Zihe Zhang, Haiying Huang, Mingxia Duan, Ling Yu, Lei Cheng
{"title":"中国癌症患儿、其父母和医护人员眼中的患病期间的 \"好父母\"。","authors":"Zihe Zhang, Haiying Huang, Mingxia Duan, Ling Yu, Lei Cheng","doi":"10.1097/NCC.0000000000001329","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Identifying the definition of \"being a good parent\" facilitates the understanding of parents' personal beliefs and deeds regarding their ill child.</p><p><strong>Objective: </strong>The aim of this study was to explore the concept of \"being a good parent to my ill child\" during pediatric cancer treatment from the perspective of Chinese children, parents, and providers.</p><p><strong>Methods: </strong>A descriptive qualitative study was conducted with 6 children, 18 parents, 5 doctors, 19 nurses, and 3 social workers by semistructured interviews at 3 Chinese hospitals.</p><p><strong>Results: </strong>Except for \"letting the Lord lead,\" 7 themes from the original conceptual model were validated, for example, \"being there for my child\" (n = 51, 100.0%); \"doing right by my child\" (n = 38, 74.5%), \"being an advocate for my child\" (n = 27, 52.9%), \"conveying love to my child\" (n = 26, 51.0%), \"making my child healthy\" (n = 18, 35.3%), \"being a good life example\" (n = 13, 25.5%), and \"not allowing suffering\" (n = 13, 25.5%). A new theme, \"rebuilding myself\" (n = 39, 76.5%), emerged in the Chinese context. \"Being a good parent to my ill child\" is perceived differently among stakeholders. Healthcare professionals' facilitation to fulfill the concept included \"recognizing the individualized good-parent definition,\" \"providing best available care\" and \"establishing a supportive environment.\"</p><p><strong>Conclusion: </strong>\"Being a good parent to my ill child\" is meaningfully expressed by Chinese parents and recognized by children and providers during pediatric cancer treatment.</p><p><strong>Implications for practice: </strong>It is important to support parents in conveying their internal good parent definition and sharing it with stakeholders. Attention should be paid to related cultural influencers, a supportive family-friendly environment, and shared decision making involving the child's voice.</p>","PeriodicalId":50713,"journal":{"name":"Cancer Nursing","volume":" ","pages":"71-76"},"PeriodicalIF":2.4000,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"\\\"Being a Good Parent\\\" During Times of Illness as Defined by Chinese Children With Cancer, Their Parents, and Providers.\",\"authors\":\"Zihe Zhang, Haiying Huang, Mingxia Duan, Ling Yu, Lei Cheng\",\"doi\":\"10.1097/NCC.0000000000001329\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>Identifying the definition of \\\"being a good parent\\\" facilitates the understanding of parents' personal beliefs and deeds regarding their ill child.</p><p><strong>Objective: </strong>The aim of this study was to explore the concept of \\\"being a good parent to my ill child\\\" during pediatric cancer treatment from the perspective of Chinese children, parents, and providers.</p><p><strong>Methods: </strong>A descriptive qualitative study was conducted with 6 children, 18 parents, 5 doctors, 19 nurses, and 3 social workers by semistructured interviews at 3 Chinese hospitals.</p><p><strong>Results: </strong>Except for \\\"letting the Lord lead,\\\" 7 themes from the original conceptual model were validated, for example, \\\"being there for my child\\\" (n = 51, 100.0%); \\\"doing right by my child\\\" (n = 38, 74.5%), \\\"being an advocate for my child\\\" (n = 27, 52.9%), \\\"conveying love to my child\\\" (n = 26, 51.0%), \\\"making my child healthy\\\" (n = 18, 35.3%), \\\"being a good life example\\\" (n = 13, 25.5%), and \\\"not allowing suffering\\\" (n = 13, 25.5%). A new theme, \\\"rebuilding myself\\\" (n = 39, 76.5%), emerged in the Chinese context. \\\"Being a good parent to my ill child\\\" is perceived differently among stakeholders. Healthcare professionals' facilitation to fulfill the concept included \\\"recognizing the individualized good-parent definition,\\\" \\\"providing best available care\\\" and \\\"establishing a supportive environment.\\\"</p><p><strong>Conclusion: </strong>\\\"Being a good parent to my ill child\\\" is meaningfully expressed by Chinese parents and recognized by children and providers during pediatric cancer treatment.</p><p><strong>Implications for practice: </strong>It is important to support parents in conveying their internal good parent definition and sharing it with stakeholders. Attention should be paid to related cultural influencers, a supportive family-friendly environment, and shared decision making involving the child's voice.</p>\",\"PeriodicalId\":50713,\"journal\":{\"name\":\"Cancer Nursing\",\"volume\":\" \",\"pages\":\"71-76\"},\"PeriodicalIF\":2.4000,\"publicationDate\":\"2025-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Cancer Nursing\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1097/NCC.0000000000001329\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2024/2/8 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q1\",\"JCRName\":\"NURSING\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Cancer Nursing","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1097/NCC.0000000000001329","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/2/8 0:00:00","PubModel":"Epub","JCR":"Q1","JCRName":"NURSING","Score":null,"Total":0}
"Being a Good Parent" During Times of Illness as Defined by Chinese Children With Cancer, Their Parents, and Providers.
Background: Identifying the definition of "being a good parent" facilitates the understanding of parents' personal beliefs and deeds regarding their ill child.
Objective: The aim of this study was to explore the concept of "being a good parent to my ill child" during pediatric cancer treatment from the perspective of Chinese children, parents, and providers.
Methods: A descriptive qualitative study was conducted with 6 children, 18 parents, 5 doctors, 19 nurses, and 3 social workers by semistructured interviews at 3 Chinese hospitals.
Results: Except for "letting the Lord lead," 7 themes from the original conceptual model were validated, for example, "being there for my child" (n = 51, 100.0%); "doing right by my child" (n = 38, 74.5%), "being an advocate for my child" (n = 27, 52.9%), "conveying love to my child" (n = 26, 51.0%), "making my child healthy" (n = 18, 35.3%), "being a good life example" (n = 13, 25.5%), and "not allowing suffering" (n = 13, 25.5%). A new theme, "rebuilding myself" (n = 39, 76.5%), emerged in the Chinese context. "Being a good parent to my ill child" is perceived differently among stakeholders. Healthcare professionals' facilitation to fulfill the concept included "recognizing the individualized good-parent definition," "providing best available care" and "establishing a supportive environment."
Conclusion: "Being a good parent to my ill child" is meaningfully expressed by Chinese parents and recognized by children and providers during pediatric cancer treatment.
Implications for practice: It is important to support parents in conveying their internal good parent definition and sharing it with stakeholders. Attention should be paid to related cultural influencers, a supportive family-friendly environment, and shared decision making involving the child's voice.
期刊介绍:
Each bimonthly issue of Cancer Nursing™ addresses the whole spectrum of problems arising in the care and support of cancer patients--prevention and early detection, geriatric and pediatric cancer nursing, medical and surgical oncology, ambulatory care, nutritional support, psychosocial aspects of cancer, patient responses to all treatment modalities, and specific nursing interventions. The journal offers unparalleled coverage of cancer care delivery practices worldwide, as well as groundbreaking research findings and their practical applications.