L. Tholin , C. Rumeau , R. Jankowski , P. Gallet , J. Wen Hsieh , D.T. Nguyen
{"title":"法国嗅觉障碍患者的经验。","authors":"L. Tholin , C. Rumeau , R. Jankowski , P. Gallet , J. Wen Hsieh , D.T. Nguyen","doi":"10.1016/j.anorl.2024.02.009","DOIUrl":null,"url":null,"abstract":"<div><h3>Objectives</h3><p>To assess the experience of subjects with olfactory disorders in their daily life and medical management, and their expectations and proposals for improvement.</p></div><div><h3>Material and methods</h3><p>A cross-sectional observational study was conducted over the period January 2020 to December 2021, with 300 subjects with olfactory disorders: 222 female, 78 male; mean age 46<!--> <!-->±<!--> <!-->15 years. In total, 126 were patients consulting in ENT, and 174 were members of the Anosmie.org patients’ association. Participants filled out a questionnaire; free texts were analyzed thematically and coded for various qualitative variables.</p></div><div><h3>Results</h3><p>Olfactory disorders considerably impacted health, safety and quality of life. Non-COVID-19 acute etiologies (non-COVID-19 viral infection, cranial trauma) showed particularly high risk of psychological, social, safety-related and nutritional consequences. Almost all patients (94%) were dissatisfied with their medical management: 28% had received little explanation, and 23% felt their dysosmia was completely neglected, with no exploration and no etiology suggested. Patients wished above all to have follow-up and accompaniment.</p></div><div><h3>Conclusion</h3><p>Despite significant impact on health and quality of life, olfactory disorders are neglected by the medical community. Patients should be given an ENT assessment with olfactometry, to establish diagnosis and prognosis. Global multidisciplinary management is necessary, including therapeutic education, and psychological, social and nutritional follow-up.</p></div>","PeriodicalId":1,"journal":{"name":"Accounts of Chemical Research","volume":null,"pages":null},"PeriodicalIF":16.4000,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S1879729624000267/pdfft?md5=11ceaf9eb81344ac166dd5443f62e438&pid=1-s2.0-S1879729624000267-main.pdf","citationCount":"0","resultStr":"{\"title\":\"Experience of French patients with olfactory disorders\",\"authors\":\"L. Tholin , C. Rumeau , R. Jankowski , P. Gallet , J. Wen Hsieh , D.T. Nguyen\",\"doi\":\"10.1016/j.anorl.2024.02.009\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><h3>Objectives</h3><p>To assess the experience of subjects with olfactory disorders in their daily life and medical management, and their expectations and proposals for improvement.</p></div><div><h3>Material and methods</h3><p>A cross-sectional observational study was conducted over the period January 2020 to December 2021, with 300 subjects with olfactory disorders: 222 female, 78 male; mean age 46<!--> <!-->±<!--> <!-->15 years. In total, 126 were patients consulting in ENT, and 174 were members of the Anosmie.org patients’ association. Participants filled out a questionnaire; free texts were analyzed thematically and coded for various qualitative variables.</p></div><div><h3>Results</h3><p>Olfactory disorders considerably impacted health, safety and quality of life. Non-COVID-19 acute etiologies (non-COVID-19 viral infection, cranial trauma) showed particularly high risk of psychological, social, safety-related and nutritional consequences. Almost all patients (94%) were dissatisfied with their medical management: 28% had received little explanation, and 23% felt their dysosmia was completely neglected, with no exploration and no etiology suggested. Patients wished above all to have follow-up and accompaniment.</p></div><div><h3>Conclusion</h3><p>Despite significant impact on health and quality of life, olfactory disorders are neglected by the medical community. Patients should be given an ENT assessment with olfactometry, to establish diagnosis and prognosis. Global multidisciplinary management is necessary, including therapeutic education, and psychological, social and nutritional follow-up.</p></div>\",\"PeriodicalId\":1,\"journal\":{\"name\":\"Accounts of Chemical Research\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":16.4000,\"publicationDate\":\"2024-05-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.sciencedirect.com/science/article/pii/S1879729624000267/pdfft?md5=11ceaf9eb81344ac166dd5443f62e438&pid=1-s2.0-S1879729624000267-main.pdf\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Accounts of Chemical Research\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S1879729624000267\",\"RegionNum\":1,\"RegionCategory\":\"化学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"CHEMISTRY, MULTIDISCIPLINARY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Accounts of Chemical Research","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S1879729624000267","RegionNum":1,"RegionCategory":"化学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"CHEMISTRY, MULTIDISCIPLINARY","Score":null,"Total":0}
Experience of French patients with olfactory disorders
Objectives
To assess the experience of subjects with olfactory disorders in their daily life and medical management, and their expectations and proposals for improvement.
Material and methods
A cross-sectional observational study was conducted over the period January 2020 to December 2021, with 300 subjects with olfactory disorders: 222 female, 78 male; mean age 46 ± 15 years. In total, 126 were patients consulting in ENT, and 174 were members of the Anosmie.org patients’ association. Participants filled out a questionnaire; free texts were analyzed thematically and coded for various qualitative variables.
Results
Olfactory disorders considerably impacted health, safety and quality of life. Non-COVID-19 acute etiologies (non-COVID-19 viral infection, cranial trauma) showed particularly high risk of psychological, social, safety-related and nutritional consequences. Almost all patients (94%) were dissatisfied with their medical management: 28% had received little explanation, and 23% felt their dysosmia was completely neglected, with no exploration and no etiology suggested. Patients wished above all to have follow-up and accompaniment.
Conclusion
Despite significant impact on health and quality of life, olfactory disorders are neglected by the medical community. Patients should be given an ENT assessment with olfactometry, to establish diagnosis and prognosis. Global multidisciplinary management is necessary, including therapeutic education, and psychological, social and nutritional follow-up.
期刊介绍：
Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance.
Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.
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