将使用辅助和替代性交流手段的人纳入定性研究:你能听到我们说话吗?

IF 3.9 2区 社会学 Q1 SOCIAL SCIENCES, INTERDISCIPLINARY
Megan Walsh, Izzi Harman, Penny Manning, Brenton Ponza, Shirley Wong, Brodie Shaw, Darryl Sellwood, Kate Anderson, D. Reddihough, Margaret Wallen
{"title":"将使用辅助和替代性交流手段的人纳入定性研究:你能听到我们说话吗?","authors":"Megan Walsh, Izzi Harman, Penny Manning, Brenton Ponza, Shirley Wong, Brodie Shaw, Darryl Sellwood, Kate Anderson, D. Reddihough, Margaret Wallen","doi":"10.1177/16094069241234190","DOIUrl":null,"url":null,"abstract":"People who use augmentative and alternative communication (AAC) are frequently excluded from research, yet their voices can significantly enhance the applicability, acceptability, and translation of qualitative research findings. Accessible and adapted research methods welcome and empower participants who use AAC, and enable meaningful involvement. In this article, we describe the collaborative development of a framework to conceptualise inclusive research and aspects of an accompanying inclusive research toolkit. The framework identifies balancing power as a critical factor, primarily achieved by ensuring that research methods and materials are accessible to people who use AAC. We propose that this is achieved through three interacting elements: collaboration with AAC users, skills and knowledge to achieve accessibility, and ensuring adequate time is available to achieve involvement. We identify five areas where applying these elements has impact for AAC users: recruiting AAC users, working with communication supporters, adapting research methods, securing ethics approval, and consent. In presenting the framework, we demonstrate how qualitative researchers can foster a research environment that values and actively includes AAC users, ultimately advancing the field towards more comprehensive and inclusive research practices. While our work is situated in the cerebral palsy and AAC communities, our proposed framework and toolkit can be applied by researchers seeking perspectives from individuals with communication disabilities more broadly. We have created a corresponding plain language video of this article as an additional means of optimising accessibility of the content. See supplemental material .","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":null,"pages":null},"PeriodicalIF":3.9000,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Including People Who Use Augmentative and Alternative Communication in Qualitative Research: Can You Hear Us?\",\"authors\":\"Megan Walsh, Izzi Harman, Penny Manning, Brenton Ponza, Shirley Wong, Brodie Shaw, Darryl Sellwood, Kate Anderson, D. Reddihough, Margaret Wallen\",\"doi\":\"10.1177/16094069241234190\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"People who use augmentative and alternative communication (AAC) are frequently excluded from research, yet their voices can significantly enhance the applicability, acceptability, and translation of qualitative research findings. Accessible and adapted research methods welcome and empower participants who use AAC, and enable meaningful involvement. In this article, we describe the collaborative development of a framework to conceptualise inclusive research and aspects of an accompanying inclusive research toolkit. The framework identifies balancing power as a critical factor, primarily achieved by ensuring that research methods and materials are accessible to people who use AAC. We propose that this is achieved through three interacting elements: collaboration with AAC users, skills and knowledge to achieve accessibility, and ensuring adequate time is available to achieve involvement. We identify five areas where applying these elements has impact for AAC users: recruiting AAC users, working with communication supporters, adapting research methods, securing ethics approval, and consent. In presenting the framework, we demonstrate how qualitative researchers can foster a research environment that values and actively includes AAC users, ultimately advancing the field towards more comprehensive and inclusive research practices. While our work is situated in the cerebral palsy and AAC communities, our proposed framework and toolkit can be applied by researchers seeking perspectives from individuals with communication disabilities more broadly. We have created a corresponding plain language video of this article as an additional means of optimising accessibility of the content. See supplemental material .\",\"PeriodicalId\":48220,\"journal\":{\"name\":\"International Journal of Qualitative Methods\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":3.9000,\"publicationDate\":\"2024-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"International Journal of Qualitative Methods\",\"FirstCategoryId\":\"90\",\"ListUrlMain\":\"https://doi.org/10.1177/16094069241234190\",\"RegionNum\":2,\"RegionCategory\":\"社会学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"SOCIAL SCIENCES, INTERDISCIPLINARY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"International Journal of Qualitative Methods","FirstCategoryId":"90","ListUrlMain":"https://doi.org/10.1177/16094069241234190","RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"SOCIAL SCIENCES, INTERDISCIPLINARY","Score":null,"Total":0}
引用次数: 0

