呼吸暂停的家长在医疗服务中的经验:探索性定性描述研究","authors":"Nathalia Carolina Fernandes Fagundes, Rochelle Young, Carlos Flores‐Mir, Giseon Heo, Arnaldo Perez","doi":"10.1111/ocr.12789","DOIUrl":null,"url":null,"abstract":"ObjectivesTo explore parents' experiences and perceptions regarding engagement in health services for managing residual paediatric obstructive sleep apnoea (OSA) across levels of care.MethodsQualitative description guided study design. Data were collected through semi‐structured interviews with parents of children diagnosed with residual OSA at a university‐based sleep clinic. The relevant literature informed the interview guide and was piloted before data collection. Inductive, manifest content analysis was used to describe parents' perceptions and experiences using data‐driven categories and sub‐categories. Several strategies were employed to ensure rigour in this study.ResultsEight interviews were conducted. Parents' views were organized into five categories: awareness of the sleep issue, interaction with non‐sleep specialists, interaction with sleep specialists, interaction with dental professionals, and further actions and support. Parents reported several engagement issues due to their interactions with different care providers. These issues included having to personally identify and raise the sleep problem, feeling that care providers did not take this problem seriously, waiting for an extended period to be referred for sleep services, and receiving conflicting or insufficient treatment recommendations. Overall, parents perceived that their actions and the services received across levels of care were not effective enough to address paediatric OSA.ConclusionBased on this exploratory qualitative descriptive research, along with developing evidence‐based clinical guidelines for paediatric OSA screening and management tailored to different levels of care, strategies intended to improve the engagement of patients and care providers in addressing paediatric OSA should be developed and empirically tested.","PeriodicalId":19652,"journal":{"name":"Orthodontics & Craniofacial Research","volume":"111 1","pages":""},"PeriodicalIF":2.4000,"publicationDate":"2024-04-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Parental experiences in navigating health services for paediatric residual obstructive sleep apnoea: An exploratory qualitative descriptive study\",\"authors\":\"Nathalia Carolina Fernandes Fagundes, Rochelle Young, Carlos Flores‐Mir, Giseon Heo, Arnaldo Perez\",\"doi\":\"10.1111/ocr.12789\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"ObjectivesTo explore parents' experiences and perceptions regarding engagement in health services for managing residual paediatric obstructive sleep apnoea (OSA) across levels of care.MethodsQualitative description guided study design. Data were collected through semi‐structured interviews with parents of children diagnosed with residual OSA at a university‐based sleep clinic. The relevant literature informed the interview guide and was piloted before data collection. Inductive, manifest content analysis was used to describe parents' perceptions and experiences using data‐driven categories and sub‐categories. Several strategies were employed to ensure rigour in this study.ResultsEight interviews were conducted. Parents' views were organized into five categories: awareness of the sleep issue, interaction with non‐sleep specialists, interaction with sleep specialists, interaction with dental professionals, and further actions and support. Parents reported several engagement issues due to their interactions with different care providers. These issues included having to personally identify and raise the sleep problem, feeling that care providers did not take this problem seriously, waiting for an extended period to be referred for sleep services, and receiving conflicting or insufficient treatment recommendations. Overall, parents perceived that their actions and the services received across levels of care were not effective enough to address paediatric OSA.ConclusionBased on this exploratory qualitative descriptive research, along with developing evidence‐based clinical guidelines for paediatric OSA screening and management tailored to different levels of care, strategies intended to improve the engagement of patients and care providers in addressing paediatric OSA should be developed and empirically tested.\",\"PeriodicalId\":19652,\"journal\":{\"name\":\"Orthodontics & Craniofacial Research\",\"volume\":\"111 1\",\"pages\":\"\"},\"PeriodicalIF\":2.4000,\"publicationDate\":\"2024-04-09\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Orthodontics & Craniofacial Research\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1111/ocr.12789\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"DENTISTRY, ORAL SURGERY & MEDICINE\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Orthodontics & Craniofacial Research","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1111/ocr.12789","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"DENTISTRY, ORAL SURGERY & MEDICINE","Score":null,"Total":0}
