照片雕刻青春的故事:利用摄影舆论全面捕捉接受脊柱融合手术的青少年的生活经历和痛苦。

IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE
Qualitative Health Research Pub Date : 2024-08-01 Epub Date: 2024-02-08 DOI:10.1177/10497323241227218
Samantha Noyek, Gillian Newman, Abbie Jordan, Kathryn A Birnie, Melanie Noel
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引用次数: 0

摘要

脊柱融合手术是青少年最常见的大型外科手术之一。青少年特发性脊柱侧凸(AIS)是脊柱融合术最常见的原因。青少年特发性脊柱侧弯症(AIS)(占 25%-47% 的病例)和脊柱融合手术与疼痛有关,其中高达 15% 的青少年会出现新发慢性疼痛。本研究采用摄影选言的方法,探索青少年在脊柱融合手术前、手术中和手术后的心路历程,展示他们在疼痛中和疼痛后的经历。20 名参与者是从资深作者实验室之前进行的一项研究中招募的。参与者拍摄了日常生活中的照片/视频(第一阶段);收集了手术前/手术中/手术后拍摄的照片/视频(第二阶段);并参加了个人访谈,反思性地讨论照片/视频背后的意义(第三阶段)。在访谈之前,我们发放了一份评估疼痛特征的问卷。19名患有脊柱侧弯症的女孩/妇女和1名患有脊柱后凸症的男孩/男子(12-19岁,Mage = 16岁)参加了访谈;他们的身份识别为白人(80%)、其他族裔(15%)和东南亚人(5%)。研究人员采用了反思性主题分析方法,得出了五个主题:(1) 身体美学与机器;(2) 对手术/结果的期望和预期;(3) 对正常和自由的渴望;(4) 在希望的积极手术体验中航行;(5) 旅程对身份形成和自我意识的塑造。研究结果支持青少年的主张,强调有必要确认青少年关注的问题,并告知医护人员个性化护理的重要性。青少年的观点强调了优化手术/医疗保健体验的机会,以及脊柱侧弯对身体形象和外貌的社会心理影响。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Photos Sculpt the Stories of Youth: Using Photovoice to Holistically Capture the Lived Experiences and Pain of Youth Who Underwent Spinal Fusion Surgery.

Spinal fusion surgery is one of the most common major surgical procedures in youth. Adolescent idiopathic scoliosis (AIS) is the most frequent reason for corrective spinal fusion. AIS (∼25%-47% of cases) and spinal fusion surgeries are associated with pain, including the development of new onset chronic pain for up to 15% of youth. This research used photovoice approaches to explore the journeys of youth from before, during, and after spinal fusion surgery, to demonstrate their experiences both of and beyond pain. Twenty participants were recruited from a previous study conducted by the senior author's lab. Participants captured photos/videos in their daily life (Phase 1); collected previously taken photos/videos from before/during/after their surgery (Phase 2); and participated in individual interviews to reflexively discuss the meaning behind photos/videos (Phase 3). Before interviews, a questionnaire was administered to assess pain characteristics. Nineteen girls/women with scoliosis and one boy/man with kyphosis (12-19 years old, Mage = 16 years) participated; they identified as white (80%), other (15%), and Southeast Asian (5%). The researchers used a reflexive thematic analysis approach, which generated five themes: (1) body aesthetic versus machine; (2) expectations and anticipation of surgery/outcomes; (3) desire of normalcy and freedom; (4) navigating a hoped-for positive surgery experience; and (5) the journey sculpts identity formation and sense of self. Findings support youth advocacy, underscoring the need to validate youth concerns and inform healthcare professionals of the importance of individualized care. Youth perspectives highlighted opportunities for optimizing surgery/healthcare experiences and the psychosocial impacts of scoliosis on body image and appearance.

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来源期刊
CiteScore
6.80
自引率
6.20%
发文量
109
期刊介绍: QUALITATIVE HEALTH RESEARCH is an international, interdisciplinary, refereed journal for the enhancement of health care and to further the development and understanding of qualitative research methods in health care settings. We welcome manuscripts in the following areas: the description and analysis of the illness experience, health and health-seeking behaviors, the experiences of caregivers, the sociocultural organization of health care, health care policy, and related topics. We also seek critical reviews and commentaries addressing conceptual, theoretical, methodological, and ethical issues pertaining to qualitative enquiry.
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