Anne Kelemen LICSW, SEP , Hunter Groninger MD, FAAHPM , Edilma L. Yearwood PhD, RN, FAAN , Casey French MS , Cindy Bither NP , Anirudh Rao MD , Kelley M. Anderson PhD, FNP, CHFN
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The semi-structured interviews were conducted until data saturation was reached and relevant themes emerged.</p></div><div><h3>Results</h3><p>This qualitative study was conducted to understand the experience of family members before, during and after the patient underwent LVAD deactivation, including their perceptions of engagement with the healthcare team. Analysis revealed six overarching themes from the experience, including 1) hope for survival, 2) communication, 3) spirituality and faith, 4) absence of physical suffering, 5) positive relationships with staff, 6) post-death care needs.</p></div><div><h3>Conclusion</h3><p>Bereaved family members of patients undergoing LVAD deactivation have unique lived experiences and concerns. This study highlights the importance of effective communication not only near end-of-life but throughout the LVAD experience. While the positive relationships with staff and the absence of physical suffering were strengths identified by bereaved caregivers, there is an opportunity for improvement, particularly during the decision-making and post-death periods.</p></div>","PeriodicalId":55064,"journal":{"name":"Heart & Lung","volume":null,"pages":null},"PeriodicalIF":2.4000,"publicationDate":"2024-04-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"The experiences among bereaved family members after a left ventricular assist device (LVAD) deactivation\",\"authors\":\"Anne Kelemen LICSW, SEP , Hunter Groninger MD, FAAHPM , Edilma L. Yearwood PhD, RN, FAAN , Casey French MS , Cindy Bither NP , Anirudh Rao MD , Kelley M. Anderson PhD, FNP, CHFN\",\"doi\":\"10.1016/j.hrtlng.2024.04.004\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><h3>Background</h3><p>The use of left ventricular assist devices (LVADs) is increasing with an estimated 2500 devices implanted each year. When burdens of the LVAD outweigh benefits, most individuals with LVADs will undergo deactivation in the hospital setting. While the decision to deactivate an LVAD is considered an ethical practice, little is known about the experience and needs of bereaved family members.</p></div><div><h3>Objective</h3><p>To investigate the experiences of bereaved family members of patients who died following LVAD deactivation.</p></div><div><h3>Methods</h3><p>In this qualitative study, 11 family members of patients who underwent LVAD deactivation were interviewed. The semi-structured interviews were conducted until data saturation was reached and relevant themes emerged.</p></div><div><h3>Results</h3><p>This qualitative study was conducted to understand the experience of family members before, during and after the patient underwent LVAD deactivation, including their perceptions of engagement with the healthcare team. Analysis revealed six overarching themes from the experience, including 1) hope for survival, 2) communication, 3) spirituality and faith, 4) absence of physical suffering, 5) positive relationships with staff, 6) post-death care needs.</p></div><div><h3>Conclusion</h3><p>Bereaved family members of patients undergoing LVAD deactivation have unique lived experiences and concerns. This study highlights the importance of effective communication not only near end-of-life but throughout the LVAD experience. 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引用次数: 0
摘要
背景左心室辅助装置(LVAD)的使用正在增加,估计每年植入 2500 台。当 LVAD 的负担超过其益处时,大多数使用 LVAD 的患者将在医院环境中停用 LVAD。虽然停用 LVAD 的决定被认为是一种道德行为,但人们对其遗属的经历和需求却知之甚少。 Objective To investigate the experiences of bereaved family members of patients who died after LVAD deactivation.Methods 在这项定性研究中,我们采访了 11 位停用 LVAD 患者的家属。结果这项定性研究旨在了解患者家属在停用 LVAD 之前、期间和之后的经历,包括他们对与医疗团队合作的看法。分析揭示了六大主题,包括:1)生存的希望;2)沟通;3)灵性和信仰;4)没有身体上的痛苦;5)与工作人员的积极关系;6)死亡后的护理需求。本研究强调了有效沟通的重要性,不仅在临终时如此,在整个 LVAD 使用过程中也是如此。虽然与医护人员的积极关系和无身体痛苦是遗属照顾者发现的优点,但仍有改进的余地,尤其是在决策和死亡后阶段。
The experiences among bereaved family members after a left ventricular assist device (LVAD) deactivation
Background
The use of left ventricular assist devices (LVADs) is increasing with an estimated 2500 devices implanted each year. When burdens of the LVAD outweigh benefits, most individuals with LVADs will undergo deactivation in the hospital setting. While the decision to deactivate an LVAD is considered an ethical practice, little is known about the experience and needs of bereaved family members.
Objective
To investigate the experiences of bereaved family members of patients who died following LVAD deactivation.
Methods
In this qualitative study, 11 family members of patients who underwent LVAD deactivation were interviewed. The semi-structured interviews were conducted until data saturation was reached and relevant themes emerged.
Results
This qualitative study was conducted to understand the experience of family members before, during and after the patient underwent LVAD deactivation, including their perceptions of engagement with the healthcare team. Analysis revealed six overarching themes from the experience, including 1) hope for survival, 2) communication, 3) spirituality and faith, 4) absence of physical suffering, 5) positive relationships with staff, 6) post-death care needs.
Conclusion
Bereaved family members of patients undergoing LVAD deactivation have unique lived experiences and concerns. This study highlights the importance of effective communication not only near end-of-life but throughout the LVAD experience. While the positive relationships with staff and the absence of physical suffering were strengths identified by bereaved caregivers, there is an opportunity for improvement, particularly during the decision-making and post-death periods.
期刊介绍:
Heart & Lung: The Journal of Cardiopulmonary and Acute Care, the official publication of The American Association of Heart Failure Nurses, presents original, peer-reviewed articles on techniques, advances, investigations, and observations related to the care of patients with acute and critical illness and patients with chronic cardiac or pulmonary disorders.
The Journal''s acute care articles focus on the care of hospitalized patients, including those in the critical and acute care settings. Because most patients who are hospitalized in acute and critical care settings have chronic conditions, we are also interested in the chronically critically ill, the care of patients with chronic cardiopulmonary disorders, their rehabilitation, and disease prevention. The Journal''s heart failure articles focus on all aspects of the care of patients with this condition. Manuscripts that are relevant to populations across the human lifespan are welcome.