摘要

使用辅助和替代性交流方式(AAC)的人经常被排除在研究之外,然而他们的声音可以大大提高定性研究结果的适用性、可接受性和转化率。无障碍的、经过调整的研究方法欢迎使用辅助和替代性交流手段的参与者,并赋予他们权力,使他们能够进行有意义的参与。在本文中,我们介绍了合作开发包容性研究概念框架的情况,以及配套的包容性研究工具包的各个方面。该框架将平衡权力视为关键因素,主要通过确保研究方法和材料对使用辅助听力和视力障碍者无障碍来实现。我们建议通过三个相互影响的要素来实现这一目标:与使用辅助视听设备的人合作、掌握实现无障碍的技能和知识,以及确保有足够的时间来实现参与。我们确定了应用这些要素会对使用辅助交流器的人产生影响的五个方面:招募辅助交流器使用者、与交流支持者合作、调整研究方法、获得伦理批准和同意。在介绍该框架时,我们展示了定性研究人员如何营造一个重视并积极吸纳 AAC 用户的研究环境,最终推动该领域朝着更全面、更具包容性的研究实践方向发展。虽然我们的工作是在大脑性麻痹和 AAC 社区中开展的,但我们提出的框架和工具包可广泛应用于寻求交流障碍人士观点的研究人员。我们为本文制作了相应的纯语言视频,作为优化内容可访问性的补充手段。参见补充材料 。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Including People Who Use Augmentative and Alternative Communication in Qualitative Research: Can You Hear Us?
People who use augmentative and alternative communication (AAC) are frequently excluded from research, yet their voices can significantly enhance the applicability, acceptability, and translation of qualitative research findings. Accessible and adapted research methods welcome and empower participants who use AAC, and enable meaningful involvement. In this article, we describe the collaborative development of a framework to conceptualise inclusive research and aspects of an accompanying inclusive research toolkit. The framework identifies balancing power as a critical factor, primarily achieved by ensuring that research methods and materials are accessible to people who use AAC. We propose that this is achieved through three interacting elements: collaboration with AAC users, skills and knowledge to achieve accessibility, and ensuring adequate time is available to achieve involvement. We identify five areas where applying these elements has impact for AAC users: recruiting AAC users, working with communication supporters, adapting research methods, securing ethics approval, and consent. In presenting the framework, we demonstrate how qualitative researchers can foster a research environment that values and actively includes AAC users, ultimately advancing the field towards more comprehensive and inclusive research practices. While our work is situated in the cerebral palsy and AAC communities, our proposed framework and toolkit can be applied by researchers seeking perspectives from individuals with communication disabilities more broadly. We have created a corresponding plain language video of this article as an additional means of optimising accessibility of the content. See supplemental material .
求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
International Journal of Qualitative Methods
International Journal of Qualitative Methods SOCIAL SCIENCES, INTERDISCIPLINARY-
CiteScore
6.90
自引率
11.10%
发文量
139
审稿时长
12 weeks
期刊介绍: Journal Highlights Impact Factor: 5.4 Ranked 5/110 in Social Sciences, Interdisciplinary – SSCI Indexed In: Clarivate Analytics: Social Science Citation Index, the Directory of Open Access Journals (DOAJ), and Scopus Launched In: 2002 Publication is subject to payment of an article processing charge (APC) Submit here International Journal of Qualitative Methods (IJQM) is a peer-reviewed open access journal which focuses on methodological advances, innovations, and insights in qualitative or mixed methods studies. Please see the Aims and Scope tab for further information.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信