与患者和家属共同开展的一项前瞻性研究:准确预后对姑息治疗患者的用处。

IF 1.6 Q2 SOCIAL WORK
Manuela Piovesan, Pauline Orr, Sarah Tevyaw, Emily Roussos, Chams Cherid, Sylvie Bouchard
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引用次数: 0

摘要

预测临终病人的预期寿命是病人、家属和心理健康工作者在生命最后几天所面临的一个重要的临终关怀问题。本研究旨在探讨准确的预后对患者/家属的重要性/实用性,以及预后对规划患者生前活动的影响。研究对象包括一年内入院的所有患者。入院时记录了患者和家属对准确预后有用性的看法。该组共有 285 名患者。中位死亡时间为 8 天。大多数家属(83%)将准确预后的重要性评为中等(13%)到非常有用(70%)。共有 42% 的患者能够完成问卷调查。其中,58% 的患者认为问卷的作用从一般到非常大不等。对家属而言,准确的预后影响了探视计划(69%)、沟通/关闭(42%)和精神需求/葬礼安排(31%)。患者认为探视计划(10%)、沟通/封闭(12%)和目标/成就(9%)非常重要。讨论预后及其影响非常有助于精神卫生专业人员与患者/家属进行开诚布公的对话,以确定、优先考虑和调整治疗方法,从而在死亡前实现目标。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A Prospective Study with Patients and Families on the Usefulness of Accurate Prognosis for Palliative Care Patients.

Prediction of life expectancy in terminally ill patients is an important end-of-life care issue for patients, families and mental health workers during the last days of life. This study was conducted to examine the importance/usefulness for patients/families to have an accurate prognosis and its impact on planning their activities prior to death. All patients admitted during a period of one year were included. Patients' and families' viewpoints on the usefulness of an accurate prognosis was documented at admission. There were 285 patients in the cohort. The median time to death was 8 days. Most families (83%) rated the importance of an accurate prognosis as moderately (13%) to very much useful (70%). A total of 42% of patients were able to complete e the questionnaire. Among these, 58% found it moderately to very much useful. For families, having an accurate prognosis influenced the planning of visits (69%), communication/closure (42%) and spiritual needs/funeral arrangements (31%). Patients identified planning of visits (10%), communication/closure (12%), and goals/accomplishments (9%) as very important. Discussing the prognosis and its impact is very helpful for the mental health professionals to have open and honest conversations with patients/families to identify, prioritize and adapt treatment to achieve goals prior to death.

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来源期刊
CiteScore
2.60
自引率
12.50%
发文量
28
期刊介绍: The Journal of Social Work in End-of-Life & Palliative Care, now affiliated with the Social Work in Hospice and Palliative Care Network, explores issues crucial to caring for terminally ill patients and their families. Academics and social work practitioners present current research, articles, and continuing features on the "state of the art" of social work practice, including interdisciplinary interventions, practice innovations, practice evaluations, end-of-life decision-making, grief and bereavement, and ethical and moral issues. The Journal of Social Work in End-of-Life & Palliative Care combines theory and practice to facilitate an understanding of the multi-level issues surrounding care for those in pain and suffering from painful, debilitating, and/or terminal illness.
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