Anouk Vroegindeweij, Jan Houtveen, Desiree A. Lucassen, Elise M. Van De Putte, Nico M. Wulffraat, Sanne L. Nijhof, Joost F. Swart
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Intensive longitudinal data (ILD) on outcomes ‘fatigue severity’, ‘self-efficacy’ and ‘quality of life’ (QoL) were collected through weekly smartphone measurement for 20 weeks. ILD on biopsychosocial factors were collected through experience sampling methodology for 28 days pre-post first intervention. Baseline characteristics were compared with <i>t</i>-tests and chi-square tests. Permutation distancing tests were used to assess change over time in all ILD.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>Regarding weekly measurements, nineteen participants (42.22%) showed small to large positive outcomes (<i>d</i><sub>range</sub> = .05 to 2.59), mostly after PROfeel. Eleven participants (24.44%) showed small to moderate negative outcomes (<i>d</i><sub>range</sub> = −.02 to −2.46), mostly after dietary advice. Fatigue severity improved most, followed by self-efficacy. Participants who benefitted showed higher QoL levels and lower fatigue and pain levels compared with others at baseline (all <i>p</i> < .02). When positive outcomes were observed after PROfeel, typically ≥1 biopsychosocial factor had been targeted successfully.</p>\n </section>\n \n <section>\n \n <h3> Conclusion</h3>\n \n <p>Self-management advice has more potential when tailored to individual characteristics, including the biopsychosocial model of fatigue. 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引用次数: 0
摘要
目的研究对患有慢性疾病的青少年和年轻成年人进行量身定制的生活方式（PROfeel）或普通饮食建议作为持续疲劳自我管理干预后的个体结果，比较受益和未受益的参与者，并探讨PROfeel后疲劳的生物心理社会模型中各因素的变化：方法：在随机交叉试验（N = 45）中采用了多重单病例 AB 阶段设计。通过每周一次的智能手机测量，收集有关 "疲劳严重程度"、"自我效能 "和 "生活质量"（QoL）结果的密集纵向数据（ILD），为期20周。关于生物心理社会因素的 ILD 是通过经验抽样方法收集的，为期 28 天，在首次干预前-后进行。基线特征通过 t 检验和卡方检验进行比较。结果：关于每周的测量结果，19 名参与者（42.22%）显示出了由小到大的积极结果（drange = .05 至 2.59），其中大部分是在 PROfeel 之后。11名参与者（24.44%）显示出小到中等程度的负面结果（drange = -.02 至 -2.46），大部分是在饮食建议之后。疲劳严重程度改善最大，其次是自我效能。与基线时的其他参与者相比，受益参与者的 QoL 水平更高，疲劳和疼痛水平更低（均为 p）：自我管理建议如能根据个人特点（包括疲劳的生物心理社会模型）量身定制，则更有潜力。对于症状相对较轻的人来说，PROfeel 似乎是一种特别有用的疲劳干预方法。
Individual outcomes after tailored versus generic self-management strategies for persistent fatigue in youth with a fatigue syndrome or rheumatic condition: A multiple single-case study
Objective
To examine individual outcomes after tailored lifestyle (PROfeel) or generic dietary advice as self-management intervention for persistent fatigue in adolescents and young adults with a chronic condition, to compare participants who did and did not benefit and to explore changes to factors in the biopsychosocial model of fatigue after PROfeel.
Method
A multiple single-case AB-phase design was embedded in a randomized crossover trial (N = 45). Intensive longitudinal data (ILD) on outcomes ‘fatigue severity’, ‘self-efficacy’ and ‘quality of life’ (QoL) were collected through weekly smartphone measurement for 20 weeks. ILD on biopsychosocial factors were collected through experience sampling methodology for 28 days pre-post first intervention. Baseline characteristics were compared with t-tests and chi-square tests. Permutation distancing tests were used to assess change over time in all ILD.
Results
Regarding weekly measurements, nineteen participants (42.22%) showed small to large positive outcomes (drange = .05 to 2.59), mostly after PROfeel. Eleven participants (24.44%) showed small to moderate negative outcomes (drange = −.02 to −2.46), mostly after dietary advice. Fatigue severity improved most, followed by self-efficacy. Participants who benefitted showed higher QoL levels and lower fatigue and pain levels compared with others at baseline (all p < .02). When positive outcomes were observed after PROfeel, typically ≥1 biopsychosocial factor had been targeted successfully.
Conclusion
Self-management advice has more potential when tailored to individual characteristics, including the biopsychosocial model of fatigue. PROfeel appears particularly useful as fatigue intervention for individuals with relatively less severe symptoms.
期刊介绍：
The focus of the British Journal of Health Psychology is to publish original research on various aspects of psychology that are related to health, health-related behavior, and illness throughout a person's life. The journal specifically seeks articles that are based on health psychology theory or discuss theoretical matters within the field.
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