引用次数: 0
摘要
目的探讨家长在参与医疗服务管理残余儿科阻塞性睡眠呼吸暂停(OSA)方面的经验和看法。方法定性描述指导研究设计。通过半结构式访谈收集数据,访谈对象是在大学睡眠诊所被诊断为残余 OSA 患儿的家长。相关文献为访谈指南提供了参考,并在数据收集前进行了试用。采用归纳式显式内容分析,利用数据驱动的类别和子类别来描述家长的看法和经验。为确保本研究的严谨性,我们采用了多种策略。家长的观点分为五类:对睡眠问题的认识、与非睡眠专家的互动、与睡眠专家的互动、与牙科专业人士的互动以及进一步的行动和支持。家长们报告了他们与不同医疗服务提供者互动时遇到的几个参与问题。这些问题包括:必须亲自确认和提出睡眠问题、感觉医疗服务提供者没有认真对待这一问题、等待转介睡眠服务的时间过长,以及收到的治疗建议相互矛盾或不充分。总之,家长们认为他们的行动和各级护理机构提供的服务不足以有效解决小儿 OSA 问题。结论根据这项探索性定性描述研究,在为小儿 OSA 筛查和管理制定适合不同护理级别的循证临床指南的同时,应制定旨在提高患者和护理提供者参与解决小儿 OSA 问题的策略,并进行实证测试。
Parental experiences in navigating health services for paediatric residual obstructive sleep apnoea: An exploratory qualitative descriptive study
ObjectivesTo explore parents' experiences and perceptions regarding engagement in health services for managing residual paediatric obstructive sleep apnoea (OSA) across levels of care.MethodsQualitative description guided study design. Data were collected through semi‐structured interviews with parents of children diagnosed with residual OSA at a university‐based sleep clinic. The relevant literature informed the interview guide and was piloted before data collection. Inductive, manifest content analysis was used to describe parents' perceptions and experiences using data‐driven categories and sub‐categories. Several strategies were employed to ensure rigour in this study.ResultsEight interviews were conducted. Parents' views were organized into five categories: awareness of the sleep issue, interaction with non‐sleep specialists, interaction with sleep specialists, interaction with dental professionals, and further actions and support. Parents reported several engagement issues due to their interactions with different care providers. These issues included having to personally identify and raise the sleep problem, feeling that care providers did not take this problem seriously, waiting for an extended period to be referred for sleep services, and receiving conflicting or insufficient treatment recommendations. Overall, parents perceived that their actions and the services received across levels of care were not effective enough to address paediatric OSA.ConclusionBased on this exploratory qualitative descriptive research, along with developing evidence‐based clinical guidelines for paediatric OSA screening and management tailored to different levels of care, strategies intended to improve the engagement of patients and care providers in addressing paediatric OSA should be developed and empirically tested.
期刊介绍:
Orthodontics & Craniofacial Research - Genes, Growth and Development is published to serve its readers as an international forum for the presentation and critical discussion of issues pertinent to the advancement of the specialty of orthodontics and the evidence-based knowledge of craniofacial growth and development. This forum is based on scientifically supported information, but also includes minority and conflicting opinions.
The objective of the journal is to facilitate effective communication between the research community and practicing clinicians. Original papers of high scientific quality that report the findings of clinical trials, clinical epidemiology, and novel therapeutic or diagnostic approaches are appropriate submissions. Similarly, we welcome papers in genetics, developmental biology, syndromology, surgery, speech and hearing, and other biomedical disciplines related to clinical orthodontics and normal and abnormal craniofacial growth and development. In addition to original and basic research, the journal publishes concise reviews, case reports of substantial value, invited essays, letters, and announcements.
The journal is published quarterly. The review of submitted papers will be coordinated by the editor and members of the editorial board. It is policy to review manuscripts within 3 to 4 weeks of receipt and to publish within 3 to 6 months of acceptance.