"从所有人中来,到所有人中去":开展在线协作会议,反思脑瘫患者的日常生活。

IF 1.8 4区 医学 Q2 PEDIATRICS
Beatriz S. Vieira, Marina J. Airoldi, Deborah Chalfun, Rafael G. A. S. Bonfim, Rachel Teplicky, Peter Rosenbaum, Marisa C. Mancini, Marina B. Brandão
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引用次数: 0

摘要

背景:转化知识以改善儿科康复已成为一个备受关注的研究领域。本研究介绍了在线会议的开发和评估,该会议汇集了脑瘫患者、家属、医护人员和研究人员的观点,共同讨论脑瘫患者的日常生活:方法:我们根据 "从知识到行动框架 "的行动周期来开发和实施在线会议。为了开发会议,我们在计划委员会中加入了各利益相关群体的代表。会议日程的设计以从出生到成年的CP患者的生命周期视角为核心,主题涉及日常生活(如自我护理、行动能力和继续教育)。通过向所有与会者发送匿名在线调查问卷,评估与会者对会议的满意度:会议共有 1656 人参加,其中 675 人回答了在线满意度调查。大多数与会者对会议结构(即技术支持、音频和视频以及在线平台的质量)和讨论主题(即相关性、内容、讨论、发言人和可用时间)给予了积极评价:将利益相关者纳入整个规划和实施过程的合作会议是一种可行、有效的知识转化策略,可在患有脊髓灰质炎的家庭和个人、医疗保健专业人员以及研究人员之间分享经验和传播知识。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
“From All, To All”: Implementing a collaborative online conference to reflect on the daily living of individuals with cerebral palsy

Background

Translating knowledge to improve paediatric rehabilitation has become a research area of interest. This study describes the development and evaluation of an online conference that brought together perspectives of individuals with cerebral palsy (CP), families, health care professionals, and researchers to discuss the daily living of individuals with CP.

Methods

We anchored the development and implementation of the online conference in the action cycle of the Knowledge to Action Framework. To develop the meeting, we included representatives from each stakeholder group in the programme committee. The conference programme was designed having the lifespan perspective of individuals with CP, from birth to adulthood, as its central core, with themes related to daily living (e.g., self-care, mobility, and continuing education). Participants' satisfaction with the conference was assessed using an anonymized online survey sent to all participants.

Results

The conference had 1656 attendees, of whom 675 answered the online satisfaction survey. Most participants rated the structure of the conference (i.e., quality of the technical support, audio and video, and online platform) and discussed topics (i.e., relevance, content, discussion, speakers, and available time) positively.

Conclusion

Collaborative conferences that include stakeholders throughout the planning and implementation are a viable, effective knowledge translation strategy that allows for sharing experiences and disseminating knowledge among families and individuals with CP, health care professionals, and researchers.

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来源期刊
CiteScore
3.40
自引率
5.30%
发文量
136
审稿时长
4-8 weeks
期刊介绍: Child: care, health and development is an international, peer-reviewed journal which publishes papers dealing with all aspects of the health and development of children and young people. We aim to attract quantitative and qualitative research papers relevant to people from all disciplines working in child health. We welcome studies which examine the effects of social and environmental factors on health and development as well as those dealing with clinical issues, the organization of services and health policy. We particularly encourage the submission of studies related to those who are disadvantaged by physical, developmental, emotional and social problems. The journal also aims to collate important research findings and to provide a forum for discussion of global child health issues.
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