"我有很多毛病。我只是有点不舒服":无家可归者和严重药物滥用者的癌症综合症经历

IF 1.8 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Pia Vivian Pedersen, Morten Hulvej Rod, Tine Tjørnhøj-Thomsen
{"title":"\"我有很多毛病。我只是有点不舒服\":无家可归者和严重药物滥用者的癌症综合症经历","authors":"Pia Vivian Pedersen,&nbsp;Morten Hulvej Rod,&nbsp;Tine Tjørnhøj-Thomsen","doi":"10.1016/j.ssmqr.2024.100415","DOIUrl":null,"url":null,"abstract":"<div><p>This article investigates the complex ways that social conditions and illness experiences interact with cancer in a marginalised population. Drawing on the theoretical framework of syndemics, we explore how people living in circumstances of homelessness and severe substance use in Denmark experience and manage their cancer illness. We draw upon qualitative, partly longitudinal, interviews with marginalised people with current or previous cancer illness. Participants suffered from a wide range of physical and mental conditions alongside their cancer illness and substance use. Adverse interactions between these conditions delayed, complicated, or hindered both the cancer diagnosis and the cancer treatment of participants. Surprisingly, for some, the cancer diagnosis also contributed to temporary periods of stability. Nevertheless, disadvantaged social conditions of chaotic, unwanted housing conditions, fragile social relations and social isolation worked to aggravate participants' cancer trajectories and general life situation. Participants' cancer experiences were cases of syndemic suffering that took on a distinct direction in which cancer created cyclical rounds of suffering due to the many late effects of the illness and treatment. The article demonstrates how marginalised people’s cancer experiences are inextricably linked to, and shaped by, the social and health inequities characterising their lives.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"5 ","pages":"Article 100415"},"PeriodicalIF":1.8000,"publicationDate":"2024-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000246/pdfft?md5=c5d1623aebd3acd08f19ffcd2f2d4cd7&pid=1-s2.0-S2667321524000246-main.pdf","citationCount":"0","resultStr":"{\"title\":\"“There’s so much wrong with me. I’ve just gotten a little sick”: Syndemic cancer experiences among people struggling with homelessness and severe substance use\",\"authors\":\"Pia Vivian Pedersen,&nbsp;Morten Hulvej Rod,&nbsp;Tine Tjørnhøj-Thomsen\",\"doi\":\"10.1016/j.ssmqr.2024.100415\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><p>This article investigates the complex ways that social conditions and illness experiences interact with cancer in a marginalised population. Drawing on the theoretical framework of syndemics, we explore how people living in circumstances of homelessness and severe substance use in Denmark experience and manage their cancer illness. We draw upon qualitative, partly longitudinal, interviews with marginalised people with current or previous cancer illness. Participants suffered from a wide range of physical and mental conditions alongside their cancer illness and substance use. Adverse interactions between these conditions delayed, complicated, or hindered both the cancer diagnosis and the cancer treatment of participants. Surprisingly, for some, the cancer diagnosis also contributed to temporary periods of stability. Nevertheless, disadvantaged social conditions of chaotic, unwanted housing conditions, fragile social relations and social isolation worked to aggravate participants' cancer trajectories and general life situation. Participants' cancer experiences were cases of syndemic suffering that took on a distinct direction in which cancer created cyclical rounds of suffering due to the many late effects of the illness and treatment. The article demonstrates how marginalised people’s cancer experiences are inextricably linked to, and shaped by, the social and health inequities characterising their lives.</p></div>\",\"PeriodicalId\":74862,\"journal\":{\"name\":\"SSM. Qualitative research in health\",\"volume\":\"5 \",\"pages\":\"Article 100415\"},\"PeriodicalIF\":1.8000,\"publicationDate\":\"2024-03-16\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.sciencedirect.com/science/article/pii/S2667321524000246/pdfft?md5=c5d1623aebd3acd08f19ffcd2f2d4cd7&pid=1-s2.0-S2667321524000246-main.pdf\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"SSM. Qualitative research in health\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S2667321524000246\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"SSM. Qualitative research in health","FirstCategoryId":"1085","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S2667321524000246","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH","Score":null,"Total":0}
引用次数: 0

摘要

本文研究了社会条件和疾病经历与癌症在边缘化人群中相互作用的复杂方式。借鉴综合症的理论框架,我们探讨了丹麦无家可归和严重滥用药物的人群是如何经历和管理癌症疾病的。我们对目前或曾经患有癌症的边缘化人群进行了定性、部分纵向访谈。参与者在罹患癌症和使用药物的同时,还患有各种身体和精神疾病。这些情况之间的不良影响延迟、复杂化或阻碍了参与者的癌症诊断和癌症治疗。令人惊讶的是,对一些人来说,癌症诊断还有助于他们获得暂时的稳定。然而,混乱、不受欢迎的住房条件、脆弱的社会关系和社会隔离等不利的社会条件,加剧了参与者的癌症轨迹和总体生活状况。参与者的癌症经历是一个综合痛苦的案例,具有明显的方向性,由于疾病和治疗的许多后期影响,癌症造成了一轮又一轮的周期性痛苦。这篇文章展示了边缘化人群的癌症经历是如何与他们生活中的社会和健康不平等现象密不可分地联系在一起,并受其影响。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
“There’s so much wrong with me. I’ve just gotten a little sick”: Syndemic cancer experiences among people struggling with homelessness and severe substance use

This article investigates the complex ways that social conditions and illness experiences interact with cancer in a marginalised population. Drawing on the theoretical framework of syndemics, we explore how people living in circumstances of homelessness and severe substance use in Denmark experience and manage their cancer illness. We draw upon qualitative, partly longitudinal, interviews with marginalised people with current or previous cancer illness. Participants suffered from a wide range of physical and mental conditions alongside their cancer illness and substance use. Adverse interactions between these conditions delayed, complicated, or hindered both the cancer diagnosis and the cancer treatment of participants. Surprisingly, for some, the cancer diagnosis also contributed to temporary periods of stability. Nevertheless, disadvantaged social conditions of chaotic, unwanted housing conditions, fragile social relations and social isolation worked to aggravate participants' cancer trajectories and general life situation. Participants' cancer experiences were cases of syndemic suffering that took on a distinct direction in which cancer created cyclical rounds of suffering due to the many late effects of the illness and treatment. The article demonstrates how marginalised people’s cancer experiences are inextricably linked to, and shaped by, the social and health inequities characterising their lives.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
CiteScore
1.60
自引率
0.00%
发文量
0
审稿时长
163 days
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信