Caregiver-Implemented Behavior Analytic Treatment Package for Skin Picking in PWS: A Pilot Study

Objectives

Prader-Willi syndrome (PWS) is a neurogenetic condition characterized by a variety of physical and behavioral symptoms that impact health and quality of life. Skin picking, a form of self-injurious behavior, is highly prevalent in the PWS population and can result in serious and long-lasting health concerns. Despite this, few effective interventions for skin picking exist.

Methods

This study aims to fill the gaps in the literature by evaluating a caregiver-implemented behavior analytic intervention for skin picking delivered using remote, video technology. Thirteen caregiver child dyads participated in the virtual behavior analytic caregiver training program. The training lasted between 8 and 12 weeks. Caregivers met one-on-one with a Board-Certified Behavior Analyst who took them through a structured program where they learned a series of strategies to prevent and reduce skin picking.

Results

Results of the study indicate significant improvements in picking for eight participants across caregiver rating scales, wound photographs, and quantitative analyses. Questionable effects were found for three participants, and no impact was seen for the final participant.

Conclusions

While replication is needed, this study demonstrates a promising step towards developing a diagnosis-specific intervention for a highly prevalent behavior with widespread impacts on social functioning and health.