L. Tholin , C. Rumeau , R. Jankowski , P. Gallet , J. Wen Hsieh , D.T. Nguyen
{"title":"法国嗅觉障碍患者的经验。","authors":"L. Tholin , C. Rumeau , R. Jankowski , P. Gallet , J. Wen Hsieh , D.T. Nguyen","doi":"10.1016/j.anorl.2024.02.009","DOIUrl":null,"url":null,"abstract":"<div><h3>Objectives</h3><p>To assess the experience of subjects with olfactory disorders in their daily life and medical management, and their expectations and proposals for improvement.</p></div><div><h3>Material and methods</h3><p>A cross-sectional observational study was conducted over the period January 2020 to December 2021, with 300 subjects with olfactory disorders: 222 female, 78 male; mean age 46<!--> <!-->±<!--> <!-->15 years. In total, 126 were patients consulting in ENT, and 174 were members of the Anosmie.org patients’ association. Participants filled out a questionnaire; free texts were analyzed thematically and coded for various qualitative variables.</p></div><div><h3>Results</h3><p>Olfactory disorders considerably impacted health, safety and quality of life. Non-COVID-19 acute etiologies (non-COVID-19 viral infection, cranial trauma) showed particularly high risk of psychological, social, safety-related and nutritional consequences. Almost all patients (94%) were dissatisfied with their medical management: 28% had received little explanation, and 23% felt their dysosmia was completely neglected, with no exploration and no etiology suggested. Patients wished above all to have follow-up and accompaniment.</p></div><div><h3>Conclusion</h3><p>Despite significant impact on health and quality of life, olfactory disorders are neglected by the medical community. Patients should be given an ENT assessment with olfactometry, to establish diagnosis and prognosis. Global multidisciplinary management is necessary, including therapeutic education, and psychological, social and nutritional follow-up.</p></div>","PeriodicalId":48834,"journal":{"name":"European Annals of Otorhinolaryngology-Head and Neck Diseases","volume":"141 3","pages":"Pages 139-145"},"PeriodicalIF":1.9000,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S1879729624000267/pdfft?md5=11ceaf9eb81344ac166dd5443f62e438&pid=1-s2.0-S1879729624000267-main.pdf","citationCount":"0","resultStr":"{\"title\":\"Experience of French patients with olfactory disorders\",\"authors\":\"L. Tholin , C. Rumeau , R. Jankowski , P. Gallet , J. Wen Hsieh , D.T. Nguyen\",\"doi\":\"10.1016/j.anorl.2024.02.009\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><h3>Objectives</h3><p>To assess the experience of subjects with olfactory disorders in their daily life and medical management, and their expectations and proposals for improvement.</p></div><div><h3>Material and methods</h3><p>A cross-sectional observational study was conducted over the period January 2020 to December 2021, with 300 subjects with olfactory disorders: 222 female, 78 male; mean age 46<!--> <!-->±<!--> <!-->15 years. In total, 126 were patients consulting in ENT, and 174 were members of the Anosmie.org patients’ association. Participants filled out a questionnaire; free texts were analyzed thematically and coded for various qualitative variables.</p></div><div><h3>Results</h3><p>Olfactory disorders considerably impacted health, safety and quality of life. Non-COVID-19 acute etiologies (non-COVID-19 viral infection, cranial trauma) showed particularly high risk of psychological, social, safety-related and nutritional consequences. Almost all patients (94%) were dissatisfied with their medical management: 28% had received little explanation, and 23% felt their dysosmia was completely neglected, with no exploration and no etiology suggested. Patients wished above all to have follow-up and accompaniment.</p></div><div><h3>Conclusion</h3><p>Despite significant impact on health and quality of life, olfactory disorders are neglected by the medical community. Patients should be given an ENT assessment with olfactometry, to establish diagnosis and prognosis. Global multidisciplinary management is necessary, including therapeutic education, and psychological, social and nutritional follow-up.</p></div>\",\"PeriodicalId\":48834,\"journal\":{\"name\":\"European Annals of Otorhinolaryngology-Head and Neck Diseases\",\"volume\":\"141 3\",\"pages\":\"Pages 139-145\"},\"PeriodicalIF\":1.9000,\"publicationDate\":\"2024-05-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.sciencedirect.com/science/article/pii/S1879729624000267/pdfft?md5=11ceaf9eb81344ac166dd5443f62e438&pid=1-s2.0-S1879729624000267-main.pdf\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"European Annals of Otorhinolaryngology-Head and Neck Diseases\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S1879729624000267\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"OTORHINOLARYNGOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"European Annals of Otorhinolaryngology-Head and Neck Diseases","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S1879729624000267","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"OTORHINOLARYNGOLOGY","Score":null,"Total":0}
Experience of French patients with olfactory disorders
Objectives
To assess the experience of subjects with olfactory disorders in their daily life and medical management, and their expectations and proposals for improvement.
Material and methods
A cross-sectional observational study was conducted over the period January 2020 to December 2021, with 300 subjects with olfactory disorders: 222 female, 78 male; mean age 46 ± 15 years. In total, 126 were patients consulting in ENT, and 174 were members of the Anosmie.org patients’ association. Participants filled out a questionnaire; free texts were analyzed thematically and coded for various qualitative variables.
Results
Olfactory disorders considerably impacted health, safety and quality of life. Non-COVID-19 acute etiologies (non-COVID-19 viral infection, cranial trauma) showed particularly high risk of psychological, social, safety-related and nutritional consequences. Almost all patients (94%) were dissatisfied with their medical management: 28% had received little explanation, and 23% felt their dysosmia was completely neglected, with no exploration and no etiology suggested. Patients wished above all to have follow-up and accompaniment.
Conclusion
Despite significant impact on health and quality of life, olfactory disorders are neglected by the medical community. Patients should be given an ENT assessment with olfactometry, to establish diagnosis and prognosis. Global multidisciplinary management is necessary, including therapeutic education, and psychological, social and nutritional follow-up.
期刊介绍：
European Annals of Oto-rhino-laryngology, Head and Neck diseases heir of one of the oldest otorhinolaryngology journals in Europe is the official organ of the French Society of Otorhinolaryngology (SFORL) and the the International Francophone Society of Otorhinolaryngology (SIFORL). Today six annual issues provide original peer reviewed clinical and research articles, epidemiological studies, new methodological clinical approaches and review articles giving most up-to-date insights in all areas of otology, laryngology rhinology, head and neck surgery. The European Annals also publish the SFORL guidelines and recommendations.The journal is a unique two-armed publication: the European Annals (ANORL) is an English language well referenced online journal (e-only) whereas the Annales Françaises d’ORL (AFORL), mail-order paper and online edition in French language are aimed at the French-speaking community. French language teams must submit their articles in French to the AFORL site.
Federating journal in its field, the European Annals has an Editorial board of experts with international reputation that allow to make an important contribution to communication on new research data and clinical practice by publishing high-quality articles.
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